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What our Peds GI doctor said...

post #1 of 8
Thread Starter 
Ovi is going to be 4 in a month. He is dairy and tree nut allergic, and we suspect shellfish as well. He has consistently gained weight except for when I was PG with DS2 and had no milk (he still nurses what I guesstimate to be about 16 ounces a day.) However, he is short, skinny, pale, iron-deficient, and slow to grow hair (I cut his brothers two times for his ever once.) He has loose bowel movements all the time. Cutting back on fruit (very hard to do), adding kombucha, using a digestive enzyme... these things seem to maybe help somewhat.

He had an issue over the past year of rectal bleeding, and when it got bad enough that there was blood dripping into the toilet, even though we were at the end of a 5 month gluten elimination period, we added it back in to get ready for a celiac blood test. We also did the Entero Labs test. We also made an appointment with a Peds GI doc.

The EnteroLabs test reported that he does have heightened anti-gliadin IgA and elevated anti-tissue transglutaminase IgA as well. He did not appear to be malabsorbing, however.

The blood test revealed nothing, except for that he is more anemic than he was a year ago.

Now to the point: the Peds GI said that the bleeding is probably due to fissures (I agree) which are likely caused by the chunks of undigested food in his stool passing through his system too quickly (I also agree.) But he then said that this is "completely normal." He seemed especially encouraged by the fact that Ovi has only 1 bowel movement a day. He said that Ovi probably just has intestines that have "rapid transit time" and that it is easier to see undigested food because the stool is so loose.

He said he absolutely positively does not have celiac disease, and that he probably isn't gluten sensitive either.

Advice? We are on gluten, mainly because my biggest problem with Ovi and food right now that the bleeding has stopped is getting him to eat anything other than fruit. He used to show signs of being a little salicylate sensitive, so I hate feeding him fruit. But it seems better than not feeding him anything.
post #2 of 8
Has he had a colonoscopy?
post #3 of 8
Thread Starter 
It would be an endoscopy that he would need, and no, we haven't done that. The blood draws have been traumatic enough... we agreed that we would go down that road if his symptoms ever get worse.
post #4 of 8
What type of digestive enzyme did you use? It's been interesting to watch that several people here have tried some with pancreatin, some of whom have tried fruit/vegetable-based ones, and had better results. I'm giving my kids digestive enzymes now and both have gained quite a bit of weight, and they weren't small kids to begin with.

Just based on my reading of the various ways gluten can do strange things digestively, I'd tend to think taking it out when you're trying to problem-solve digestive issues is prudent. Especially for more complicated problems, it takes doing A and B and C in order to see results; of course that makes it far, far harder to figure out what's going on though. I've heard one or two of the GF breads are pretty good, I think someone recommended Udi's and if the bread is as like real bread as the cinnamon rolls are like real cinnamon rolls, then it's pretty good.

Have you seen the thread in H&H about cell salts? That's another thing to consider if your son is okay with lactose (or there are lactose-free cell salts around, they're more expensive and harder to get, but they exist). I've seen good results in myself and my daughter with them. They're supposed to improve the absorption and utilization of nutrients and they seem to work.
post #5 of 8
Someone was telling me the other day that their ped GI told them that really the celiac tests aren't conclusive until the age of 12. I had not heard this exact cut off point before, but it makes sense to me that someone can have the genetic predisposition to the disease, and could be better off GF, yet not have the clinical markers as in the blood test or endoscopy results yet. But that after eating gluten for a time, or having something that stresses the system, like a virus or bacteria, that then the clinical markers would appear. Just thinking out loud there. I would consider doing the cheek swab DNA test for it. Or consider also testing you and your DH.

Tanya, which enzyme are you using? We tried one of the Houston enzymes some time ago, but it gave my DS painful stomach cramps. I'd like to try again, though. I'm not sure which one we did, but it may have been one of the ones that is a bit more constipating.
post #6 of 8
I'm giving the kids Amy Yasko's special digestive enzymes, whoMe is using a dig enzyme with pancreatin from vitacost, I think. Several people have had to start slow--I've even seen changes in DS's poop and his digestion has been fairly robust (but I guess the rounds of ALA did stir up enough metals to allow some weird bacteria/yeast/something to overgrow).
post #7 of 8
At that age I think anti-gliadin antibodies are pretty telling. I would go that route.
post #8 of 8
Thread Starter 
The naturopath gave us "Vital-Zymes Chewable" by Klaire Labs.

I have not head about cell salts. I will look into them.

It makes sense to me that celiac markers might not show until later down the road, too.

I just wish I felt confident that doing GF in a serious way was the way to go... I am quite at ease with preparing GF foods for us in our own house... but the difficulties start with DH wanting gluten-containing foods in the house and get trickier as we look at preschool and playgroups and playgrounds and eating out and grandma's house... it's not easy (yet?) for me in those contexts. I feel that I have to be really really sure that it is the right thing to do or we won't stick with it.
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