Just wondering if there happens to be anyone else with a child with either of these. My DS was born two weeks ago tomorrow with full trisomy 13. He had a very bad day the day I went home from the hospital, and we thought we were going to lose him that day, but he has done much better since then. He is still in the NICU, but they are slowly weaning him off of his meds and the ventilator in the hopes that we might be able to bring him home. My husband's aunt and uncle had a baby with trisomy 18 who lived for close to a month, and we've found it helpful to have them to talk to.
Trisomy 13 or 18?
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: My DD has a partial trisomy 3 and 18q deletion and I know there are support groups out there for T13 like the one posted above, maybe you'll find one of them helpful. Good luck!
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