heres the story so far, I have had a really hard time bfing all 3 of my girls, I thought my first was tongue tied asked her ped he said no, I dropped it and quit ebfing at a few weeks and all together at 6 mo, my 2nd not nearly as bad but I had a hard time clicking pain reflux refusing the breast but managed til 15 mo, now my 3rd suspected her tongue tied also had all the same problems clicking, not putting tongue over bottom gums, chomping, white compression lines with vasospasms, only swallowing during letdowns, poor weight gain from poor milk transfer, so I got new ped and took her in the ped said she saw a tie that was stopping her from lifting her tongue all the way up (she can put it out to her lip) it looks like a very slight very tight tie all the way in the back, I went to an ent he said there was no tie, so I told him to look again he did said he saw it but it was too insignificant to cut that the only answer would be frenuloplasty under general anesthesia to add length to her tongue!!! Got a second opinion with another ent he said there was nothing there and drew a stupid picture for me and basically said its not a tongue tie if it doesn't connect to the tip of the tongue, told me to pump and give her bottles, said I have nothing better to do anyways, and that a tongue tie also doesn't cause speech problems (regarding my 2 yo who has an obvious tight frenulum and doesnt' talk yet). I have an appt for CST next week (which would be covered by insurance if the ped would have given me a referral but they refused calling it alternative therapy and they don't recommend it in pediatrics
) So basically I think she has a very slight tongue tie but don't think I'll ever find anyone to cut it, we are broke and I have already spent a ton in copays and such trying to find someone to do it. I have talked to a bunch of lc's went to lll meetings tried all kinds of latching techniques and positions although I haven't asked anyone about the palate yet I just noticed it yesterday (but I will be calling to see someone monday). It is like if the roof of her mouth were clay and I pushed my thumb in to make an imprint, and as for sucking, if I stick my finger in she pulls it into that groove and chomps away with her tongue pulled back but if I push my finger far back past the imprint in the palate she starts to suckle correctly. I know my goal is to get as much breast into her mouth to reach that spot that triggers sucking but I can't seem to get there, Im hoping the CST will help loosen up her jaw enough to get a deeper latch to get there and hopefully she will eventually grow into the palate if thats what it is which brings me to my other question: I know I've heard that once the tongue is cut the palate starts to correct itself but what if the tongue is never cut is it still possible for the palate to correct itself or whatever happens that makes it better later on? I desperately want to keep her ebf but have as of today started pumping after 2 feedings a day and cup feeding to get her some hindmilk as the last week all her diapers have been green where as before as long as I block fed long enough they would stay yellow now it doesn't matter how long i do on each side. I also refuse to give her a bottle since thats what happened with my first and it was awful and she loved it and started hating breastfeeding because of the flow difference. Thanks for any help I can get
