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I'm worried that something's wrong with our 2.5 year old :-(

post #1 of 58
Thread Starter 
Help, please! We have an appointment with the pediatrician in 2 weeks, but I'd like to get a heads up as far as what to expect her to say ... and to see if anyone can either confirm or put to rest my worries. The appointment is just a "well-child" visit.

My stepson is 2.5 years old exactly (30 months). He was breastfed as an infant for a few weeks but then his mother stopped because he nursed very frequently and it was too stressful for her, so he was switched to formula (cow's milk) and he still wanted to eat "constantly". I entered his life a few weeks after his 2nd birthday. Here's what I observe ... and when I am comparing his development it's to my own 25 month old and to his peers (from playgroups, church, etc.)

He had all of his vaccinations up to 18 months, and has not had any since and will likely not, per our choices.

He eats a lot, and would prefer to eat all of the time. He never says that he is full or done. He will eat just about anything, no matter what it tastes like. If he doesn't like a food, he'll say so, but continue eating it. He eats VERY quickly, and often shakes (his hands and whole body) while he eats as he shovels the food in his mouth as fast as he can :-(. He sometimes eats so fast that he chokes. He doesn't chew sufficiently (and often doesn't chew at all, I have even seen whole foods, such as grapes and almonds and peanuts and such, in his diaper, completely unchewed) and does gag/choke at least once per meal. He gags to the point of regurgitating about every other day. He typically just keeps the regurgitated food in his mouth and chews once or twice then swallows again. He drinks A LOT of water but his urine is often quite dark yellow and strong-smelling. He can feed himself pretty well with a fork (a skill I taught him, previously his mother just fed him from her plate/bowl, I also taught him to drink from a cup which he is great at doing, before it was only sippy cups). He sometimes will eat and eat and eat and then say "it hurts!" but still ask for/want more food. If you tell him "okay, you're done, you've had enough, buddy" he will get sad. He cries at the end of a meal about once a day. Our eating patterns are thus: 7am (breakfast), 11am (a lunch, larger midday meal), naptime/quiettime (we avoid the midday sun outside), 3pm (a snack, smaller midday meal), 7pm (dinner, large meal), bedtime by 9pm. So we do feed the children often enough that they don't get too hungry, and yet he still asks all day long when we're eating, what are we having, when is food, I'm hungry, etc.

His bowel movements are normal for the amount of food he eats ... he puts a lot in, so a lot comes out. We're working on potty-learning and he's doing pretty well (sits on the potty when prompted, and pees and poops on there about 75% of the time, diaper only for naps/nighttime).

We try to limit him to appropriate toddler portions for his age and size. We encourage him to drink a whole glass of water (for his size) with each meal, and to take small bites, we cut up his food, we remind him to go slowly, chew, take a sip of water, etc. We eat mostly all organic, all natural foods. We rarely eat anything packaged or processed. I do a lot of cooking/baking and do my best to give us healthy, whole foods made from scratch. Lots of nutrient dense foods, too. I've considered that this could be a food allergy/sensitivity issue but I just wouldn't know where to start to try and figure that out, any advice is welcome. We do eat dairy, gluten, soy, all sorts of fruits and veggies, including peanuts, tree nuts, berries.

So, he's a foodie. He likes to eat, a lot. But why the shaking? And hardly chewing to the point of choking and vomiting??? He is also very small. On target for height for his age (not sure of the inches, but I know it's normal because I've measured and charted it recently) but only weighs 21 pounds and he looks underweight. He has hardly any muscle tone anywhere on his body.

He is very lethargic and slow. He does not run. When he walks he is very slow and purposeful. He doesn't usually walk heel/toe, he just walks by planting his foot down flat. He is afraid to walk on surfaces that aren't smooth, and avoids/gets nervous/upset by gravel, grass, bumpy dirt (such as a hiking trail). He cannot walk down stairs, but instead crawls down backwards. He is clumsy and uncoordinated, but so are most toddlers, right?

