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Originally Posted by hdirks  The audiologists mapped them still but that was no NRE responses at all. No visable responses either but I know that is normal. We saw EP last and they said she got absolutely no response from either nerve.
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EP?
I know several kids that do not have NRE's but still get benefit from their CI's (don't know how much benefit, but clearly some). Is there a question about whether or not she had auditory nerves? If the nerves are there, even if they are weak or damaged she will get some benefit.
It is all about expectations. Maybe she won't have access to spoken language, but will be ale to hear a car in the road. That is a HUGE benefit for a profoundly deaf child. Maybe she will be able to here you clap or yell so she will turn and youcan sign to her. That is a HUGE benefit (coming from someone who's child lost that ability and we implanted her just to get it back
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The surgery was not a waste. There is still a possiblity that she will receive lots of benefit, and even if she doesn't, when she grows up you can look her in the eyes and tell her that you tried everything you could to make sure that she had what she needed in life.
I would tell you not to give up on the implants yet, leave them on, continue MAPing them, etc, but starting finding another way to communicate since she may not be able to access spoken language.
