Hi 
So I am mom to Charlie (speech delay, caused by fluid in ears). He has been in speech for a yr now. He has made some good progress. He has learned to make many sounds he couldn't hit before like f. He is still missing a lot like S, CH etc. He seems to have learned how to use his mouth and throat and tongue better. He is drooling a lot less.
We have new insurance. Private insurance instead of state. So I am on the search for a new ped (the last one sucked) and hopefully some new answers. I am not convinced that the fluid in the ears is the beginning and the end of Charlie issues. He has some other things that just confuse me. He seems to have poor memory, sometimes. For instance the only word he has been able to write ever is HO, HO, HO. He picked this up at Christmas. Then he lost it. Last week he couldn't identify the letter H at all. Or one day he can count to 13 and then for 3 days he doesn't know anything past 5. I have been trying to come up with ways to teach him letters. I have been using A Beka felt letters, shapes, numbers so it is tactile. He has his shapes down. He forgets what he wants to say a lot. He grabs his forehead and scrunches his face. I feel so sad for him. He is struggling so hard to find what it was in his head.
He has areas he excels in. He just did indoor soccer for the first time. He was amazing! This little boy who has always had poor balance would just lock on that ball and make goal after goal. I did notice that he was doing a lot of hand stemming while playing soccer. He has this thing he does with his fingers. He kind of straightens some of them and rubs...hard to explain.
He is a really funny, mischievous, awesome kid. He is really deep emotionally. He talks a lot about when he becomes a dad. And he loves doing nice things for his siblings. I would say his emotional intelligence is beyond his age level. Recently while running my hands thru his hair I said absentmindedly he must be very smart (because of his super large head). He asked me if I was talking to his 6 yr old brother (who is way above average academically). It broke my heart. He tells me that everyone else in the house is smarter than him except the baby.
Anyway I am reknewing my energy to push for a diagnoses. I have a lot on my plate and I get discouraged with DR's and jumping thru hoops for referrals, etc.
I am wondering if anyone can give me any ideas of what way to head? The Dr's just want to talk ears. I think he should be genetically screened and or screened for autism. .....
So I am mom to Charlie (speech delay, caused by fluid in ears). He has been in speech for a yr now. He has made some good progress. He has learned to make many sounds he couldn't hit before like f. He is still missing a lot like S, CH etc. He seems to have learned how to use his mouth and throat and tongue better. He is drooling a lot less.
We have new insurance. Private insurance instead of state. So I am on the search for a new ped (the last one sucked) and hopefully some new answers. I am not convinced that the fluid in the ears is the beginning and the end of Charlie issues. He has some other things that just confuse me. He seems to have poor memory, sometimes. For instance the only word he has been able to write ever is HO, HO, HO. He picked this up at Christmas. Then he lost it. Last week he couldn't identify the letter H at all. Or one day he can count to 13 and then for 3 days he doesn't know anything past 5. I have been trying to come up with ways to teach him letters. I have been using A Beka felt letters, shapes, numbers so it is tactile. He has his shapes down. He forgets what he wants to say a lot. He grabs his forehead and scrunches his face. I feel so sad for him. He is struggling so hard to find what it was in his head.
He has areas he excels in. He just did indoor soccer for the first time. He was amazing! This little boy who has always had poor balance would just lock on that ball and make goal after goal. I did notice that he was doing a lot of hand stemming while playing soccer. He has this thing he does with his fingers. He kind of straightens some of them and rubs...hard to explain.
He is a really funny, mischievous, awesome kid. He is really deep emotionally. He talks a lot about when he becomes a dad. And he loves doing nice things for his siblings. I would say his emotional intelligence is beyond his age level. Recently while running my hands thru his hair I said absentmindedly he must be very smart (because of his super large head). He asked me if I was talking to his 6 yr old brother (who is way above average academically). It broke my heart. He tells me that everyone else in the house is smarter than him except the baby.
Anyway I am reknewing my energy to push for a diagnoses. I have a lot on my plate and I get discouraged with DR's and jumping thru hoops for referrals, etc.
I am wondering if anyone can give me any ideas of what way to head? The Dr's just want to talk ears. I think he should be genetically screened and or screened for autism. .....
My son is also so sensitive. I would drop the academics honestly. He needs to feel good about himself in that area above all and clearly he doesn't. Figure out what's going on first and just focus on his strengths and wonderfulness over-time with him. Make him feel successful. Let him know that sometimes people struggle to learn certain things and have to work harder because their brain works differently but they are still just as smart as anyone else. Build him up. How old is he? However old he doesn't need to learn the letter and related things now. Figure out what's going on first.
He is better at I Spy books than his brother who gets easily distracted by all the stuff. He is so sweet we just melt a lot and he is the recipient of lots of cuddles. 
