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not allergy related, but you all know so much...

post #1 of 4
Thread Starter 
My dd has a gross motor delay. She has always been this way since she was an infant - even with PT. She is now 6. She gets PT at school 3 days a week for 1/2 hour. Her PT says she does not see anyone more than she sees Gabriella, and that there is only 1 other kid she even sees at the same frequency.

No matter how much PT she gets, she is never closing the gap between what is normal and where she scores. It is getting frustrating for me and I worry that the older she gets the more it may become an issue. She doesn't seem bothered by it at this point.

Previous PT (in preschool PT) wondered if it as neurological, and we did have a neurological consult. The neurologist said she did not see anything concerning, all kids develop at their own rates, etc.

Is it possible that she could have a chronic nutritional deficiency that has affected her all these years that may be causing gross motor delays? She had pumped breast milk for about 6 weeks, and then formula after that. I think we started baby food around 6 months or so (jarred baby food - I know better now!). She had reflux as a young infant and was on Zantac which we discontinued around 6 months too (I think). She had some issues when she was first born and was in the NICU for 3 weeks while the idiots wouldn't run the test I asked for when she was first born, and instead ran every other test under the sun. She was hypo-calcemea (however it is spelled - low calcium) at birth and had a calcium IV given to her. She had an ASD that closed before she was 3, and a PDA (I think that is the acronym) that closed before she was 8 weeks old. For both heart defects, they were closed by the first time they did a follow up. She also had hydronephrosis (urine backs up into the kidneys) which was resolved by time she was 1 (was not expected to resolve until she was older). My children are born with transient congenital hypothroidism (which is was I asked to be tested immediately and was ignored until she was 10 days old and hardly woke or cried for anything). Transient means that she is not actually hypothyroid. My antibodies blocked her thyroid from working in utero. Both my kids were born with TSH levels around or above 900. She is not hypothyroid now, although her TSH runs a little high. The doctor says she may have a higher set point than normal due to her history. Free T4 numbers are fine. She has no thyroid antibodies of her own. I have Hashimoto's (does not cross placenta) and thyroid blocking antibody (does cross placenta). Apparently the situation is fairly rare. DD2 experience no symptoms at birth, and did not need the NICU (she was a home birth). We tested her out patient almost a week after birth, and her TSH was even higher than dd1's was when it was first tested. When dd2 is 3 (is Sept.) we will also challenge her thyroid by reducing, then discontinuing the Synthroid we are expecting her to be fine too.

She is still a bed wetter as well, and has some sensitivity issues that she has mostly overcome (except she is still a super taster and very picky eater).

She is also still prone to wild temper tantrums and I though most kids outgrew that by 6 (but I could be wrong!).
post #2 of 4
Have you checked for intolerances? Bedwetting, tantrums, ect can be caused by them. My dd's speech was affected by her intolerances to gluten and dairy. She began stuttering and quit singing. Both of which cleared after going off both foods, and addressing nutritional deficiencies caused by her intolerances. With the hypothyroidism (scary story, mama!), gluten could be affecting her as many people have issues with gluten also have thyroid problems...she could also have trouble clearing toxins...
I am by far not the knowledgeable mama on the block, but these were what seemed like ideas to follow...
post #3 of 4
Thread Starter 
Quote:
Originally Posted by dannic View Post
Have you checked for intolerances? Bedwetting, tantrums, ect can be caused by them. My dd's speech was affected by her intolerances to gluten and dairy. She began stuttering and quit singing. Both of which cleared after going off both foods, and addressing nutritional deficiencies caused by her intolerances. With the hypothyroidism (scary story, mama!), gluten could be affecting her as many people have issues with gluten also have thyroid problems...she could also have trouble clearing toxins...
I am by far not the knowledgeable mama on the block, but these were what seemed like ideas to follow...

I would love to eliminate dairy from her diet to test. With the reflux she had as an infant, it wouldn't be so far fetched that she had dairy issues. She love ice cream like you would not believe and wants it every day. I don't have the heart to take it away from her. I have tried non-dairy ice creams hoping she would find one she liked so we could use that instead. After big $$$$ we finally found one. Just to discover that the only store that sold it here no longer carries it. It is impossible to get. And even if I found it again, I can't stop her from getting dairy at the cafeteria at school.

I also feel very badly for her because she has lost so many foods that she used to eat that we no longer buy or keep in the house because of dd2's allergies. I hate to take more away from her.

I am tempted to do an Alcat test or an IGg test, but I'm not sure the insurance would cover it. And also not 100% sold on their accuracy. I hate to spend that much money on something that would not conclusively tell us something.
post #4 of 4
Craving a food is often a sign of the intolerance. My kids love the Purely Decadent and/or Coconut Bliss ice creams made from coconut milk. I've also made my own coconut ice cream. And if you had a note, wouldn't they keep milk from her at school? I don't have a doctor's note, but I've said that my DS can't have x, y, and z, and they won't give it to him (they clear each and every snack at every party, etc.). For us, the ALCAT test was not covered by insurance, and it was very accurate (1 false negative for each of my kids).
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