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confidentiality with doulas/midwives- vent/question - Page 2

post #21 of 48
This is something that really bugs me, too. I don't even 'do' facebook, for various reasons but in part because of just the issues mentioned here: potential HIPPA violations as well as privacy concerns that are far greater for some clients than for others--and we don't always know for sure as well as we may think we do about that.

As a birth professional, over the years I've had some struggles w/confidentiality in just the ways the OP mentioned--saying what seem to be very general or oblique things about a client, meaning to conceal identities, only to find that the person I'm speaking to knows who I mean. It is a very small world! Even if you don't live in a small town, it's a small world. Remember that homebirthers/mws and even doulas/clients are a small population, often somewhat isolated because of that--we tend to connect with each other from all over. I know that I have stepped on or over the line a few times, quite unintentionally--fortunately with no ill results that I know of--and it made me really really wary of confidentiality.

Of course, such talk about 'work' seems only normal. Sure, 'Goin' Birthin' or 'Up all night with a family, going to bed now", these comments are so very general that they are innocent. If someone figures out 'who' from those kind of comments, then they are probably close enough to the situation that it's ok if they know.

Awhile back, I heard a tidbit from a BP elsewhere...that she had gone to her state's mws assoc. mtg, and one of the big items on the agenda was a discussion of using fb to ask for advice from other mws about a particular birth that was presently ongoing. I was fairly stunned that the question even needed to be asked....seemed WAY too close to HIPPA violation to me. I was glad to hear that those mws came to agree that they should not do this.

A couple years ago, I sought advice from a national mw forum about a postpartum situation that had gone south--not my client, but I had consulted w/mw and fam in person, was concerned and needed more input. I did all I could to mask the 'players', focussing on the bare essentials of the problem instead. But it blew up anyway into a major gossip fest all over the region/state--all because of 2 ppl on that list, one a mw and one an apprentice. The mw was not in our area, but knew another mw here and called her to get the skinny. The apprentice was local, and figured out the 'who'--spoke to the primary mw involved in that birth, who got mad at me for 'dissing her on a national forum'. In the end, and certainly not ONLY because of my post, the family was essentially harrassed about the whole thing (by their primary mw's friends and followers, who didn't like the family having a complaint about their beloved mw--no matter how justified). It also drove a wedge into the mw community here.

Just saying here that it IS a small world. The above situation is really NOT just about internet posting--even the primary mw involved agreed that my posts and the responses were not what she'd thought from hearing about it (I got permission to copy/paste to her, so she could see for herself, in hopes of sparing our relationship--she did agree that I hadn't dissed her, but in the end that didn't save our prof. relationship anyway). It was more about lack of boundaries among some of those who saw my posts--and poor boundaries among those who were told about it (or otherwise were told about the situation). I was quite surprised to eventually discover who the apprentice was, that had shared the info w/the primary mw--didn't know her well, but thought from my own experience w/her and comments from others, that she was rather more discreet/non-gossipy than most--but she totally violated confidentiality of the list (and worse, though she was a member, she was a total lurker who'd never posted to that list in her 2yrs of membership). As for the mw from afar who called a 3rd mw here to discuss it--well I was beyond shocked at that (it wasn't like she called to see if everyone was ok, and offer advice--but to launch a sort of drama-attack).

Ok, well not to go on all day about it. Just saying, again, it IS a small world. And this means that you can inadvertently tell people things you don't realize you are telling them. And it means that even if you think you know and can trust everyone listening, that just ain't necessarily so. People talk! And that talk can start out innocently enough...but if word gets to just ONE 'wrong person' (a gossip, or someone w/an axe to grind), things can go bad quickly and widely.

I like to talk! In case you hadn't noticed that... And I like to talk about my work, for sure. I've just learned to talk only to certain people about my work. Personally, I think fb is NO place for any professional to discuss clients, no matter how masked or oblique--I say, keep it entirely to those very general 'going birthin' kind of comments.
post #22 of 48
My current mw is VERY aware of HIPPA. She will not say anything about a client or make posts on FB. Nor will she talk about it. I actually don't know how she does it, as a large number of her clients are all part of the same NP group, she only takes a birth a month, and it would be quite easy to piece together information.

