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I can't stand the pain anymore - Page 3

post #41 of 58
Thread Starter 
Quote:
Originally Posted by Panserbjørne View Post
exercise in the absence of appropriate treatment is not likely to bring relief, I will grant you that. I understand on the sugar, but unfortunately it really is an obstacle to cure. Think of it this way: sugar is feeding the borrelia thus exacerbating lyme. I don't think you'll find any information anywhere to refute that. So as bad as this is, as debilitating as it is, as disruptive as this is, isn't it worth it to go through the minor discomfort of changing your diet? IF it's not, it's not, and that's fine. But, you have stated that money is a significant issue and this is a free solution that at worst will help significantly with the blood sugar swings, and at best can bring significant relief from the pain. Grains are included because they do turn to sugar.

I know it can be hard to eliminate things-so I tell people not to. Instead of eliminating, discover a new way of eating. Find new, inspiring recipes that will facilitate healing. IF you follow a primal style of eating, grains and sugar aren't included. So you can sally forth on an entirely new path. The information is free (it's all online-there is a book and an accompanying recipe book but there's so much for free that you don't need it.) You need to buy food anyway-it's just a different kind of food. It's way cheaper than allergy testing, doesn't require a practitioner of any kind and is very common knowledge for any kind of healing. Sugar is not our friend. The sweets on the brain signify an imbalance. If you have very little in the way of resources that's an easy place to start.

I'd strongly consider it, but that's just me.
My mom just went sugar free aside from what naturally occurs in foods and has been nudging me to do the same. I've heard great things about it, here on MDC and otherwise as well. Are some raw foods out of the question with this sugar free bit? If I had to give up fruit also I'd likely go insane. I'm a compulsive overeater who prefers sugar to any other indulgence. Getting through the eating compulsions and cravings is a big stumbling point for me and always has been. I've even considered OEA!
post #42 of 58
Thread Starter 
Quote:
Originally Posted by KimPM View Post

Too bad you're not near Maryland, or I could "feel out" some foods for you. (Recently I've been able to tell which foods, just by feel, that someone is having a problem with.) Let me know if you ever come out this way.
Not likely. I've only left the pacific northwest twice and that was just a childhood trip to California and one to Arizona.

No photo readings?
post #43 of 58
Quote:
Originally Posted by FondestBianca View Post
Not likely. I've only left the pacific northwest twice and that was just a childhood trip to California and one to Arizona.

No photo readings?
No, unfortunately it's not intuitive. It's just being super-sensitive and feeling a physical property of the food, and you holding it, to feel how you react. It requires your physical presence.

I did have a thought, though. Since you say you are so addicted to sugar, I wonder if you are sensitive to sugar, or what it's made from (either beets or cane). Often we are addicted to the very foods that we are sensitive to. This would be in addition to and separate from the issue of the sugar fueling the lyme infection. You might try a short trial of going completely sugar-free (no substitutes either, unless you want to try honey, stevia, or agave). But at this point, I'd be hesitant to add in something new until you figure out your worst offender.

Oh, and finding your offending foods is just to help reduce the pain...treating the lyme is the only way to fix it long-term.
post #44 of 58
I have chronic Lyme and have eaten paleo/primal for 3.5 years with great results. I do have flares on grains, dairy, tomatoes, and even too many sweets things like fruits. Meat,eggs,vegs, and fats is good for me. Also, stress is a biggie. I am having a rare flare up the past few days from stress and drastically cutting down my 28 month olds nursing..I think the prolactin was helping my pain the last few years as well. A flare for me is pain in my joints, anxoius thoughts, blah feelng, low energy, can't sleep well, stiffness.

I aslo suggest taking a lot of vitamin D like JaneS said.

I took abx for 6 months without improvement--the diet, addressing nutrient defiencies, and overall wellness stuff has helped the most. I don't do anything specifically for Lyme at this point I just try and keep my immune system strong. I am at a loss of what else to do after all these years.

PanserbjørneWhat I can take for a flare? The pain/stiffness and anxiety bother me the most.
post #45 of 58
post #46 of 58
Quote:
Originally Posted by newcastlemama View Post
I took abx for 6 months without improvement--the diet, addressing nutrient defiencies, and overall wellness stuff has helped the most. I don't do anything specifically for Lyme at this point I just try and keep my immune system strong. I am at a loss of what else to do after all these years.

