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very confused about my thyroid...

post #1 of 17
Thread Starter 
OK, maybe one of you smart mamas can help me decipher what's going on.

Back story: I have a 17 month old DS. While he is undeniably a sweet child, he didn't sleep for the first year of his life. Or so it felt to me. I was extremely, extremely fatigued. Well, he started to sleep better after his first birthday, but even after a few months of getting fairly decent sleep, I was still feeling just totally wiped out all the time. Like I needed a nap every day or I'd die. I was also struggling with insomnia and general not sleeping at night, which made everything so much worse. I was (and still am) still nursing. Well, I decided that something had to be wrong so I needed to go to the doctor and rule out anemia or thyroid problems, etc.

My doctor did some bloodwork and the nurse called me back. She said something I don't remember now about my thyroid (I thought she said HYPER- but maybe I hallucinated) and some hormone level being 4.5 which was just slightly elevated. I don't know if this was the T4 or TSH or whatever. She also said my vitamin D levels were very low -- 27, when normal is above 40 and optimal is at least 100. So she prescribed levothyroxine (50 mg) and told me to take 1000 IUs of Vitamin D3 a day.

This was back in early May. So I took the levothyroxine for 30 days, but it didn't refill automatically I didn't think, so I figured it would just correct whatever was going on since it was only slightly above normal.

Then I found out I was pregnant at the end of May. I was no longer taking the levothyroxine (since the scrip had run out) but I continued to take the 1000 IUs of vitamin D in addition to my prenatal.

I got a phone call yesterday from my pharmacy asking if I wanted to refill the levothyroxine. I said I didn't know that it was something that required refill, but sire, go ahead. I went to pick it up today. The little information thingie on the bag said that levothyroxine is used to treat hypothyroidism. Here I thought I was hyper- because of what the nurse said, but then I was confused. Am I hyper- or hypo-? If I am hyper- should I be taking levothyroxine? Why would they prescribe something for low thyroid function if they said I was slightly hyper-?? Is this going to hurt my unborn baby?

I am planning a home birth but I thought I heard that hyperthryoidism automatically makes one high-risk and risks one out of home birth, but being hypo- was ok. I'd really like to know which one I am so I can figure out if my baby is okay and if I can have my home birth or not.

I am planning to call first thing tomorrow morning but I thought I'd post here in the meantime....sorry for the rambly long post. I hope someone can help me. I am VERY worried about not only my health but my unborn baby's health.
post #2 of 17
No clue, but could you just call your doctor and ask? You have a right to know exactly what you are being treated for and if the treatment is compatable with pregnancy or now, kwim?
post #3 of 17
Okay, well, first of all, 4.5 sounds like your TSH level to me--that fits with being very slightly elevated, being hypothyroid, and being prescribed levothyroxine. It's possible that that number could have been for something else, but TSH is the standard first test, so I would assume (until you can confirm) that that is the case.

Assuming that you were slightly hypothyroid at the time you were tested, that is not something that typically goes away with time. Yes, there is such a thing as postpartum hypothyroidism, which does sometimes go away, but given how long it's been since your son was born, I think you have to start with the assumption that this will be a lifelong condition.

Now, your level was only very slightly elevated (and by some standards was within the normal range). So that's good news, but unfortunately even a slightly elevated level can be a problem during pregnancy. And you could have an autoimmune thyroid problem, which could cause your levels to fluctuate just a little bit or a whole lot. This is something that should be medically managed in pregnancy, including in early pregnancy...but if all goes well it should not have any impact on your birth plans.

As for the levothyroxine, it simply replaces the T4 that your body should be making but isn't. So, yes, of course it is a problem if you take it when you don't need it, but it is also a problem if you don't take it when you do need it. Assuming you take the correct dosage, there are no reasons you should not take it during pregnancy (and plenty of reasons you should).

I hope that helps.
post #4 of 17
Hypothyroidism is treated with thyroxine/levoxyl.

The elevated lab work probably was a TSH of 4.5 which is thyroid stimulating hormone. Basically if your thyroid is underactive (hypothyroidism) your body makes more TSH to stimulate it.

