Connor is ON THE GROWTH CHARTS!!! 
He saw the geneticist today for his yearly appt, and he is now officially on the 3rd% for BOTH height and weight! I think the last time that he was on the charts for both was when he was 6 months old
His head circumference is still hanging out around 50-60%, where it's been all along. That is normal with his syndrome.
It is common in his syndrome for significant "catch-up" growth to occur around age 4-5, and most 22q kids will be "on the small side of normal" (which means 10-25%) around Kindergarten age. So he has a ways to go still, but he's finally making progress!
Something else that I got a good laugh at during the appt is that Connor was a chatter-box, talking up a STORM to anyone who would listen. About 90% of it was unintelligible to most people, but the head Dr was understanding probably more than 50%. I said "it's rare that anyone else understands him" the Dr said "well, I'm getting pretty good at interpreting 22q speak by now!" That also is very common in 22q, their speech is often unintelligible to strangers until age 8-9 or so. (which is why we'll continue to use ASL and sim-com everything)
It seems that Connor is the poster-child for his syndrome right now, doing everything expected of him. Apparently he finally "read the book" and decided to be "typical" of his diagnosis!
He saw the geneticist today for his yearly appt, and he is now officially on the 3rd% for BOTH height and weight! I think the last time that he was on the charts for both was when he was 6 months old
His head circumference is still hanging out around 50-60%, where it's been all along. That is normal with his syndrome.
It is common in his syndrome for significant "catch-up" growth to occur around age 4-5, and most 22q kids will be "on the small side of normal" (which means 10-25%) around Kindergarten age. So he has a ways to go still, but he's finally making progress!
Something else that I got a good laugh at during the appt is that Connor was a chatter-box, talking up a STORM to anyone who would listen. About 90% of it was unintelligible to most people, but the head Dr was understanding probably more than 50%. I said "it's rare that anyone else understands him" the Dr said "well, I'm getting pretty good at interpreting 22q speak by now!"
That also is very common in 22q, their speech is often unintelligible to strangers until age 8-9 or so. (which is why we'll continue to use ASL and sim-com everything)It seems that Connor is the poster-child for his syndrome right now, doing everything expected of him. Apparently he finally "read the book" and decided to be "typical" of his diagnosis!
its a good feeling and definitely worth celebrating 