Tantrums ... he screams. Shrilly. Instantly, there's no real wind up period when he's sad/upset/angry he just SCREECHES. If he wants a toy someone else has, he screeches. Often there are no tears. There are actually only tears if he's truly hurt/injured. We do not respond to the screaming unless he is hurt or NEEDS something. If he is told to stop doing something (like please stop banging your fork on the table) he makes a sad face, winds up with his mouth open while he sucks in a breath, then there's a SCREAM! like in a horror movie. It's grating to say the least.

He has no interest in art activities. He won't scribble with a crayon, won't do fingerpainting (and if we dip his fingertip into the paint it brings on a screeching fit/tantrum), doesn't do/enjoy playdough.

Finger-sucking ... he does suck the two middle fingers on his left hand, which I presume is normal (my two children are both breastfeeding, 25 months old, and 4 months old, and neither sucks their fingers/thumb or has a lovey, so I have no experience with it). His fingernails on those fingers are deformed from his frequency and urgency of sucking (he sucks really hard) at nighttime, naptime, and randomly throughout the day (out of boredom, upsetness, etc.)

I just wish I knew this was all within the realm of normal, or what was wrong so we could help him.

Things he's great with - words, language development, can say the ABC's, very musical in that he can repeat a line of a song if you sing it, or imitate a tone/note perfectly in pitch. Full on sentences as far as language goes. He is very expressive and dramatic with his faces. Also he's incredibly cute, but maybe we're a bit biased because he's ours :-).

I've thought of so many things ... diabetes/hypoglycemia, a thyroid issue (explains the lethargy, thinness, super-hunger), some sort of muscular dystrophy type issue ... I just have no idea. I don't know much at all about autism/Asperger's syndrome and the symptoms. Maybe it's a combination of things, maybe it's nothing ... I don't know.

We just want him to be able to enjoy life more. To run and play with the other kids. To be able to savor food and not be upset every time a meal is over. To not just live to eat. To enjoy our arts and crafts activities.

I'll do my best to answer any questions.
post #2 of 58
I got to the middle of what you said the always eating, quite underweight, my DD is thin but younger and still weighs a lot more than that, and I think it sounds like thyroid disease. I'd move that well baby visit if at all possible. Sounds like he is indeed very hungry. Lots of other things you say don't worry me (no interest in art) but the lack of muscle tone, constant hunger (and the choking sounds like he's just absolutely famished). Distill your note here down to it's points and I'd bring it with you to the doc so you can remember to mention it all
post #3 of 58
Thread Starter 
after a bit of research/reading on thyroid disorders (hypo), he is also typically very tired (will nap twice a day sometimes), and does have very dry, rough skin, despite constant lotion applications. thanks for the input.
post #4 of 58
You know, as I was reading this I was thinking he sounded pretty normal, a lot like my 16mo in fact, until I got to this part:

Quote:
Originally Posted by Lillypop View Post
He is also very small. On target for height for his age (not sure of the inches, but I know it's normal because I've measured and charted it recently) but only weighs 21 pounds and he looks underweight. He has hardly any muscle tone anywhere on his body.
He sounds underweight & almost malnourished. I know he is eating a lot but I wonder if his body is absorbing it?? I would definitely have him evaluated for thyroid & metabolic issues & maybe celiac disease as well. I'm not the type to be very concerned about toddler development but many things you mentioned in the second half of your post worry me A LOT.

I don't know how much of that is normal as my DS is younger, I'm willing to venture though that while most of the behaviors would be 'normal' on their own, that specific combination of behaviors is pretty worrisome.

I do want to mention that the frequency you guys eat (every 4 hours) would leave me famished. We eat 4-6 small meals plus snacks... depends on the day and the meals but if we go more than 2-3 hours between eating I will usually be STARVING and non-functional. I am hypoglycemic... but I don't think a lot of the other things you mentioned (poor muscle tone etc.) sound like hypoglycemia, at least not as I've experienced. But still, wouldn't hurt to try feeding him every 2-3 hours to see if that helps at all, until you get in to the doctors.

I would also question whether food intolerances were involved, especially dairy & gluten... I'd also consider sensory issues... maybe a developmental evaluation...