I would definitely bring it up with your doctor-either the one who initially prescribed the thyroxine/levoxyl or whoever you are following with for your pregnancy. It is especially important to continue treatment during pregnancy as body needs more. I don't know of any alternative methods of treating hypothyroidism other than medication.

Note UNTREATED hypothyroidism:
http://www.nichd.nih.gov/news/releases/hypothyroid.cfm

http://www.thyroid.org/patients/pati...pregnancy.html

http://www.thyroid.org/patients/pati...hyroidism.html
post #5 of 17
I'm confused when did you have you last labs?

4.5 does sound like TSH like PP said and that would mean hypo usually they don't prescribe Lev for hyper I don't think. If you are pregnant you need to be getting blood work every 6 weeks to make sure your thyroid is working well. Check out the thyroid thread and support you adrenals.

I would get your HCP to do a full thyroid panel TSH is actually not a good indicator of much. You want T4,T3 and antibodies would be good good to check as well.

ithyroid.com
http://thyroid.about.com/cs/basicinf...a/keysites.htm
http://www.womentowomen.com/hypothyr...ywords=thyroid
http://www.stopthethyroidmadness.com/supplements/
Adrenals
http://www.womentowomen.com/adrenalfatigue/default.aspx
post #6 of 17
now that you are pregnant it is extremely important that you have your tsh levels tested right away. Once you are put on levothyroxine, which is for hypothyroid, you have to take it every day for the rest of your life. It needs to be adjusted as soon as you are pregnant. Your thyroid controls so many functions in your body. You really don't want to grow a baby with a half functioning body. It upsets me that your doctor didn't take the time out to explain your condition to you. Once you get back on your meds you will feel so much better. I take my medicine in the middle of the night when I get up to pee. Reason being, it is vital that you take this medicine on an empty stomach and then do not eat for at least an hour! You should talk to your pregnancy care provider about your condition and the confusion. It needs to be cleared up right away.
post #7 of 17
Quote:
Originally Posted by trekkingirl View Post
now that you are pregnant it is extremely important that you have your tsh levels tested right away. Once you are put on levothyroxine, which is for hypothyroid, you have to take it every day for the rest of your life. It needs to be adjusted as soon as you are pregnant. Your thyroid controls so many functions in your body. You really don't want to grow a baby with a half functioning body. It upsets me that your doctor didn't take the time out to explain your condition to you. Once you get back on your meds you will feel so much better. I take my medicine in the middle of the night when I get up to pee. Reason being, it is vital that you take this medicine on an empty stomach and then do not eat for at least an hour! You should talk to your pregnancy care provider about your condition and the confusion. It needs to be cleared up right away.
Totally agree. Can you see a ND they will easily do the right tests. You really need to get your antibodies checked to make sure you're not dealing with Hashimotos. Let us know If you have any more questions
post #8 of 17
Thread Starter 
thank you all so much for responding. I am totally freaking out right now. i am really angry at my doctor for not explaining anything to me. i had no idea that i would need to be on medication for the rest of my life, that this was a chronic condition. i tried calling this morning but they are not open today because of the 4th of july.

i am seriously freaking out. is my baby okay? i really wish they had explained it to me. i feel so scared right now.
post #9 of 17
All due respect to PP, but your TSH level was only very, very slightly elevated, and some doctors would consider it to be within the normal range. So yes, you do need to deal with this immediately, and yes, it could have caused some problems, but NO, you should not be making yourself sick with worry. It is very likely that no permanent damage has been done.
post #10 of 17
Quote:
Originally Posted by babybirkel View Post
thank you all so much for responding. I am totally freaking out right now. i am really angry at my doctor for not explaining anything to me. i had no idea that i would need to be on medication for the rest of my life, that this was a chronic condition. i tried calling this morning but they are not open today because of the 4th of july.