I do know some doulas who mention things on FB that make me cringe... they mention names, and I HOPE they have permission from the mothers ahead of time, but with as many posts as they make, I kind of have my doubts.

And I know quite a few mws who do make those general statements that are iffy, but also include more formal announcements with details, and I assume those are w/ permission. It IS a really small community, even in our urban area.
post #23 of 48
I have a couple of doulas and a midwife on my FB. I'm hoping/assuming that when they're posting names, they're getting permission for the babies they've helped delivered.

They often post something like "Going to a birth, need some coffee", very vague and general, mind you, I'm in a large city, so I wouldn't figure out who even if I were inclined. But to me, that's fine in terms of confidentiality. Something a little more specific like "Going to a birth with an anemic mom, with pre-eclampsia" might be a little more pushing it.

A lot of people think that if there is no name involved, it's confidential. If I were to talk to some of my friends about a case I'm working on, I have a pretty good expectation of maintaining that confidentiality without a name because they are so far removed from my field. Whereas with other friends who are social workers if not in the same area, not so much. FB is a medium where it seems like everyone knows somebody so I'd probably err on the side of caution. So I can definitely see your concern and I think these people might want to take better care in protecting themselves and their clients.
post #24 of 48
It definitely doesn't take an actual name to violate--or skirt very close to violating--HIPPA. People make connections mentally--as my little sad story was trying to illustrate.

I think if I did do fb, I wouldn't post birth announcements even with permission. If various clients on my page know each other, then one of THEM can post an announcement (with permission) on their own page.
post #25 of 48
Quote:
Originally Posted by MsBlack View Post
A couple years ago, I sought advice from a national mw forum about a postpartum situation that had gone south--not my client, but I had consulted w/mw and fam in person, was concerned and needed more input. I did all I could to mask the 'players', focussing on the bare essentials of the problem instead. But it blew up anyway into a major gossip fest all over the region/state
That really stinks. Isn't that type of forum designed so that you can discuss cases? Talk about what went right or wrong, and how to handle difficult situations or continue to to be the best provider you can be. Doctors have things like this with their peers. They review "case studies" with no names, but very specific info about conditions. Do all of those case study patients sign waivers? How are you supposed to grow as a CP if you can't talk about that sort of thing (and I mean without identifiers) with your peers?
post #26 of 48
Yes--the forum is meant to be one where we can share joys and sorrows as well as advise each other. Don't know about any other member, but my contract with clients clearly states that I will consult as needed with other pros about their care (maintaining confidentiality). And the forum has a confidentiality rule. That incident led to a discussion about what exactly confidentiality means on the list: you can share what you learn with others not on the forum, keeping posters identities to yourself; you can even share a post with permission from the author. You can't talk to anyone (nonmember) about a topic onlist if you suspect they may be involved! You can't go calling people in the area, to find out more just for prurient interest!

I would say that most people on such lists can be trusted to be confidential, kind, commonsense about this. But it only takes a couple of people to be careless (as I believe the apprentice was, don't believe she was intending harm but didn't think it through), or just gossipy (as seems certain about the out-of-region mw who contacted mw here to dish dirt. Again, just pointing out the need to be careful with our public postings--connections that get made you didn't intend/foresee, by your readers; sloppy or even malicious comm that can result-- and lead to problems none of us need.
post #27 of 48
Thread Starter 
It is very much the same in the area that I work in, there are very few people that I can discuss how I am helping families and what role I am playing for who- professional networking is important, but even there when folks are supposed to all have confidentiality- you still have to watch what you say and how- its military, so the 'need to know' thing totally applies. I ask myself if it will help the families or help me to help the families if I share that info- and generally, I can see the line- is it just interesting and I want to talk about it becuase I really do enjoy my job, and really the stories I deal with are very interesting-- or is this something that will make a differance to the care my families get if everyone knows this, will it save someone else from having the same experiance, etc etc--
posting something like 'going to a birth' does not help anyone's families
I think that translates loosely to 'I LOVE MY JOB! I LOVE BIRTH! YEAH ME!' and yes that is all good and great- except that it is counter productive to me, it does not further make me love home birth, and love the birth professionals- it is too familiar and I do not know these strangers whose so personal information that I just read, and that makes me feel very uncomfortable

