Summary as of Nov 2010
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Ds is now almost 17mos.
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Symptoms:
Eczema- cheeks, diaper area, behind elbows.
mucousy/watery poop
headbanging (seems to correlate timewise with the poop)
frequent urination
poor sleep (though there are other factors that affect sleep too)
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I can see a (possibly loose) pattern with the poop, headbanging, and poor sleep. I don't see any pattern at all with the eczema and the other symptoms.Â
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Food sensitivities: the only known one is sweet potato (which was positive on an IgG panel, which was also positive for pinto beans and kidney beans- but the naturopath said all her clients showed positive for kidney beans).
Highly suspect: egg, disodium EDTA (in food and body products), potato
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Other than that, we've suspected everything but black beans, it seems.
Our current "might be a problem" list has a lot of foods high in free glutamates, so that may or may not be a coincidence.
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We did AK a bunch of months ago, and it said he's sensitive to: wheat (not other gluten), milk (not cheese), turkey, onion, mushrooms, chocolate, peanuts, banana, lemon juice with added sulfites (that I took in), shea butter (I do think he reacted to either this or cocoa butter. He showed not sensitive to cocoa butter). It said he was not sensitive to sweet potato (I took it in in a plastic container).
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ED's-
No wheat for one solid month, plus other bouts of no wheat - end of Jan to Feb 20 (spelt flour), then Feb 22 to Mar 22
No dairy 1.5mos - end of Jan to March 10
No peanuts 3 mos plus - end of Jan til after April
No eggs 2 weeks, plus other bouts of no eggs. No major egg end of Jan to Feb 25
No major soy 3ish weeks - (anything but soy lecithin, and soy in vitamins) end of Jan - Feb 21, then Feb 23 - Mar 15
Low sals over 1 month - Feb 23- Mar 29, Low to moderate sals 1.5ish mos - Feb 23 to Apr 9
Plus other various eliminations.
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Eczema started about 5-6ish mos old. At first, it was on his lower torso, in his diaper area. We ED'ed, doscovered sweet potato was a trigger, but never found any other connection in a bunch of months. In preparation for an IgG test, we ate 96 different foods in a week, and his rash got better. We stopped ED'ing, and his rash was gone completely about a month later. That was summer time 2010.
Starting a few months ago (maybe Sept-ish), I noticed his poop was mushy and FULL of undigested food. Some of his poops were mostly food, with a little bit of mucous and even less "poop."
Mamafish mentioned that it might be poor digestion, so I started focusing on taking vitamins and supps- prenatal, calcium, mag, D, b12, b combo (I rotate the b's), mo, probiotics, clo (sometimes). Ds gets D-drops, probiotics, clo, and a teeny piece of my b12 every once in a while. After doing this for a month and a half, with a 1 week break, his poop is getting better- it's solid (sometimes semi-solid), and has what seems like a reasonable amount of undigested food most of the time.
But now the eczema on his bum cheeks and elbows is crazy bad. sigh.
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So as not to clutter up the ED support thread with our details and questions, I'll start this thread. (thanks for the idea, Kathy!)
About us (I'll try to keep this as brief as possible. Brevity is not my forte, though):
Jonah is 11 months old, and I've been on an ED since January (4+ mos ago). He had eczema (dr. dx'ed) on his cheeks for a couple months before that, but we didn't think that much of it.
His main/first symptom was a rash in his diaper area (dx'ed as eczema) in maybe November? It wasn't bad, and it came and went. It wasn't until a couple months later that it got bad, and wasn't going away. It's in between his penis and belly button, from hip to hip. His doc said there was no way it was related to anything I was eating. At it's worst, it looks like a bad sunburn with welts, and spreads to his scrotum (poor guy 
) But now (with some offenders out?), it's usually just rashy looking, and doesn't seem to bother him much.
He has a rash that developed near his belly button in March, that didn't seem to correspond with his main rash. It stayed pretty consistent while his main rash changed a lot. We thought it was ringworm, and treated it with antifungals. It was almost gone when we stopped antifungals (the rx said 7 days only). I/we ate something that triggered his main rash and his bellybutton rash got really red. When I went back to black beans and quinoa, it lightened considerably within a day, to better than it was even after the antifungals.
The eczema on his cheeks seems to correspond with his diaper area rash. His sleep and frequent urination seem unrelated to the rash.
Other known or likely symptoms:
-frequent urination. Usually over 10 times a day. A few times, I've counted as many as 9 times over 5 hours in the morning.
-sleep problems. Sometimes awake for an hour long play session in the middle of the night. Sometimes seems very unsettled all night long, waking up to nurse every time I move. His sleep was pretty good prior to all this, especially considering he was under 6 mos old. On a good night, he goes 3ish hours between nursings, and can settle himself if he wakes slightly in between nursings.
Possible symptoms (I'll add to this as I think of things):
-Constantly putting stuff in his mouth. He tries to eat everything he sees- lint, dirt, sticks, you name it. He's eaten pieces off his board books.
-excess earwax sometimes
-headbanging/shaking his head a lot, but only during the week of the sals trial
He is very likely sensitive to:
Sweet potato (possibly because of the salicylates, but maybe to the whole food), Bragg's soy sauce (maybe), salicylates, banana OR rice, cow's milk- either alone, or in combo with banana (ie calcium depleting mag), something in storebought bread (wheat, dairy, soy, preservatives)
Safe foods so far:
Black beans, quinoa, millet, canola oil, sea salt, sugar, corn free baking powder, soy lecithin (I make quinoa millet waffles, and use spray oil on the waffle iron), tomato, beef, mustard, ketchup.
Foods that cause a very minor rash:
Kale
pear (either minor rash or safe)
There is definitely more than one other food that causes his rash. There is no pattern that I can see, even looking at food chemicals.
Supplements:
I'm taking a good prenatal vitamin, mag, molybdenum, and recently started taking b12. I'll start taking CLO, a b complex, and probiotics once I can test them.
I'm giving him mag and mo. I'll give him a probiotic once I can test it.
Magnesium seems to be helping his sleep.
ummm...what else...
I don't have any apparent allergies other than mango. I reacted to it years ago, but it came up negative on the IgE test. It showed a mild allergy to dust though.
The only food reactions I have are gas and bloating, and it's not caused by black beans (though other beans do it). I think it could be sugar related.
I started having wierd tingling sensations in my legs recently. B12 seemed to help, but I stopped it after a few days to do the TED for ds. I started taking it again 2 days ago, and the tingling is still there.
I also have a high need for protein. If I go too long without eating, I get shaky and grumpy. It seems way more related to protein consumption than sugar/carbs. I forgot about this because it hasn't happened for a while.
Thanks for reading if you got this far! Any opinions and thoughts will be appreciated!
Edited by DevaMajka - 12/10/10 at 6:30pm
). If I go too long without eating, I get shaky and grumpy. It seems way more related to protein consumption than sugar/carbs. I forgot about this because it hasn't happened for a while, interestingly enough.
Not that I want it to be wheat, but omg, it would be so exciting to actually KNOW something!
......
s
