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I am new with questions

post #1 of 2
Thread Starter 
Hi,
I have never posted on here before so bear with me.

My son is almost 3 (his b-day is in 5 days) his name is Brayden. He has had delays since he was born. He started in early intervention when he was 4 months old for feeding hterapy and physical therapy and started occupational therapy at 8 months he then started speech at 16 months.
His current diagnoises are, developmental coordination disorder, hypotonia,sensory processing disorder, tremmors. Until recently he was also dignosied with speech apraxia.
His doctor after seeing him last week made these changes. Speech apraxia they dont think he has this but rather has ataxia which is causing his speech issues. We thought he had pdd-nos because of his horrible social skills but instead they gave him a anxiety disorder, and the one that is throwing me for a loop is static encephalopathy. I didnt eve3n know what this was until i looked on goole (i got these new disorders in the mail on his current eval form neurology) Its says on line that it is a brain injury taht most likly occured before birth but wouldnt that show up on a mri. He had one done when he was 16 months old and it was normal.
He had a iep written up before whe had these new problems added so do I keep the iep he has which going to the early chilhood program 4 days a week from 845 to 1115 in the morning. He gets 90 min. of speech a week (he currently has annout 10 words but has made no progress form last year and is at a 14 month old level) he gets 60 min. of ot a week and is currently at about a 2 year old level. then they will work with him on his social skills, cognitive skills and behavior skills all of which are at about 2 year old level. He is not getting pt (they will only give pt to kids who are not walking here) He has very poor enderence and some low tone also but he has really learned how to get around this to a point. He wears suresteps smo the ones that go right above his ankles and these really help with him not falling and suck as much.
If anyone can give me there thoughts on if I need to change his iep and if any kiddos have the static encephalopathy and can tell me about it I am kinda freaking out over that one.
Just for the record I also have a 6 year old who has no problems
post #2 of 2
To be honest, the diagnosis shouldn't play a role. The IEP should address the issues that exist regardless of diagnosis. The system is designed that way from birth forward to account for all kinds of issues like getting access to specialists that CAN diagnose and avoiding kids being funneled into a "template" of services driven by a diagnosis vs. their actual needs (we had this problem with our son at times).

The other thing is that we found that our son's specialists used "Megalencephaly" (abnormally large head) as a diagnosis for the purposes of getting insurance reimbursement before he was 3yo because autism spectrum diagnoses were not accepted by the insurance companies. So that's a POSSIBLE reason for that. If the report doesn't give you any new information about the potential ramifications of that diagnosis, I would call and ask about this.

At the end of the day, your child's needs were assessed for the IEP regardless of diagnosis. Those needs haven't changed BECAUSE of the diagnosis. So I think I would leave the current plan in place and see how it works. JMO
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