On Wednesday my 10 month old DD was hospitalized with what I believe was an extremely severe FPIES reaction. Her big brother gave her a pumpkin pancake made from a Trader Joe's mix, which she scarfed down around 11 am. Around 1:30 (I was upstairs working, she was downstairs with her brother and grandmother) she began projectile vomiting. She then kept heaving and vomiting bile every 10 minutes or so. She was white as a sheet, her lips were white, she was cold and clammy and becoming unresponsive. She was in the ER by 2:15 and they took her right away and began an IV, which we were lucky to get as she was already extremely dehydrated. Her bicarb, a lab value that shows dehydration and should be a miniumum of 24, was 13. She was in shock. She fell asleep after they started the IV and when she woke up an hour later, she was much better, but then she started having diarrhea. They admitted her for IV fluids and observation. THey told me she had rotavirus, which was later ruled out from a stool sample. We went home late Thursday. They wanted to run an allergy panel on her but could not, because they could barely get enough blood from her to run a BMP. THey still insist it was some kind of stomach bug, but I know it wasn't. They do admit they are puzzled as to how she could have a bicarb of 13 in less than an hour. But from what I have read, this is exactly what severe FPIES reactions can do, cause rapid dehydration and shock.
So now I am left wondering what she reacted to in the pancake. These are the ingredients: Flour, sugar, dehydrated cane juice, baking powder, cornstarch, dehydrated pumpkin flakes, dehydrated ground pumpkin, salt, buttermilk powder, vanilla flavor, cinnamon, pumpkin spice flavor, ginger, allspice, nutmeg, and beta carotene for color. To it i added almond milk, butter, and 1 egg. It says made on equipment shared with eggs and peanuts.
She had nothing but breast milk for her first 7+ months of life. Never a drop of formula. No vaccines. Her first food was egg yolk, a la WAPF. SHe was fine with it 3x, then the 4th time she vomited twice 4+ hours after ingestion, but it wasn't an episode like the one this past week. It was just 2 big pukes then nothing, and no diarrhea. She has done well on banana, pear, peach, avocado, cheddar cheese, yogurt, mango, cherries, green smoothies of spinach, mango, and pineapple. SHe has never reacted to anything in my diet except for a question of some random hives that may or may not have been related to me eating peanuts. She will be getting an allergy panel done soon, we have the order for the lab from the doc, just want to wait because she is still traumatized from the blood draws in the hospital. She has no history of eczema, weird poops, colic, etc.
I am just terrified to feed her solids now. From another board I am on they say her reaction was likely to either the eggs or the pumpkin (winter squash, a known FPIES trigger) in the pancakes. I just feel so helpless and scared and ANGRY, because I try so hard to do everything for her to be healthy and yet, here we are. Meanwhile others like my sister feed their 2 month olds Cheetos and Sour Patch Kids and Nesquick Strawberry and their kids have no problems whatsoever. It's not fair!!
So now I am left wondering what she reacted to in the pancake. These are the ingredients: Flour, sugar, dehydrated cane juice, baking powder, cornstarch, dehydrated pumpkin flakes, dehydrated ground pumpkin, salt, buttermilk powder, vanilla flavor, cinnamon, pumpkin spice flavor, ginger, allspice, nutmeg, and beta carotene for color. To it i added almond milk, butter, and 1 egg. It says made on equipment shared with eggs and peanuts.
She had nothing but breast milk for her first 7+ months of life. Never a drop of formula. No vaccines. Her first food was egg yolk, a la WAPF. SHe was fine with it 3x, then the 4th time she vomited twice 4+ hours after ingestion, but it wasn't an episode like the one this past week. It was just 2 big pukes then nothing, and no diarrhea. She has done well on banana, pear, peach, avocado, cheddar cheese, yogurt, mango, cherries, green smoothies of spinach, mango, and pineapple. SHe has never reacted to anything in my diet except for a question of some random hives that may or may not have been related to me eating peanuts. She will be getting an allergy panel done soon, we have the order for the lab from the doc, just want to wait because she is still traumatized from the blood draws in the hospital. She has no history of eczema, weird poops, colic, etc.
I am just terrified to feed her solids now. From another board I am on they say her reaction was likely to either the eggs or the pumpkin (winter squash, a known FPIES trigger) in the pancakes. I just feel so helpless and scared and ANGRY, because I try so hard to do everything for her to be healthy and yet, here we are. Meanwhile others like my sister feed their 2 month olds Cheetos and Sour Patch Kids and Nesquick Strawberry and their kids have no problems whatsoever. It's not fair!!
Mama. FPIES is a tough one. I agree that the egg would be the first thing I would be looking at.