PanserbjørneWhat I can take for a flare? The pain/stiffness and anxiety bother me the most.
I'd start with cell salts. Calc fluor for the stiffness that accompanies lyme and then a blend of the biochemic phosphates for the anxiety/fatigue/pain. They are incredibly effective, quite inexpensive and very easy to use. I've really not known people to NOT get results. It may not cover everything for you, but I can almost guarantee *some* relief.

I also use homeopathy as you know. I find that a remedy that covers the totality not only addresses the symptoms that you have, what the inherent weaknesses that created susceptibility. I used to clinically manage the symptoms and got good results. It was good, but not good enough for someone suffering on a regular basis. So I looked deeper, determined the way the person in question managed stress and used that in conjunction with the presenting symptoms to find a way to support them-sort of meeting them on their own turf if you will. You can't walk into my world and have me manage it. I need to go into yours and play to your strengths.

Beyond that I also have very good success with teasel. I find that results are deeper and longer lasting with the preparations from the blossoms rather than the roots. It does a good job for pain and anxiety.
post #47 of 58
Panserbjørne--Thanks so much for taking the time to help! I will look into those things

I actually took a hot shower last night and did some stress relieving things and woke up much better today.

OP-Another thing that helped me when I had lots of pain was a spa. I know they can have chemicals and stuff but it really helped to go in the morning and evening.
post #48 of 58
Maybe a sauna would be a chemical free alternative that helps sweat out toxins instead of putting them in? Hot tubs usually have bromides, worse than chlorine for your thyroid.
post #49 of 58
Quote:
Originally Posted by JaneS View Post
Maybe a sauna would be a chemical free alternative that helps sweat out toxins instead of putting them in? Hot tubs usually have bromides, worse than chlorine for your thyroid.
Good idea
post #50 of 58
I've heard good things about infared saunas but I have no idea where you might find one.
post #51 of 58
Quote:
Originally Posted by KimPM View Post
No, unfortunately it's not intuitive. It's just being super-sensitive and feeling a physical property of the food, and you holding it, to feel how you react. It requires your physical presence.

I did have a thought, though. Since you say you are so addicted to sugar, I wonder if you are sensitive to sugar, or what it's made from (either beets or cane). Often we are addicted to the very foods that we are sensitive to. This would be in addition to and separate from the issue of the sugar fueling the lyme infection. You might try a short trial of going completely sugar-free (no substitutes either, unless you want to try honey, stevia, or agave). But at this point, I'd be hesitant to add in something new until you figure out your worst offender.

Oh, and finding your offending foods is just to help reduce the pain...treating the lyme is the only way to fix it long-term.


This is so true. My ND told me that the food I loved the most and couldn't imagine giving up was probably the one I was allergic to. Yep. Milk came back a 5++ on my IgG allergy test. I've been completely dairy free for 2 years.
post #52 of 58
Quote:
Originally Posted by FondestBianca View Post
I'm now taking about 3000IU per day and do a higher dose about once a week.
nak...

I wish I could offer more...but seems like there are many giving you great, well-informed advice. Haven't read more posts because I'm logging off, but just wanted to say that you should be supplementing much more vitamin D. I was also low (31) and my doc put me on a prescription (D3 not D2) 50,000IU/once a week for 8 weeks, plus the regular 5,000IU/day I had begun taking prior to the blood test. After the 8 weeks I continued the 5,000IU/day but began slacking off. Just had my blood re-tested 4 mths out from original test and I'm only up to 36.

I have resumed supplementing in addition to making sure to get sun every day. On days I get good sun exposure, I supplement 5,000IU. On days that I don't, I supplement between 9,000-10,000IU. It is very hard to overdose. Just make sure it's D3. The rule of thumb is 1,000IU per 25 lbs body weight--but that's just a maintenance dose. If you are low, which you are, you need to supplement more.

Healing vibes for you!

ETA: Just skimmed Jane S.'s post...pretty similar. I also highly recommend the site she posted. Also http://vitamindfoundation.org --out of Canada. Great video worth watching by Dr. Vieth.
post #53 of 58
extremely low D and difficulty getting it higher is a common Lyme thing I have just learned. I take 4000 iu daily to keep my level good.

