I'm worried that something's wrong with our 2.5 year old :-( - Page 3

[showurhorns]

Meanwhile you are waiting for answers try Epsom Salt baths. My DD has Defensive Sensory Processing Disorder and it is working wonders on many levels. It is also used with Autism. Not that think it is either at this moment it sounds like something else is going on. Your original post although sounds a lot like my DD. She has the opposite problem with feeding she has oral aversions so she avoids foods.

I use 1 cup Epsom salt to her bath at least 3 times a week.Soaking no longer than 20 min. Often I join her as it needs to cover entire body and she is only 20 months so it is a safety issue.

Praying for your little guy...It sounds so scary.

[URL="http://www.speech-express.com/boards/viewtopic.php?t=491" describes why it is beneficial. I am sure MDO has info too.

[Theoretica]

[Super~Single~Mama]

I'm thinking about you guys, keep us all updated

[MamatoA]

Seizures (eplilepsy)??

Friend, I just saw this thread. I'm really glad that you are being proactive about this. I am not a doctor but here's my two-cents....

the zoning out sounds like it could be small seizures called "absence seizures." And there is a pretty substancial comorbidity rate between eplilepsy and developmental disabilities, which it sounds like your DSS may also be experiencing.

There is a list of possible disorders/diseases on page 69 of this google book. It's under table 3-4 "Etiologies of mental retardation and eplipsy" I have not researched all these so I don't know if the symptoms and signs fit what you are seeing. There are just some ideas for you to research and/or present to his medical team.

http://books.google.com/books?id=kGx...page&q&f=false

[CookAMH]

I do not have any experience with this but want to offer support and though your DH isn't on board, you must persist with medical care. It must be hard to do so and not get answers. If this doc does not satisfy, post on your local tribe for a recommendation that hopefully is in your insurance. Please persist, it certainly sounds like things are not right with your boy.

[Latte Mama]

Just reading this thread now, hope to get an update soon and that your DSS is getting help!

[Anastasiya]

I agree that I would get him in NOW. I would have him admitted, personally. He sounds like he is very much deteriorating.

Has he had a CT scan or MRI to rule out a brain tumor?

I check for updates constantly....this boy is really weighing on my heart.

[Lillypop]

His biological mom moved away in December. She took care of the kids every day, then she left to live two states away. They've seen her less than ten times since then. She is moving up to live a few miles from us this weekend, so they'll see her on a regular basis, two-four days a week.

She's got her own issues, but she does love the kids. She and DP are divorced now. (we're waiting on my divorce and our annulments to allow us to get married in the church).

Oh, and after 3 phone calls today we have a neuro consult appointment Monday afternoon. biomom has the kids then and will be taking him to the appt (she's in denial of his problems, doesn't think anything's wrong, but I'll be sending along a list of concerns for the doctor, as long as a request for bloodwork).

[InMediasRes]

Just read this today, and I have to send a to you and your poor baby. We'll be keeping you in our thoughts.

I agree with PP on a few points: it does sound like he's having absense seizures; the oral sensory seeking, lethargy and hypotonia sound a lot like SPD, but the not gaining weight sounds like a metabolic issue. I agree that he needs to be seen NOW.

I'm sure you're doing everything you can. My son is on track for growth, but he does a lot of the same things you mention with food, stuffing his mouth, asking for food or water ALL THE TIME, eating when he's not hungry and not stopping, chewing on his fingers, etc. For a long time around 2.5, I was really considering SPD. We have no formal diagnosis, but I still consider him mildly special needs. Go over to special needs board, they can really be supportive, Mama. Also, having a DH who is even MONTHS behind and seriously in denial seems to be pretty common amongst SN families.

1000 s

[Anastasiya]

Originally Posted by Anastasiya

I agree that I would get him in NOW. I would have him admitted, personally. He sounds like he is very much deteriorating.

Has he had a CT scan or MRI to rule out a brain tumor?

I check for updates constantly....this boy is really weighing on my heart.

I just wanted to repeat this...the seizures, the lethargy, the weakness, problems swallowing, no weight gain and the fact that he doesn't walk well, cannot stand on one leg and cannot jump worry me.

Praying, praying and praying!

[confustication]

Can you try to attend the appointment as well? It seems like it would be a lot more useful to the neuro than having a sometimes absent biomom there. She may love and care for him a lot, but she hasn't been there as much lately adn can't relate all that's going on as specifically as you can.

[DevaMajka]

Just read this Keep us updated, ok? I hope things get figured out soon.

[Lillypop]

We have decided that I will go to the appointment with him. She doesn't really understand that there is a problem, or that he is behind/has issues. And we haven't told her about the possibility of the absence seizures (she wouldn't understand that you can have seizures but not have convulsions).

His eating is back to his normal ... the shaking as he sits down and starts eating, consuming a huge amount of food, etc.

Tomorrow I'm going to cut out dairy, gluten, and soy from his diet if we don't get any answers from the neurologist (can't hurt, might help). The early intervention people have 30 days to contact me, so we could be waiting a while on them.

[rightkindofme]

I'm really glad you are going. How could she possibly give the doctor all the information you can when she hasn't seen him much lately?

He's very lucky to have you.

[Super~Single~Mama]

Originally Posted by rightkindofme

He's very lucky to have you.

He's a VERY lucky little guy!! I hope you find something out tomorrow, I'll be checking for updates and thinking about you and your little guy.

[Flower of Bliss]

Thinking of you and your little one today. I hope the appointment went well. Sending

[~Charlie's~Angel~]

Update?

[Lillypop]

http://www.mothering.com/discussions....php?t=1242301

updates here. I can't keep up with two threads.