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Please help me help my little ones through this rough time

post #1 of 16
Thread Starter 
DD is almost 3-1/2, DS was 2 last month. We have a wonderful, sweet life with very regular routines. DP works 1/2 time, I work 1/2 time. DD goes to a few hours of preschool each week with a wonderful teacher and she loves it. We have a babysitter who stays with DS once or twice a week whom he ADORES.

Then 3 days ago I was diagnosed with breast cancer. I have a double mastectomy scheduled next week and a ton of tests and appointments between now and then. Everything's thrown off. I am weepy and freaked out. DD still had been nursing a little, but I've had to stop that. DS is younger but DP gave birth to him and was his primary nurser so that's not a particular issue for him. My parents are coming tomorrow, but although the kids do know them they're not a regular part of our everyday life. And this is just the beginning.

Our preschool is wonderful and has suggested trying to keep their routine as much as possible, but that's pretty much shot other than getting DD to school. She does love her school, and her teachers are wonderful, but the classes change in mid-August and so that'll be new too.

If DS is realizing something's going on, he's not expressing it in a way I can understand. But DD has said some things, her teacher said she told them "everything's upset at home." She had been going through a clingy, very affectionate stage even before this happened and I am so worried about suddenly being a very different mama after the surgery. The nursing had been tapering off (by her lead), but in the past few days she's asked me twice and I've had to tell her no, my breasts are sick. She's accepted a snuggle on the bed reading a book, and yesterday she asked to suck on my arm and of course I let her do that.

I'm trying to get in touch with a social worker connected with the school, but haven't been able to do that so far. Do any of you have ideas for resources about how to help little kids through really tough times? I know there must be books, if I can concentrate enough to read them. Or groups?
post #2 of 16
(((HUGS))) to you and your family.

I think that you being open and sensitive to your childrens' emotions at this time is the most important thing in a situation like this, which you are already doing.

Your idea of getting support from others in BTDT situations will be invaluable also. You can get ideas about how to honestly but age appropriately answer questions and how to keep the routine as normal as possible.

Since I don't have any experience with your situation I can't offer any advice but I wanted to say you are a wonderful mama for making so much effort in helping your children get through this. I am so sorry you are having to deal with cancer. Sending prayers and love your way!
post #3 of 16
(((HUGS)))

Keep their routine as normal as possible and answer their questions at their level - don't brush them off.

We did not go through anywhere near what you are facing, and I am so sorry for you. But I went through a lot of medical issues, tests, surgeries and such because of a few m/c and IVF. It was about 18 months of doctors and shots at home and surgeries and mommy in bed. DS did great. We kept his routine as much as possible. Answered his questions. Gave him lots of extra hugs. It wasn't perfect by any means but we all got through it together.

Things will happen in life, but you can give your children the skills to cope with them and move on. They can learn that family pulls together during those times and supports one another.

I wish you ... luck? success? I don't know what to say but I truly hope your health improves soon and you are back to yourself.
post #4 of 16
i don't have any words of wisdom, but i couldn't read this and not offer 's.

all i can really say is, take care of yourself and love your kids and you guys will get through this.
post #5 of 16
No extra advice, but wanted to offer a and my prayers!
post #6 of 16
I know it's not quite the same for her but if DD wants to nurse can DP nurse her?
post #7 of 16
I wish I had advice but I just wanted to offer you hugs & prayers & strength
post #8 of 16
I noticed you said DP, not DW. If you don't have a durable medical power of attorney for her, get one right now (or tomorrow anyway) so she can make medical decisions etc.
post #9 of 16
Letitia I'm so sorry you are going through this.

I don't have specific experience but I do know that where I am the hospital social worker (or child life specialist, if the hospital has one) can be a great resource for figuring out what resources are available to your kids as well as you. There might be special playgroups, etc., and at the very least I bet they have a list of books and maybe a crib sheet on questions that would help. I would see if your oncologist's office can hook you up.

I haven't seen it myself but this book looks pretty good:

https://www.cancer.org/docroot/PUB/P...tCode=F9496.00

Take it one week at a time too - August is a ways away.
post #10 of 16
Also since you are working, you might want to check out the book Know Your Rights: A Handbook for Patients with Chronic Illness.

