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It's June 2010 already! Allergy Chat Thread - Page 44

post #861 of 873
Quote:
Originally Posted by changingseasons View Post
Any way you can take some really extra special snacks/treats/toys that might keep them distracted long enough to get through the appointment? Or a special treat for one, and just stick the other on the boob the whole time? (That's the only trick I have up my sleeve over here....)


We just got home from our NAET consultation. We just met with the doc, he tested a couple things on all of us, and we discussed treatment. Can I just say

OMFG?!?!

That was the first time that I've been muscle tested, and it BLEW MY MIND. He did me first, just to show me how it worked, and then did DD (through me- she was sitting on me), and then DP so that he wouldn't think it was all a bunch of hocus-pocus.

I really, really expected it to be something that would be more obvious to the practitioner, but not so much to me. NOT even close. He did white rice on me and tried to push my arm, couldn't get it down. Then he did sugar (he always uses that one for a comparison, because he said almost everyone has a problem with sugar) and my arm just dropped when he pressed on it. I was pushing back with everything I had, and I couldn't keep my arm up. Whoa.

I guess I was doubting it because I've never had good luck with pendulum testing- because I'm too aware of swaying it one way or the other- I can't just let it do its thing. But WOW. That's really all I can say. WOW. I said yes- we will definitely start treatment, so we go back on Friday for our first appointment.

And it gets better- he offers a discounted rate for financial need (which we definitely need, since this will all be cash payments for us), AND he said he would treat me and DD at the same time!

Oh, oh, oh- AND I was thinking it would be nice to do eggs first, since we have a very obvious contact IgE reaction to eggs, so it would be easy to see if it actually works or not. But in looking at his website, they talk about clearing different vitamins and minerals first, so I figured we would have to do it in their order. But nope- he actually told me (without me asking) that they would do the egg mix first, which covers egg, chicken, feathers, and it works on general inflammation.

I am really, really, really, really, really trying not to get my hopes up here. (I will start a thread about our progress after our first real appointment.)
wow sounds amazing!!! Can you post the website I'm just interested reading up on it? I hope it works for you I have heard really GREAT things about NAET.
Quote:
Originally Posted by tanyalynn View Post


We made it! I haven't read anything at all, I'd like to go back though and catch up on how everyone is doing.

For now... it's doable. 2500 miles, 1150 alone, about 1400 with my mom, plus a 4yo and a 6yo.

Need to go fiddle with dinner, my mom's already starting something but she's probably more tired than I am.

Suffice it to say, it's nice to be back with y'all.
Glad you made it safely Tanya!!!!


I got my labs back today some things were off and found I have a 2 mutations so I NEED folate. Very good to know since DH is dying for another LO. My RBC magnesium is at 5.4. normal is 4.2-6.8 so I guess thats pretty good(a little higher would be good) I thought for sure I would be deficient...I'm actually quite shocked I'm not I rarely remember to supp magnesium.
post #862 of 873
I'm still working on getting caught up but some stuff jumped out at me from earlier in the month/thread.

Quote:
Originally Posted by mamafish9 View Post
Searched Yasko for adenoids. She seems to link it mostly with strep - chronic strep in nasal passages AND gut (and the gut part leads to leaky gut). It's a bear to get rid of, but apparently nasal xylitol spray is great for getting it out of nasal passages, and then papaya enzyme & vitamin C (to bowel tolerance). Also, are you supping iron? She strongly recommends people do NOT take iron if dealing with chronic bacterial stuff, it makes the bacteria stronger. Instead she uses lactoferrin, which accomplishes the same thing for you without making the bacteria more virulent. Oh, and elderberry for immune support.

But, and this is a big guess, most of the kids with adenoid issues seem to have the tough MTRR mutations, meaning they need tons of B12. So you might try hydroxy B12 with him - that at least is an easy thing to get picky little guys to take!
Adenoids are one of my youngest sons biggest issues. This is really interesting stuff! He has had chronic ear infections and suspected throat infections.

