I'm PAK, but I have a hands-free pumping bra, which has become my bff!
We're doing well on nursing, when we can and when I can get her awake enough.
Our schedule is every 3 hours, but skipping one at night by approval of the nutritionist (the schedule, with only getting an hour to hour and a half of sleep at a time, was just unsustainable). She gets to take the breast 3-4 times a day, and a bottle the other 3-4 times. She does oral feeding for 15 minutes, and then gets the rest of a feed in her ng tube. All the milk that goes in her bottles and through the tube is breastmilk, fortified with protein powder, to add protein and calories, both of which she needs for healing and growing. She gets too tired to nurse or drink from the bottle much longer than 12-15 minutes, and it burns too many calories that she needs to use otherwise. She's currently ramping up to 95ml/feed, then going up 5ml/feed each week. When it's a breastfeed first, I just have to estimate how much she's taking, based on how it feels and how long she nurses, and then our experience while we were in the hospital, with weighing her before and after nursing.
I'm pumping every feed, while she gets her tube feeding. I'm getting royally sick of pumping, but I'm going to be doing it for quite a while. I'll keep doing it, though, for a year, or whenever she stops needing it. But my hope is that she can be just nursing by six months. Pumping full-time sucks hardcore, and I'm getting blisters on one nipple (long story, convoluted cause). But so far, my supply is okay. We're using about 700ml/day of pumped milk (some gets wasted each day,) and I'm putting an additional 100-200ml (that's 3-6oz, approximately) into the freezer. If I weren't on meds, I'd donate through milkshare, eventually. I'm taking More Milk Special Blend, so that I can keep up with her increasing feeding amounts, especially now that I'm going six hours at night between pumpings.
When we do nurse, we are using a nipple shield, because I have really short nipples, and she is super chompy. I used a nipple shield for the first few months with Cora, and she transitioned off just fine when her mouth was a bit bigger, so I expect a similar experience. And the OT/PT/lactation people keep giving me nipple shields when I lose one, so I have 3 scattered around the house, and I'm fine with using the shield as long as we need it. Even a year, if that's what enables us to nurse.
Other than that, though, she's a champion (considering her issues) nurser, and I'm so proud of her. When we side-lie nurse, and she starts out awake, she'll nurse really well for a good 15-20 minutes before she pulls off, and tries to cuddle her face up to my breast (which, because the nipple part of the nipple shield is kinda stiff, results in it poking her in the nose, and my laughing my butt off at her.)
Well, that's our teal deer. I'm glad nursing is going so well for the majority of us (I do include myself in that category), and hope it gets better for those struggling.
Oh, I'm also using APNO (All-Purpose Nipple Ointment), prescribed by the OB, to help with the blisters and scaring away the possible thrush that's threatening to be an issue, both on the left side. If you have trouble, especially if you aren't sure of the cause (thrush/yeast, sores, cracks, etc) I totally recommend it. It has an antifungal, antibiotic, and mild steroid, so it really is All-Purpose. You may have trouble finding a pharmacy that makes it, but a hospital pharmacy should. It was Dr. Jack Newman, a leading breastfeeding expert, who came up with it, and it's marvelous stuff.