I do love birth, and I do think doulas and midwives are so so amazing and wonderful- and I have such a strong wonderful place in my heart for the birth profession- becuase birth is so so special - it is NOT like any other job, it is NOT like saying "had a busy day at the office today"

I liked some of the doula's ideas of having their own client web pages where they do celebrate births- that makes sence that is for the families and for the people who know that woman- facebook is not for the families- it is for the doulas and birthing community that is networked there - it feels like to me anyway

thank you again for discussing this with me and hearing me out
post #28 of 48
Quote:
Originally Posted by KellyandKatie View Post
posting something like 'going to a birth' does not help anyone's families
I think that translates loosely to 'I LOVE MY JOB! I LOVE BIRTH! YEAH ME!'
You are correct. Of course, I believe that pretty much every aspect of Facebook is fairly narcissistic. It doesn't really help anyone in any way when I post that I took my kids swimming or that I am tired or whatever.... it is just me talking about me. Facebook is just a place of people talking about themselves and showing off photos of themselves looking awesome. So, when I post that I am heading out to a birth or a day of prenatals, it is just me talking about one more aspect of my life. I try to be very aware of privacy and I never post any details other than just that I am on my way out or that I love what I do. Although, I do think it helps to educate others about what a midwife is or that there are homebirths still happening (not to my birthy friends but my high school classmates, cousins, etc). The birth announcements I make are on my business fan page, which is public and more focused on that rather than on my life.

This is an interesting conversation, for sure! I never in a million years would have thought someone would feel uncomfortable about a status update of "on my way to a birth, I love my job!" so it is good to hear other perspectives!
post #29 of 48
Unfortunately I know for a fact that two mw's in a certain area of FL do not respect privacy. I know because I shared information with one (in a completely different practice) that got back to the other, who talked about it in an appointment with me. I felt violated even though we did not talk in a strictly clinical setting (it was an initial interview). Ugh. That area of FL does not have many options.
post #30 of 48
Thread Starter 
I am not saying that midwifes/doulas/birth professionals should not post 'hooray I love my job- birth is awesome' posts- but it can be done without sharing other's personal information
a lot of my doula/midwife friends do post stuff all the time that celebrates birth - but has nothing to do with 'going to catch a baby' - they post birth affrimations, they post 'hooray I love my job' without using someone eles info to reflect how they feel about their job- they share resources and educate - that rocks!

A lot of my birth professional friends do post WONDERFUL information and articles- that kind of stuff does educate and encourage that birth is alive and wonderful- one does not have to share 'headed out to a birth - I love my job' to convey that message

I get that everyone wants to be validated- I get that- but it is a profession- and a huge part of that profession is trust and security
you won't get that pat on the back- that validation- for saying that you just helped a mama in birth- but you can still share education and resources without sharing that personal tidbit of information - if the reason is to truly help encourage the birth profession, that can still be done too
post #31 of 48
Just weighing as a mom who is "friends" with my doula on FB...

I had a long, difficult labor that ended in c-section. Probably not the kind of experience that would make anyone feel like she loves birth & loves her job. More of the kind of thing that might make her feel like "my job sure can be hard and is sure is a drag when things don't go right."

But if she had posted something of that nature on FB and I had seen it, I would have been devastated, even if no one but me could tell who she was talking about.

She did NOT do that! Thank goodness. I was so fragile after the birth...still am in many ways...and it would have been hard to see ANY commentary that I connected back to my birth in such a public place.

I'm just saying...if your clients can see you on FB and they connect the dots, it may not matter whether or not anyone else does.
post #32 of 48
One of the points I am walking away from this thread (which has been quite insightful!) is to develop standards or criteria if you are interacting on a social networking site. For instance - have a separate business page vs. conducting business and personal updates on 1 page.