Where does one get xylitol spray (and would it work with a 1 year old?) And where does one get hydroxy B12?

Quote:
Originally Posted by mamafish9 View Post
1) only 30% of diagnosed celiac patients present with GI symptoms (diarrhea, bloating, weird poop, distended belly, etc)
2) migraine sufferers are 10% more likely to have celiac than the general population (not DD, but DH)
3) tooth enamel issues (definitely DD )
4) keratosis pilaris (there are several threads in celiac forums going "hey, yeah, those bumps did go away when I went GF!") - DH has a lot, DD a little (and it hasn't responded to the normal stuff, EFAs, cal/mag)
5) cradle cap - again, not on the official symptom lists, but a lot of kids with celiac seem to have (DD had it for a long time, and it still pops back up occasionally)
DS1 had GI symptoms badly to gluten when he was younger. He also has some tooth issues and he still at almost four has cradle cap. So far he tests negative according to my family doctor for celiac (although we do have confirmed cases in my family). I'm still worried about it because I know it can also develop after previously being negative. *sigh* So many symptoms it's hard to know what is tied to what.

Quote:
Originally Posted by chlobo View Post
If only she'd let me scratch it off. But you'd think I was trying to kill her the way she carries on. And don't get me started about when we try to brush her hair.
This is DS1 to a tee!!! He chose to get his hair cut for the first time this month and both DP and I were so grateful for the reduction in hair brushing battles.

Quote:
Originally Posted by mamafish9 View Post
Hmm. I was just about to make DH go out for tTG blood test for celiac (the full celiac panel does more than that, but this one is cheap, and 90% accurate on it's own). Then I found this http://celiachometest.com/, it's a site in Canada that offers a celiac home test (it's basically the pregnancy test version of a tTG blood test, using a finger prick, results in 10 minutes at home. Looks like it's basically the same 90% accurate in predicting if you have celiac). You can get one shipped to the US (for personal use, they're still waiting for FDA approval), according to a blog I read. I think I'll be having my brother go shopping for me (looks like you can buy it at several Canadian drugstores).
I'm in Canada and have never seen this before. It's cheaper than the blood test for tTG at our lab ordered through our family doctor (unless it's ordered through a pediatric GI doctor we've had to pay for it out of pocket for the kids because OHIP doesn't see it as necessary). This is good to know.
post #863 of 873
Quote:
Originally Posted by triscuitsmom View Post
I
Where does one get xylitol spray (and would it work with a 1 year old?) And where does one get hydroxy B12?

You can get xylitol nasal spray at most drug stores, definitely online too. It would work for a one year old, but my guy hates any nose sprays, so it's a matter of getting it in!! Yasko's site has teh best hydroxy B12 options I've found - these drops are easy to administer and very effective - http://www.holisticheal.com/suppleme...ega-drops.html

DS1 had GI symptoms badly to gluten when he was younger. He also has some tooth issues and he still at almost four has cradle cap. So far he tests negative according to my family doctor for celiac (although we do have confirmed cases in my family). I'm still worried about it because I know it can also develop after previously being negative. *sigh* So many symptoms it's hard to know what is tied to what.

There are some genes you can test for - with a family history and if he had the genes, you might just keep him off gluten. Also, he can be plenty gluten intolerant without being celiac. His reactions may have changed over time? Is he eating gluten now?

I'm in Canada and have never seen this before. It's cheaper than the blood test for tTG at our lab ordered through our family doctor (unless it's ordered through a pediatric GI doctor we've had to pay for it out of pocket for the kids because OHIP doesn't see it as necessary). This is good to know.
[COLOR="rgb(139, 0, 0)"]Yeah, I sent my brother off to the drugstore to find them . It's very handy![/COLOR]
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post #864 of 873
I swear I quoted posts, and they're gone now.

This is the website for who we're seeing. Keeping my fingers crossed that we have as good of results as the people on his testimonials! And that it doesn't take 10 visits to clear each food or something (he said he's never had that happen though- it's almost always a one-shot deal.)

