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Input--overwhelmed--help? Poll ?'s

Poll Results: What would you do?

 
  • 11% (1)
    Treat sick child. Let anyone else keep h. pylori.
  • 22% (2)
    Try to lower/eliminate symptoms in sick child. Continue carrying bug.
  • 22% (2)
    Treat child and parents known infected now. Test other child and treat month later.
  • 11% (1)
    Test possibly infected child. Wait to treat anyone for six weeks for results.
  • 33% (3)
    Other--what?
9 Total Votes  
post #1 of 5
Thread Starter 
I would love some input. I think I'm too wrapped up to see anything clearly.

1. My son is six. He just (finally) had a successful eradication of some incredibly nasty resistant to treatment parasites and bacterial infections. Gone! But this has, in all the "horrible junk" I've gone through with my kids been the most emotionally, relationally, and spiritually exhausting part of it all. I feel like I've fought a war in so many areas.

2. He came back with a clean sample (finally) except he had heavy h.pylori bacterial infection. We believe it was probably there all along but held "in check" by all the other nasty stuff. He's vomiting, complaining of stomach pain, eating poorly--symptomatic. So something has to be done clearly. The what is the issue according to the doctor.

3. We know from testing us in the course of the parasite wreck with him that my husband and I have h. pylori as well. My other son was clean when we tested last year.

4. Other son has, in the last month, been complaining a lot of reflux and other gastro stuff consistent with h. pylori. This is all new for him and he's six. Thought: he may be infected, likely by his brother vomiting everywhere all the time.



The treatment for h. pylori would be 2 antibiotics at the same time (I think amoxicillan and clindomycin or something like that) and a PPI for two weeks. Standard treatment. No effective natural options I can find and I did a lot of research (though I did find things to add to make it more effective). Tough treatment on the body. 70-80% chance of eradicating the h. pylori but I think I can up that percent with some things I found research studies about last night.

Decision we have to make (this is where I'm just lost):

Doctor said we could give Andrew that (hope to get rid of it) treatment and let the rest of us carry on without treatment.

Or we could first try to treat Andrew symptomatically with things like mastic gum. This wouldn't kill it but might make it manageable so he's not feeling sick/asymptomatic. The idea is live peaceably with h. pylori--trying to keep it under control basically so we/he feels fine. This seems to be the doctor's preference. He kept saying that the treatment would be rough for no sure outcome and "we didn't even know about h. pylori until the 80's and 50% of adults have it".

I could ask for treatment for hubby and I and Andrew. The doctor would do it. We could retest my other son to see if he's carrying it now. That testing would take about 6 weeks from now.

My issue--do I treat one (or three) members of a family when all four might be infected? Would infected child reinfect the treated members? Do I wait to test the other child? We would try while waiting to help Andrew feel better. Failing that he will get the treatment no matter the time frame of other results.

I am feeling depressed honestly and overwhelmed and have no idea what to do. I can't think clearly about this. I so wanted to be done.

Vote please. Or something--any input--I'm sorry this has been long.

1. aggressively treat sick kid. let the rest of us be carriers.
2. try to cause sick kid to become asymptomatic. Let all of us hopefully be manageable or nor symptoms carriers.
3. treat three of us who are known. test other child. treat if he has it (or not/depending on whatever).
4. test other child ASAP (six weeks or more out from results if we do this as soon as we can). wait on results for him. treat anyone infected.
post #2 of 5
Oh boy, that's a tough one. My biggest question here would be whether to try to eradicate it in him or to just treat the symptoms. I wonder if, with all the other treatments (I assume) he's been through recently (including abx for the bacterial infections you mentioned?), it might be better to just treat the symptoms for now, let him regain his health a bit more, and then treat the h.pylori. In the meantime have your other son tested, and plan to treat all carriers at the same time (when ds1 is healed enough to handle another bunch of abx).
post #3 of 5
Personally if it were my family, I'd test everyone now and treat everyone now, if positive. Then I'd get on some good probiotics.

And why would your results take six weeks? That's crazy. I'd go to another doctor for testing. (I got my h.pylori test results back in a couple of days.)
post #4 of 5
Wow. As someone who has a benign parasite (I forget what it's called) and a pathological parasite (giardia) I know how crappy it is to have a parasite. I didn't treat giardia for a long time as I was pregnant or breastfeeding so now I just have it but I'm afraid to pass it to my kids. Sigh.

I guess what I would do is get everyone tested, and treat the symptoms and see how that goes. Oh, that's what Kate wrote. Heh. Good plan, Kate!
post #5 of 5
My mom had h. pylori and it was miserably wretched.

Personally - and this is coming from someone who doesn't give antibiotics - ever - without a confirmed unmanageable bacterial infection - but I would treat the entire family.

You know one child has it. You know you and your husband have it. I'd say it's nearly impossible that your other son doesn't have it as well and he's starting to show symptoms.

I'd treat the whole family. Knock it out. Get rid of it and work on building up a healthy gut and immune system.

I think your family has been through enough. Get this bug gone and get back on the road to health.

Many, many prayers and hugs coming your way.
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