I wonder if we will see this topic pop up more with the national conferences and how to maintain confidentiality.
post #33 of 48
Quote:
Originally Posted by KellyandKatie View Post
posting something like 'going to a birth' does not help anyone's families
I think that translates loosely to 'I LOVE MY JOB! I LOVE BIRTH! YEAH ME!'
Actually when I post "Off to a birth" it's a notification to my grandmother that I won't be at her house the next day and if it's during the school year she knows she should plan to pick up my little one from school and that the older one will be driving herself over after school. It also alerts the doulas in my practice that I am unavailable by phone and to only call me in an emergency, otherwise text me and I'll answer when I can.

It depends on *how* the individual uses FB. For us it's a communication hub. But again that's my private FB account. On my client account I don't post about going to births, etc. If I need to notify one client that I"m at a birth of another client I will text or email them from my phone during the evening/night hours. If it's during the day I leave a voicemail or tell them directly while en-route so they know to call their backup for any concerns for the next 24-48 hours.
post #34 of 48
Thread Starter 
'need to know' would apply, but when most have 200-300 people on their networks- its a far stretch that many 'need to know'

if I am working or busy, sure they need to know that- but I can say I am busy without saying I am busy becuase I am working with one of my families - I can say that I am not aviable without it being a reflection of others personal information
when something does happen that my job requires me to spring into action, I need to move fast and immediatly- and I need to let the ten people know that I am busy, I can do that professionally by not telling a few hundred people, I can let those who need to know know what they need to know

when you need to not get calls- you put your phone on vibrate
when you need one person to honestly pick your kids up from school, I have to question if anyone would really just rely on ' gramma saw facebook, I am sure she will be there to get the kids' and not call- that is kind of a stretch I have to say

for me it goes back to intimate personal information being used casually- FB is very casual, there is not a lot that is professional about FB or myspace or twitter etc

if a doula has lets say 5 clients that are due that week- how is it even hard to figure out who is in labor- and again, if they have no idea who those five clients are- why are they in the need to know of complete strangers personal information

I know confidentiality is defined differantly for differant professions- but wow- when I say I have confidentiality- it does not mean I just dont tell my family members that I work with - it means I do not tell anyone who is not in the confidentiality circle- heck, I can not even tell my husband stuff- this is what I mean about the birth community condoning it- it is okay as long as the families don't find out?
that makes me think twice about what I can trust to this level of professionalism
post #35 of 48
I sometimes see stuff that makes me pause - I HOPE the midwife/doula has permission! Many of my local collegues are posting birth times & pics on their business facebook page with explicit, signed permission. The latter doesn't bother me, b/c it's with permission.
My facebook is more about me, than my clients or my job. I do post up interesting articles about parenting or birth, but I also post videos from YouTube that have baby lambs jumping on them. Or vacation pictures.
post #36 of 48
Quote:
Originally Posted by KellyandKatie View Post
'need to know' would apply, but when most have 200-300 people on their networks- its a far stretch that many 'need to know'

if I am working or busy, sure they need to know that- but I can say I am busy without saying I am busy becuase I am working with one of my families - I can say that I am not aviable without it being a reflection of others personal information
when something does happen that my job requires me to spring into action, I need to move fast and immediatly- and I need to let the ten people know that I am busy, I can do that professionally by not telling a few hundred people, I can let those who need to know know what they need to know

when you need to not get calls- you put your phone on vibrate
when you need one person to honestly pick your kids up from school, I have to question if anyone would really just rely on ' gramma saw facebook, I am sure she will be there to get the kids' and not call- that is kind of a stretch I have to say

for me it goes back to intimate personal information being used casually- FB is very casual, there is not a lot that is professional about FB or myspace or twitter etc

if a doula has lets say 5 clients that are due that week- how is it even hard to figure out who is in labor- and again, if they have no idea who those five clients are- why are they in the need to know of complete strangers personal information

I know confidentiality is defined differantly for differant professions- but wow- when I say I have confidentiality- it does not mean I just dont tell my family members that I work with - it means I do not tell anyone who is not in the confidentiality circle- heck, I can not even tell my husband stuff- this is what I mean about the birth community condoning it- it is okay as long as the families don't find out?
that makes me think twice about what I can trust to this level of professionalism

While I have over 300 FB friends, there is this nifty privacy control that allows you to post updates to everyone, or just to certain groups that you've established. So anyone with any net savy can control WHO they post status updates to if they so desire.

