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Dear Family....

post #1 of 15
Thread Starter 
Dear Family,
I know we just spent two weeks together at a family reunion and I did have a good time, but there are a few things I'd like to get off my chest.

1. To the people who think my kid is "normal". While I'm tickled to death that he's made so much progress that he seems typical, please don't disregard his hard work and all the time and energy we have spent. It isn't because "Doctor these days just want to slap a label on kids" or because "that's how the schools get their money from the government". The kid has some real challenges, but, yay, he's a great kid.

2. No, he doesn't act "that way" because we are too strict or too laid back, depends on who you talk to. We pick our battles because he is the person he is and his dad and I have a sixth sense for when we need to step in and when we need to let it slide. Don't second guess my parenting.

3. "If he was my kid...." Take him for a week and we'll talk. Yes, I heard what you said, did you really think my sister wouldn't tell me? You don't have kids. Since your dogs aren't house broken, bark constantly, bite, and you brought them even after being asked to leave them home, it's probably good you don't have kids.

4. We aren't mean. He doesn't eat certain foods because he is ALLERGIC to them! He's cool with it, why aren't you?

5. Yes, he is loud, he talks a lot, he runs around, and he eats a lot. He likes to pee outside, forgets to knock and close the door, and he hates to wash his hands. He picks up dead bugs and then eats food without washing his hands. He suffers from BCS, otherwise known as Being a Child Syndrome. Darling BIL, he's an eight year old boy, they are disgusting, that is what they do.

6. To the arm chair developmental pediatricians, just because you read an article or saw a movie on the Lifetime channel, you are not qualified to treat or diagnosis my child. Seriously, if he's baffled professionals, what make you think you can diagnosis him? Do you really think I haven't heard of or researched any of diagnosis you are talking about? And yes, we have heard of and/or tried GFCF diet, HBOT, chiropractor, chelation, ABA, Jenny McCarthy, dye/preservative free diet, DIR, Floor time, hippo therapy, music therapy, martial arts, art therapy, and spanking (not a therapy or treatment).

Sincerely,
Me

PS Mom, thanks for saying "He's a wonderful kid and you've done an amazing job with him."
post #2 of 15
Oooh, I can so, so, soooooo understand your frustration!!! (I just postet a vent myself. ) Big, big hugs to you!!!
post #3 of 15
You really laid it out here. This should be required reading for families and friends! It's good your mom gets it. Hope you can do something nice for yourself. Take care mama!
post #4 of 15
this is fantasic!! - though i'm sorry you have to deal with crap like this . sounds like you are a solid, caring, knowledgeable mama, and have a typical family - i.e., one that simply can't help but SUGGEST this, that, and the other. hope you're back home, and able to really just let these people's voices take a place somewhere they belong - like the garbage. or the mdc special needs page
post #5 of 15


I could have written parts of this. I say forward it to the family. They really should read it.
post #6 of 15
I can't imagine spending 2 WHOLE WEEKS with my family! My letter to them would be kinda like this, but 7k times more annoyed.
post #7 of 15
Thread Starter 
Thanks, most of my family is really great (I'm one of six kids). My son is the youngest grandkid by 12 years, so it's partly that some of them have forgotten what kids are like.

When DS was 3 or 4, terribly shy, extremely hyperactive and wasn't very verbal, most of my family was very supportive. Oddly, it's now that he is mostly typical that they are critical and most of what they are critical of are really typical behaviors (manners, whining, not washing his hands etc). The other complaints were about our parenting choices like homeschooling and that he's on a dye free, preservative free, milk free and gluten/corn limited diet (mostly due to allergies).

We have, at last count, 4 or 5 different diagnosis for him. He's a very smart, very active, introverted kid with some mild sensory issues and mild social, some big focus issues and he;s gifted. He's a hard kid to pin down.

The two of the most critical people are child free, so I usually just say, "I was a perfect parent until I gave birth, but my imaginary kids are doing great!"

The other person who criticized was an older sister and I think she's just in a lot emotional pain. At 3 or 4, her daughter was a lot like DS at that age. She did very little to help her daughter and trusted that the school and the experts would. Now, my niece is 21, lives at home, doesn't work or go to school, rages at her mom night and day, and still my sister will do nothing.
When I look at my niece, I see what I will do my best to make sure DS doesn't become. I'm sure my sister knows that, not that I have ever said so.
post #8 of 15
Ah, so familiar. At our last visit home my Mom and MIL were chatting about how kids with special needs are so hard on families. I said, "Yep. Between the twins and DS1 we are almost garanteed to divorce." My Mom was protesting about him being special needs and finally I explained that the 10+ professionals that see him on a weekly or monthly basis all disagree with her!