Yay Tanya! You're in my neck of the woods now! I forgot to tell you (and I'm too lazy to type up an email, so I'm just going to put it here ) that I have a membership to the zoo and can get people in half-price, so if that's one of the tourist destinations you guys wanted to hit, let me know! (They are changing the memberships to only allow one 1/2-price guest per adult, but I still have the old membership so I should be able to take 5 guests in for 1/2 price. I'm pretty sure.)
post #865 of 873
CS, good to hear. We don't really aim for a lot of tourist things so much as visit with people we want to see at whatever venue seems appropriate, and I know the kids would enjoy the zoo, so that sounds good. I should email, or instead just go to bed. My parents keep very, very early hours. I'm the only one up right now.

We did the zoo 2 years ago--I forgot what happened, I think I ended up carrying both kids (2yo DS, 4yo DD) out--overtired, sick? Hard to know, maybe I only carried 4yo DD and had 2yo DS hold my hand. This time will go much smoother, I'm sure.
post #866 of 873
Well, we just bought DD a big red wagon, so 2 kids (maybe all 3 if they squeeze!) can get pulled around if they get too tired. Although after our last 4-hour zoo trip- I was the one who needed the ride.
post #867 of 873
Speaking of overtired... Dd is officially the current world champion at whining. Wow. Her take on this current reaction is to meltdown at the park when she got off the swing and another kid got on. And now she's staying up late with dh, watching videos. Poor dh was up super early with ds, too. Lucky me, I've discovered (a tiny bit too late) how to completely kill the reaction in me, and am actually sleeping
post #868 of 873
got out.
ate thai food.
watched comedy.
had fun.
post #869 of 873
And as of this minute, I am waiting for liquid B6 (for DS2) and pancreas supps to ship in.
post #870 of 873
Hello Everyone

Have had some busy, intense days. Went to an ocean beach by myself and the boys on Tuesday. I think that and an entire probiotic for myself was too much for me, on top of DS2 being a total crank because of his probiotic. I was so miserably and emotionally tired on Tues night that I had to be cuddled to sleep. Still recovering today. Gave him the same amount of probiotics this morning, but doubled my custom mix of gaba, 5-htp and magnesium glycinate and he has been his regular charming self. (Those are all difficult pills to get into him so it was irregular and now it is easy - thanks deb). So relieved. I think I will give more probiotics later today.

We are going camping this weekend, so I have a lot of prep to do. We will be by the ocean beach so we are all excited about that and hope to see some fireworks.

Taking the pancreas glandulars and seeing a difference with how my blood sugars feels. very cool.

Energy tested magnesium malate for DS2 and finally has a yes. I think I needed to get more supports into place before he could take them. Might start them late next week, but have other things that are more important right now.

CS - so hopeful for you with the NAET.
post #871 of 873
Calling JR, Kathy and anyone else who has a handle on gf/cf/ EGG free baking!!!

I found these brownies and want them today!!! I'm heading to the store(s) to get groceries and what I need for these, but can you help me figure out how to make them EGG free??? Pretty please?

http://www.elanaspantry.com/brownies/

THX!

I was telling dh that a pregnant woman should be able to eat what she craves, otherwise she ends up in Frustration; and a pregnant woman should never be in Frustration--only Satisfaction, lol.
post #872 of 873
Quote:
Originally Posted by dannic View Post
Calling JR, Kathy and anyone else who has a handle on gf/cf/ EGG free baking!!!

I found these brownies and want them today!!! I'm heading to the store(s) to get groceries and what I need for these, but can you help me figure out how to make them EGG free??? Pretty please?

http://www.elanaspantry.com/brownies/

THX!

I was telling dh that a pregnant woman should be able to eat what she craves, otherwise she ends up in Frustration; and a pregnant woman should never be in Frustration--only Satisfaction, lol.
Cannot tell you. I'm *assuming* thickening and binding, but I can't say for certain since I work with flours, never nuts.
You could try the recipe I have on my site for brownies.
post #873 of 873
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