Does your job take you from home to various otherwise undisclosed locations for an indeterminate amount of time? Mine does. Sometimes into the ghetto and other times into the upper class burbs. I never know when I'll be able to walk back into my life. FB is just one way to coordinate everyone who should be in the know, especially since you can't schedule my work in google calendar and have it sent out to everyone who needs to know. Grandma checks her facebook every morning. If I head to a birth during the night, I know that she'll see my post first thing. If I call her, she'll wake and not be able to go back to sleep, so it makes sense to let her know in the least disruptive way. If I head to a birth during the day, I just pick up the phone, no worry about waking her.

Doulas should never walk out their doors without **someone* knowing where they are going. Laboring at home with clients is generally safe but any law enforcement officer will tell you to let **someone** know where you are going. For me, that's my backup. If I vanish, she's obligated to tell my family where I was going, morally.

It's all well and nice to just "say" let the phone go to vibrate but when you are carrying more than 1 client a month you never know when someone due weeks or months down the road might need you. Since I don't have clients on my personal FB I don't notify the next 9 clients that are on my books that I'm at a birth. But even though I'm at a birth I'm still responsible to them. So I much prefer to minimize the calls I get by letting those who call me on my cell the most (family and the doulas in my practice) that I'm gone.

If I have 5 clients due in a week only my backup needs to know which birth I"m at, so she'll know to be on call for the other 4. However, when you run a doula practice you need to be available to ALL your doulas and due to the nature of our work we are expected to be generally readily available and it's a pretty common assumption that if you give us a call a timely reply should be in order, that's just how we operate. I like to let those that I'm responsible for and to know that I'm out of the operational loop. They don't need to know with who but if they have an urgent question or need it's nice to know to call another person instead of waiting and waiting for me. FB update allows that to happen, instantly.

Saying "off to a birth" is no different than a DR, Psych, social worker, hit man saying "off to work." It discloses nothing except for the fact that the individual is AT work. "Off to the birth of ..." or "off to the birth of a client due . . ." or even "off to a birth at . . ." would be way too much identifying info for me. But I can not, no matter how I look at it, see how saying "off to a birth" is a violation of my client's (many many of them at one time) privacy.

When my good friend who is a L&D nurse posts "off to work the night shift, full moon= lots of babies" is she violating the privacy of every patient she works with that night?
When my husband posts "back to the grind" is he violating the trust and privacy of the client that owns every car he works on that day?

Heck most people list at least their general occupation on their FB profile. They may not give specifics but you can almost always distinguish what their occupation is in general. Dr, RN, mechanic, librarian, truck driver, Midwife, Pastor, the list goes on and on.

Oy!! That feels all disjointed, but there it is.
post #37 of 48
Thread Starter 
thanks for bouncing this around with me
its unsettling, but good to know that is just how it sits
I appreciate you guys listening to me and bouncing this around- thank you thank you
post #38 of 48
Yes, lots of good points raised on all 'sides' of this issue!
post #39 of 48
I think that a midwife or doula can also undermine or invalidate a mother's feelings about her birth by doing this. I understand that for my doula, my birth may be awesome. But for me, it may have been awful and traumatic. In the latter case, the last thing I want to see, the last thing I need as a newly-postpartum mother, is a FB update about my "beautiful birth." In fact, one of the most hurtful things the MW asst at my last birth said to me, after I expressed disappointment and distress with the birth, was: "But you had a beautiful home waterbirth!" Sorry, but there was nothing "beautiful" about it to me and saying so was a rejection of my experience, which had only ended about 2 hours prior.