But it was nice to know that he is doing well enough to be considered "normal" to a lot of our family (well, except the allergies, quirkiness, loudness, lack of manners, . . . . . sigh!).
post #9 of 15
Well said! Please tell me you sent it.
post #10 of 15
I hear you Family can freak me out! Give your mom a hug for me. I love her!
post #11 of 15
Everyone has an opinion, don't they? And it usually seems to be the ones with no kids or those who have only easy going typcial kids who have the most opinions!! I have said before that if all my kids were like DS2 (easy going typical kid who is athletic and smart - a lucky kid), I could pat myself on the back for being a "great parent" too like some of these people seem to do. Somethings not right with the kid - its got to be the parents, right???

What people don't realize is that my parenting skills are much more needed and developed b/c of my non-typical kid and my ADHD kid. Oh how I would love to send them home with some of my relatives for a few weeks and see what they had to say then!

I especially love the sentences that start with "You need to..." or "Don't take this the wrong way but..." UGggh! Even the most well-informed just don't understand what it is like day to day EVERY day!!
post #12 of 15

Seriously.awesome.post.

LOVE IT!
post #13 of 15
Quote:
Originally Posted by kme View Post
Everyone has an opinion, don't they? And it usually seems to be the ones with no kids or those who have only easy going typcial kids who have the most opinions!! I have said before that if all my kids were like DS2 (easy going typical kid who is athletic and smart - a lucky kid), I could pat myself on the back for being a "great parent" too like some of these people seem to do. Somethings not right with the kid - its got to be the parents, right???
Exactly. Two children, same gene pool, same parents, but somehow it's our parenting that causes #1's behavior issues while #2 displays more "acceptable" behavior. Our immediate family is supportive, it's everyone else...
post #14 of 15
Quote:
Originally Posted by NightOwlwithowlet View Post
Dear Family,
I know we just spent two weeks together at a family reunion and I did have a good time, but there are a few things I'd like to get off my chest.

1. To the people who think my kid is "normal". While I'm tickled to death that he's made so much progress that he seems typical, please don't disregard his hard work and all the time and energy we have spent. It isn't because "Doctor these days just want to slap a label on kids" or because "that's how the schools get their money from the government". The kid has some real challenges, but, yay, he's a great kid.

2. No, he doesn't act "that way" because we are too strict or too laid back, depends on who you talk to. We pick our battles because he is the person he is and his dad and I have a sixth sense for when we need to step in and when we need to let it slide. Don't second guess my parenting.

3. "If he was my kid...." Take him for a week and we'll talk. Yes, I heard what you said, did you really think my sister wouldn't tell me? You don't have kids. Since your dogs aren't house broken, bark constantly, bite, and you brought them even after being asked to leave them home, it's probably good you don't have kids.

4. We aren't mean. He doesn't eat certain foods because he is ALLERGIC to them! He's cool with it, why aren't you?

5. Yes, he is loud, he talks a lot, he runs around, and he eats a lot. He likes to pee outside, forgets to knock and close the door, and he hates to wash his hands. He picks up dead bugs and then eats food without washing his hands. He suffers from BCS, otherwise known as Being a Child Syndrome. Darling BIL, he's an eight year old boy, they are disgusting, that is what they do.

6. To the arm chair developmental pediatricians, just because you read an article or saw a movie on the Lifetime channel, you are not qualified to treat or diagnosis my child. Seriously, if he's baffled professionals, what make you think you can diagnosis him? Do you really think I haven't heard of or researched any of diagnosis you are talking about? And yes, we have heard of and/or tried GFCF diet, HBOT, chiropractor, chelation, ABA, Jenny McCarthy, dye/preservative free diet, DIR, Floor time, hippo therapy, music therapy, martial arts, art therapy, and spanking (not a therapy or treatment).

Sincerely,
Me

PS Mom, thanks for saying "He's a wonderful kid and you've done an amazing job with him."
I could write this same letter, substituting other things for #5, so I get it!
post #15 of 15
Ahh, family! It's great that your mom is supportive though!
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