Originally Posted by tanyalynn
So this would be at least part of why there's a relationship between MTHFR gene variants, folate status, and cancer?
I'm going to, very temporarily, put my fingers in my ears re: virus and bacteria issues, because although my HCP brought it up recently as a possibility, I need time to think and then figure out what to do about it, if that's part of what's slowing us down. But first, the pancreas supps I think. (and dang, this is confusing even in overall healthy kids!)
I believe the low level detox we hit every time we add a new supp or up the dosage is his body tackling viral/bacterial stuff. We see 2-3 days of low fever, under the weather stuff, occasional rashes, then 2-3 days of metals clearly flowing (viruses and bacteria sequester metals) - chewing, licking, stimmy, a little wild, but feeling better, then we see improvements (language, focus, eye contact). Then we add another supp, rinse, repeat. We just added the last increase, now I'll hold steady for 3 weeks and redo the key pee tests. It's been fascinating to watch, but so long as you add the supps slowly, and keep some basic metals escorts in place (we've used zeolite, but you could use modifilan), it's been fine.
Yasko has some stuff she does for persistent/tough viral & bacterial issues, but in general, you get methylation working well first, and that takes care of most of it for a lot of people.
Originally Posted by whoMe
back to the wave of mdc mamas starting pancreatic support. Are there any signs or indications that pancreatin would *not* be a good place to start? And while we're there, I'm currently in increasing dosage mode. How do you know when to stop? How do you know when it's okay to back off? How do you know when you've backed off too far?
As far as I know, no. Pancreatic support is in Yasko's step 1 supplements - so recommended for everyone, and as initial things to introduce. She deals with lots of fragile ASD kids, kids with mito issues, adults with CFS or fibromyalgia, etc. She always suggests to start "low and slow" in dosage, but I don't think I've read of anyone who had big issues getting basic pancreatic supports in place. For dosage, I know several people doing 2 of her digestive enzymes with every meal, I don't know of any going higher than that. Can you figure out what dose of yours might be equivalent to that? On her protocol, you do testing to look at key numbers, and adjust supps based on that - so if she saw markers for deteriorating digestion (e.g. amino acids getting lower, or fat malabsorption markers), that would be a sign you'd backed off too far. Without testing, I think you go mainly on symptoms... e.g. for you, if you back off too much, maybe your blood sugar levels get more wonky again, or whatever.
It's fun to have company on all this