As the pp suggested, I would print out your post (maybe consolidate it if your pedi tends to do the '5 minute checkup' thing) and share it with the doc, also see about having the appointment moved up a bit & asking for extra time to discuss concerns.
post #5 of 58
Thyroid problems sound like a good bet, but have you considered something like Prader-Willi Syndrome? It sounds like what my DH Aunt has, but I have to admit it I'm not really informed as to how it presents in a young child. It is just that the eating problems really sound like her, always hungry, etc.

However, it could also just be toddler behavior, it is so hard to tell sometimes because toddlers do such bizarre things!

I agree with PP about making sure that your Dr. isn't going to just have 5 minutes set aside for a well check up. And trying to get the appointment moved sooner. Good luck!
post #6 of 58
You might want to look into Sensory Processing Disorder. He may be sensory-seeking with the food and could be avoidant with the finger paint. I know a lot of kids who weren't into art as toddlers, though, so I wouldn't really worry about that. They're normal 9 yr olds now.

The low muscle tone can be correlated with SPD also.

The low weight with the amount he's eating is somewhat worrisome. I'd keep a food diary before your dr's appointment so you can show the ped how much is going in. The dr would be able to better gauge if something is really off with his weight that way.

Here's an old thread about SPD and hypotonia (low muscle tone): http://www.mothering.com/discussions...d.php?t=940081

hth
post #7 of 58
It sounds like he has a couple things going on.

My thoughts are an allergy (low weight gain, lethargy, screaming), sensory issues (stuffing his mouth, not chewing, not walking on rough surfaces, the sucking so hard his fingers are "malformed") and possible hypoglycemia/diabetes (those issues could also be related to an allergy.)
post #8 of 58
After reading your post, my first guesses would be thyroid issues as well as some sensory intergration issues. I'd also have the dr. check out the amount of nutrients he's actually absorbing.

Move the dr. visit up if you can. Sometimes, just a change of diet, adding supplements, and some sensory therapy may be all that's needed to help him...Hugs and good luck!
post #9 of 58
The low muscle tone and preoccupation with food made me think of Prader-Willi Syndrome, although there are definitely other things that don't point to PWS (normal height, good sucking at birth). Good luck at the doctor appointment--I hope you get some answers.
post #10 of 58
I don't have any help other than to say that it sounds like a malabsoruption issue? But I will say I think those are quite long times for a toddler to go without food. I think a snack tray might be helpful, and there would be maybe? less gorging at meals. Some kids to eat much more frequently. Also, if he is small, "toddler sized" meals might not be the best thing. Some kids just need to eat more, and I would be a bit concerned about limited his calories at his size.
post #11 of 58
Have you discussed this with his ped?

My son is small, but he has a genetic issue that entails him being small. IMO there is something going on here and I would work with specialists to try and figure it out.
post #12 of 58
i would say he is not digesting/absorbing food or nutrients well?
post #13 of 58
Quote:
Originally Posted by Lillypop View Post
Our eating patterns are thus: 7am (breakfast), 11am (a lunch, larger midday meal), naptime/quiettime (we avoid the midday sun outside), 3pm (a snack, smaller midday meal), 7pm (dinner, large meal), bedtime by 9pm. So we do feed the children often enough that they don't get too hungry, and yet he still asks all day long when we're eating, what are we having, when is food, I'm hungry, etc.
Not that this is the solution to everything, but those seem like really long periods of time for a toddler to go without eating anything. Mine would be asking me about food too if they were going four hours between snacks/meals. Maybe you could keep some healthy snacks out on a little table for him. Or if you don't feel comfortable with the whole grazing idea, you could build in a couple more snack times, particularly in the mid-morning.

Also, we eat breakfast at around 7am too give or take, and my kids would never make it till a 7pm dinner time, at least not without some serious whining. They would happily eat dinner at like 3:30. We usually feed them around 4 or 4:30 though. Is there anyway you could feed him dinner earlier? Or maybe turn that 3pm snack into a bigger meal for him and then let him snack later?