I am very sorry you have to deal with this.
post #11 of 16

Please only read this when you're 'ready'; contains emotional and 'been through it' advice.

my heart is breaking for you.
My step Daughter's Mum died as a result of breast cancer when she was 4. (I know this is not what you want to hear) And the way they 'dealt' with it was to keep ALL the routines (Ian went to work; had a leave of absence cos you can do that in the UK) and hire/keep your current childcare. Buy/ borrow all the books you can on children going through this. Be as open as possible; don't 'pretty' it.... don't diminish the situation in trying to say everything's ok, but don't make it too scary.
Ingrid was pregnant when she found out, and was given the option of termination. She chose life and lived longer than anyone thought. Ellie has great memories of her Mum, and MILLIONS of pictures, and videos. She went to the hospital etc (she was the only child)
Ingrid kept a diary.
When she was diagnosed, it was pretty early, but as she had to wait till she had given birth, I can't remember how long; don't want to ask Ian right now, but I don't think it was months, but long enough for her to need lots of surgery, but she went into remission, and had a good year, according to what I've heard.
then came the bad news, and after that, they all just spent every waking moment together..... gave up routine; at that point it got in the way.
I'm sorry that this is not what you will want to read right now, but the other story is that a friend of mine survived it all and is alive today, but she did things differently and regrets it, as if she hadn't lived, there would have been no memories; she tried to ignore it and kept the truth from her children.
I don't know how you'll be, but if you ever want to message me, please do.... I have a wealth of potentially helpful (potentially annoying!) advice.

If there's anything fair and right in this world, you'll be fine.

Just remember, you don't always have to be brave. that's what we all hear about cancer sufferers, just be how you feel right being.
post #12 of 16
I am so sorry My Mother had breast Cancer and a double masectomy when I was 4. The way it worked for me, was that I spent a lof of time with my Grandparents while my Mom was sick. I do remember seeing her and she was very ill and it scared me. We are super close today so I don't think it had a negative impact on my life, the time I was apart from her.
post #13 of 16
Big hugs to you and your family durin ghtis difficult time.

I don't really have advice. I lost my mother to breast cancer almost 20 years ago. i was 10. I am not saying that to freak you out, but from my perspective as a kid who had a sick parent I want to encourage you to talk with your kids abotu what is happening. I realize they are much younger than I was, but no one explained much to us. And I remember spending most nights over teh 2 years she was ill crying myself to sleep promising "god" that I would be good if he just made my mommy better. If you and your partner can find an age appropriate way to keep your kids in the loop, especially the older one, I think it would be good. And I think having people who love them come to help (ie grandparents taht you mentioned) is a good idea.

I hope the coming months bring brighter times for you.
post #14 of 16
I do have some BTDT advice, as I have been in your exact place. My kids were 4 and almost 2 when I was diagnosed 4 years ago, so almost exactly the same age as yours. I was tandem nursing at the time, so weaning was the first step towards starting treatment. My 4 year old weaned easily, as he was ready. Weaning the two year old was hard on me, but she actually did amazingly well. I don't know the particulars of your diagnosis and treatment plan, but I wanted you to hear from someone who has been in your shoes. This will be a really hard year, but you will be amazing, and strong! Take help when it is offered. Talk to your kids about it in terms they will understand, and keep the routine as close to what they're used to as you can handle. Of course they will pick up on your feelings, and the feelings of those around you, but if you help them to understand what going on in terms they understand, it will make it easier on them and you. My kids are 8 and 6 now, and they don't remember any of it (other than the baldness, which they think is hilarious). Be strong! You will do great!
post #15 of 16
Thread Starter 
Thank you all. I'm having trouble with the link to the book but will keep trying. And yes, thanks for the suggestion about the legal stuff. We actually took care of that a when my daughter was born, but it is SO important for us.
Just getting though one day at a time right now.
post #16 of 16
Quote:
Originally Posted by Letitia View Post
Thank you all. I'm having trouble with the link to the book but will keep trying. And yes, thanks for the suggestion about the legal stuff. We actually took care of that a when my daughter was born, but it is SO important for us.
Just getting though one day at a time right now.
I think if you just try the cancer.org website and go to the bookstore and look under kids you'll find it - it's a book for 2-5 yr olds whose parent has breast cancer.

One day at a time is good.
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