So many of your symptoms sound like me. I just found out I have Lyme and am trying to sort through everything to figure out how to treat it. I have had some amazing help from homeopathy but so far no help with the Lyme symptoms (outside of bells palsy).

I have been following GAPS since November and started feeling much, much worse in Feb. No idea why. I have played with my food a lot taking foods out, putting foods back and no changes, just progressively feeling worse and worse. I have been grain free for about a year and rarely have anything sweet. 1-2 tsp of honey daily in my morning tea is about it. Even fruit is very restricted. Not even daily.

I just wanted you to know you aren't alone in this.
post #54 of 58

possible allergens

You mentioned that you have tried OTC stuff for pain relief. I acutally have had two anaphylactic reactions that landed me in the ER and intibated. The first one was caused by Aspirin (later confirmed by the allergist...which I wasn't even aware could happen). THey other time it was caused by shellfish. If you haven't been checked for shellfish, please do, b/c oyster poweder is in many foods and sauces you would never even think to look at! Also, most glucosamine supplemenets are made from shellfish. It's definitely worth a try.

As for the sugar addiction. I too, have horrible reactions to artificial sweeteners. I have learned to love Stevia instead of sugar. Why not give that a try?

Lastly, (and this in no way is judgement, I'm just honestly confused) I get that you don't want to take the medical marijuana, and I have never done it myself and never intend to. However, you said you didn't want to put that toxin in your body. I don't get how that's any different from taking a prescription pain killer? Or any medication for that matter.

I hope you find some relief! Good luck in whatever you decide
post #55 of 58
I was once in the hospital and had not had any food, only medication. I had what they thought was an allergic/anaphylactic reaction. I went to have the tests done, to see what I had reacted too, and it was neither medication.

They deemed it was angioedema - very similar symptoms to an anaphylactic reaction. Just something to consider.

Good luck with your pain, my heart goes out to you.
post #56 of 58
Sorry for what you're going through. I'm also battling Lyme, so I know what you're going through. I'm seeing an awesome doctor here in eastern Washington. Go to www.dynamichealthcda.com. Hopes this helps.
post #57 of 58

I know this thread was for FondestBianca, but thank you everyone, it helped me a lot. I'm in eastern washington too, strangely enough- so thank you Chanceman for info that there is a doctor here, but the link didn't work. I thought the closest LLMDs were in portland and Seattle.

post #58 of 58

I wish I could go back through and tag everyone in this thread to respond.

 

FondestBianca was my old account. I've been away from Mothering for a couple years. I started fresh here this week with a new account. I went through some major life changes and the most difficult phase of my life since leaving Mothering. I'm getting back to a good place and things are settling down so I wandering back here. I did a search for "lyme" in the health forums and was surprised to see my thread with recent postings. I'm sorry to those of you who I didn't get back to as I went MIA. Thank you all for contributing and sharing. I need to go back through this again when I'm in the right frame of mind. 

 

I've been quite busy with life in the past year and a half... to say the very least! Biggest rollercoaster ever! I hate to say it but I've mostly ignored my health problems in that time. While some things are always an issue (my biggest problem now being my horrendous sleep issues... no doubt lyme related as well as hormonal problems) I've again stuffed most of it under the rug. I was doing fairly well as far as treating my body well last spring and into summer but since starting to work full time (after being a SAHM for 5+ years) I've been neglecting my body. HOWEVER, the job I ended up landing is very pyhsical. I was concerned... much less has put me on bedrest in the past. It was tough at first and I continue to have my trials. My body isn't what it used to be as far as durability goes. But, darned if I don't say that this job has kicked me into much better shape! It may hurt, I may get injured or have to baby certain things on different occasions but, I've toughened up a lot. I handle the pains of lyme much better now that the routine of my job and activity at work has whipped me back into better condition. Some things have gotten worse, I must admit but overall I'm doing better if at least just because I feel better about myself in general and on my way to a better life for me. 

 

I'm still horribly addicted to sugar, have a terrible sleep schedule, get cranky, get hurt, have anxiety, don't eat all that healthy, and feel pain every single day BUT changing my life path and situation has been a big help with my lyme.

 

Thanks again everyone. :)

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