As to the fatigue and frequent napping, while I'm sure there could be other issues going on, I wonder if he might be a bit short on the nighttime sleep. Sounds like he's getting 10 hours or less. My daughter was sleeping about 12+ hours a night at that age, and so were many of my friends kids. Would an earlier bedtime work out schedule wise for you?

Anyway, those are just a couple things that jumped out at me. Some things in your post don't seem out of the ordinary to me (screeching tantrums, not liking arts and crafts) and some sound like they could be cause for concern (low muscle tone, low weight, not running).

I'd suggest calling your peds office and letting them know that you have a lot of issues to discuss at your appt. I don't think there will be enough time at a well child visits to address everything you have going on. Maybe they could schedule in some more time at the front or the back of it.
post #14 of 58
Oh, reading that made my heart sad. Your poor boy. I hope you figure it out.

I did want to add two things: I would video tape what he does when he eats in order to show the pedi.

And after reading the symptoms of Prader-Willi I also am wondering if that's not part of it....nursing constantly as a baby because he was always hungry and had a poor suck, so he likely wore himself out, which would mean more constant nursing in order to get the food he needed.

Also, perhaps that's why he gags and chokes down food while eating, because he has such poor muscle tone in his mouth and CANNOT chew. It may be physically impossible for him, in which case I would cease all chokeables - esp nuts, grapes, popcorn, etc....offer only very small, very soft foods.

And offer snacks in between meals. My kids would be ravenous if they had to wait 4 hours between food times.

Please keep us updated.
post #15 of 58
I didn't read the entire post, because I was so surprised that you are feeding a 2 1/2 year old peanuts, almonds and grapes. I didn't feed any of those things to my children until they were at least 3 (peanuts waited until after 4, due to potential allergies).

Especially if he is not chewing them properly, he isn't old enough to eat them, right?

I see that others have had much better and more specific advice but I did just want to give my teeny little two cents.
post #16 of 58

Hugs to you and yours

You have a lot on your plate, and your dss is lucky to have you!

I agree w a PP about the video for the ped-- it can be enlightening for the dr to actually SEE what you mean.

I think your meal timing is right on (I know some disagree and that's ok too) but we all need time for our stomachs to digest and empty before refilling them or it can lead to other issues, and he has enough already.

My major point is: have you considered testing for intestinal parasites? I ask bc 3/4 of people in western, industrialized countries unknowingly have them when tested at random. It could explain his symptoms quite easily. It is also easy to treat w natural remedies. My ped told me that the most common ways to get parasites are: drinking water (even "tested" water has an "acceptable" number of parasites/ eggs in it), walking barefoot, eating meat, and exposure to animals/ pets.

Hope you get some answers.

blessings
post #17 of 58
You've gotten a lot to think about here. I just want to say that I think four hours between eating is way too long a stretch for a kid that age. He may well have other issues. But any child I've ever known would be very hungry long before it was time to eat in your house.
post #18 of 58
I have a 2.5 y/o too, and he would definitely be hungry if he had to go that long between meals. He usually has a BIG breakfast (between 8-9 AM) (2-3 bowls of cereal with milk, fruit, toast or eggs and LOTS of water) a snack around 10:30 (fruit or veggies, or sometimes something I've baked like banana bread), lunch, which includes a main dish (his favorites lately are baked beans or fish) fruit and veggies, a snack after his nap (around 3) another snack around 5, and then dinner at 7 PM. He is also fairly skinny. Your DSS could definitely be having thyroid issues or malabsorption issues, but I would definitely offer food more frequently, too.
post #19 of 58
I second the idea that he may have parasites. In the meantime, while you are waiting to see the ped. I would make him smoothies, jammed with good foods, (there are tons of recipes here on MDC) and give that to him between regular meals. How about digestive enzymes to help him digest his food as well?

Definitely video his behavior with food for the ped, or they are reluctant to believe that anything out of the ordinary is going on.
post #20 of 58
I agree with the PPs, and also wondered why if he's asking for food between meals, he isn't being offered or given it, especially considering his extremely low weight.
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