DH's contractures in his lower extremities were severe. He has had his ankles and knees fused, and he had a surgery to correct out turned feet. He also had to have his hip muscles clipped on multiple occasions. He walked with crutches until puberty, when his genetics caught up with him-he comes from a line of broad chested top heavy bulky men, and those genetics combined with his AMC made it dangerous for him to continue with the crutches and braces, he was damaging his spine.
His wrists have also been fused, and his radial heads don't grow in socket.
(I've been told the fusing isn't something typically done in AMC patients now.)
So he does require the use of a wheelchair. However he is extremely independent. There really isn't anything he can't do because of his AMC, except walk. When we first started dating, he used to walk up and down stairs on his hands to impress me.
Now days, he's 30, and his starting to have secondary issues with his spine, partially due to the damage done when he was younger, partially due to how active he is despite his condition (think riding a hard tail motorcycle, going down flights of stairs in his chair, crazy stuff like that) and partially unrelated to his AMC or anything else.
As far as developmental delays, according to his mother he was right on track for everything, just in his own way-since he never could walk on his own, for example, he invented other ways of moving around.
Ask away-any questions you may have! I don't know a lot about the medical procedures he had has a child, and honestly I don't think much of it would apply today since orthopedics have come so far since he was born. Heck, OBGYN care has come along way-my MIL didn't know anything was wrong until he presented frank breech and the did an X-Ray!