i am seriously freaking out. is my baby okay? i really wish they had explained it to me. i feel so scared right now.
I want to add that You may not have to be on meds the rest of your life. Some people yes but not everyone. I believe Tanya on here was hypothyroid but she got back to normal range by fixing a few things with diet and supps I *think*. Also at 4 months PP my TSH was at a 48 very hypo I went on Armour than naturthroid for about 7 months then I swung into hyper(quit meds) and now I'm "normal". I don't take any meds for my thyroid now. Don't freak just try to get some blood done asap (please full thyroid panel tho) and see where you are. Stress is bad for you,baby,and thyroid and especially adrenals Keep us posted
post #11 of 17
I'm so sorry, I didn't mean to scare you. I just had my meds adjusted the other day and my due date is right behind yours. Feb 3rd. You are in the right time frame of your pregnancy to be adressing this. Don't worry, your baby is doing great. As far as PP I was told by my doctor when I was diagnosed that I need to be on my meds for the rest of my life. Maybe that isn't the same for everyone with hypothyroid, I just assumed it was. My hypothyroid was caused by my alopecia, so maybe I am a special circumstance. When I was originally diagnosed, my TSH was a 9.6 I think. I was on 100mcg of synthroid (levothyroxine) and was back to normal range. When I just had my levels checked I was back up to a 6.8 and I was still taking 100mcg. Now I take 150mcg 4 days a week and 100mcg 3 days a week. So they didn't increase my dose by much.
post #12 of 17
Quote:
Originally Posted by trekkingirl View Post
I'm so sorry, I didn't mean to scare you. I just had my meds adjusted the other day and my due date is right behind yours. Feb 3rd. You are in the right time frame of your pregnancy to be adressing this. Don't worry, your baby is doing great. As far as PP I was told by my doctor when I was diagnosed that I need to be on my meds for the rest of my life. Maybe that isn't the same for everyone with hypothyroid, I just assumed it was. My hypothyroid was caused by my alopecia, so maybe I am a special circumstance. When I was originally diagnosed, my TSH was a 9.6 I think. I was on 100mcg of synthroid (levothyroxine) and was back to normal range. When I just had my levels checked I was back up to a 6.8 and I was still taking 100mcg. Now I take 150mcg 4 days a week and 100mcg 3 days a week. So they didn't increase my dose by much.
Are you addressing you adrenals? I jsut think it's so important to support adrenals, always, but especially with thyroid issues. At first my ND wasn't doing any adrenal support when I was on meds and that really hurt my adrenals. The meds are hard on the adrenals and eventually you will notice this If not already. Being pregnant is also extra work for adrenals which I'm sure you know
post #13 of 17
Quote:
Originally Posted by mom61508 View Post
Are you addressing you adrenals? I jsut think it's so important to support adrenals, always, but especially with thyroid issues. At first my ND wasn't doing any adrenal support when I was on meds and that really hurt my adrenals. The meds are hard on the adrenals and eventually you will notice this If not already. Being pregnant is also extra work for adrenals which I'm sure you know
Actually I don't even know what adrenals are. My MD didn't mention this. Sorry to highjack this thread! But can you fill me in?
post #14 of 17
Quote:
Originally Posted by trekkingirl View Post
Actually I don't even know what adrenals are. My MD didn't mention this. Sorry to highjack this thread! But can you fill me in?
They're glands which "sit" on top of the kidneys and produce many of the hormones required by the body, including but not limited to cortisol, epinephrine, and some amount of "sex" hormones. On all of the thyroid med inserts I've seen, it states that anyone taking them should be tested for adrenal function, but MDs seem to just skip over that for some reason. Without adequate amounts of adrenal hormones, thyroid hormones aren't as available as they need to be- leaving the patient feeling terrible despite "normal" bloodwork.
post #15 of 17
Quote:
Originally Posted by JacquelineR View Post
They're glands which "sit" on top of the kidneys and produce many of the hormones required by the body, including but not limited to cortisol, epinephrine, and some amount of "sex" hormones. On all of the thyroid med inserts I've seen, it states that anyone taking them should be tested for adrenal function, but MDs seem to just skip over that for some reason. Without adequate amounts of adrenal hormones, thyroid hormones aren't as available as they need to be- leaving the patient feeling terrible despite "normal" bloodwork.
And that is a better explanation then I could have given

Trekkingirl- In post 5 there's a link to adrenal info.
post #16 of 17
thanks, I'll ask my doc about that.
post #17 of 17
Quote:
Originally Posted by trekkingirl View Post
thanks, I'll ask my doc about that.
Just a FYI If you're seeing a mainstream HCp they normally don't recognize adrenal fatigue as an issue. He/She may look at you like you have 3 heads
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