I really feel this is one of those situations where the actual legalities are less important than the other impacts of this kind of information-sharing, and as such, women should have the opportunity to refuse consent for that kind of sharing. Anytime confidentiality issues are being skirted, it shouldn't be about "how much can I legally share" but rather "what is the very good and rational justification for sharing this information." Even if that information could be shared legally, due to the fact that we're even talking about confidentiality, there should be some necessary, important and rational justification for any sharing.

I also agree with the OP that in fields where trust is paramount, it's not just the legal minimum for sharing information that's the bar, but a much higher bar that allows clients/families/patients to feel comfortable, safe and respected.
post #40 of 48
Thread Starter 
[QUOTE=Romana;15550311]I think that a midwife or doula can also undermine or invalidate a mother's feelings about her birth by doing this. I understand that for my doula, my birth may be awesome. But for me, it may have been awful and traumatic. In the latter case, the last thing I want to see, the last thing I need as a newly-postpartum mother, is a FB update about my "beautiful birth." In fact, one of the most hurtful things the MW asst at my last birth said to me, after I expressed disappointment and distress with the birth, was: "But you had a beautiful home waterbirth!" Sorry, but there was nothing "beautiful" about it to me and saying so was a rejection of my experience, which had only ended about 2 hours prior.

I really feel this is one of those situations where the actual legalities are less important than the other impacts of this kind of information-sharing, and as such, women should have the opportunity to refuse consent for that kind of sharing. Anytime confidentiality issues are being skirted, it shouldn't be about "how much can I legally share" but rather "what is the very good and rational justification for sharing this information." Even if that information could be shared legally, due to the fact that we're even talking about confidentiality, there should be some necessary, important and rational justification for any sharing.

I also agree with the OP that in fields where trust is paramount, it's not just the legal minimum for sharing information that's the bar, but a much higher bar that allows clients/families/patients to feel comfortable, safe and respected.[/QUOTE

Well said! So well said!

I am surprised how much room for interpretation there is about what confidentiality - or security means- 'as long as the family does not see it and it is just my personal friends and family and network' kind of idea is not confidentiality at all in my mind- it is not even being sensitive even if the code of confidentiality is not being broken
do different certifications have different standards of professionalism? Like DONA or CAPPA - is it written differently?

I am not a doula, but I do have a code of ethics - and confidentiality is something I thought I understood- I can understand that it would be diffreant with differant jobs- but it is still people's private lives with trust on the line

Is it in that code that all doulas are in that ring or circle of confidentiality- so all clients can just expect that every doula is going to share whatever with their birth network? I know with my birth professionals they told me who their back ups were- they told me who all might be involved as additional support or in the event that they could not make it- I assumed that these were the only other birth professionals that would be hearing about me and my pregnancy and birth

to say that 'going to a birth' is the same as 'going to work' just does not seem accurate. The professionals that I know put in an amazing amount of hours - for every one hour of actually helping at a birth compared to how many hours of support, education, resource, training etc etc hours - it seems to me that the birth is obviously the coolest part of what they do with any one client, but they do seem to put in so many hours upon hours during that time with each client prior to the actual main event

Im a Navy Family Ombudsman. I support the families of the sailors in my command. When my phone rings I don't know if it is going to be a family member bragging that their kid got a scholarship or if it is going to be the police because someone is in jail or worse- it is always interesting- it is people's private and personal lives that they trust me with- my code of ethics is written so clearly there is little wiggle room- but it would be technically legal for me to be a gossip and post junk about what I am doing without naming names. I would be sure my command would relieve me if that is how I defined my professionalism- not because I broke a rule- but because the families need to trust me and if I am not being professional and earning that trust - I can not be effective at my job

I am not trying to compare the two jobs directly- just saying trust is at the center of caring for other people in intimate situations

From what I am understanding though, it does not seem like it is the doulas or midwives that are out of the line- it seems like maybe there is not a line?

I feel like I am beating a dead horse here- but I am finding this very helpful and getting some good perspective
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