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Just diagnosed with possible DW in utero at 18 weeks

post #1 of 6
Thread Starter 
I went in for my normal mid-pregnancy ultrasound and my doctor said that there was excess fluid in my baby boy’s brain that was putting pressure on the cerebellum. They said both hydrophelus and possible Dandy Walker syndrome. I am beyond petrified and I have to wait about 2 weeks for our fetal MRI. I have also done an amniocentesis although I suspect this will come out clean as I did testing for Downs and Trisomy 13 & 18 back around 11-12 weeks and everything was perfect. The amnio results should come back early next week. We have also already done a fetal echo and our baby’s heart is perfect. I’ve been trying to find out all the info I can about DW and it’s all so scary. Is there any hope that when we go to have the MRI that perhaps this fluid will have dissipated? Is that even possible? Also, it seems that DW Variant is the less severe form of DW. What if it isnt DW and its just hydrophelus. Anyone in that boat? I would appreciate any feedback anyone had as this is my first child and I am freaking out at this point. Thank you in advance for the feedback!
post #2 of 6
I have no idea, off to google now, but i couldn't read without sending hugs
post #3 of 6
This may be different, but when I had an ultrasound at about 18.5 weeks with #1 they found fluid pockets in his brain. I later read that this is common and that we saw them at all was due to having a slightly early US. I was military and it took 10 weeks to get that second US where ds looked fine.
post #4 of 6
I'm sorry you got such scary news. It's sort of like your world stops while everyone else continues to move around you. When I was 21ish weeks pregnant with my daughter she was diagnosed with spina bifida and hydrocephalus.

I only have a minute, but I wanted to say to remember to take care of yourself in this worrisome time. Pamper yourself and don't be afraid to ask for whatever you need to help you cope. I hope your follow-up offers you good news, but if it doesn't you won't be alone and you can handle it.
post #5 of 6
I don't have a lot of time, but wanted to offer you my support.

THIS is a search thread with a few good hits on DW in this forum.
post #6 of 6
I am new to the thread and was wondering the update? My baby boy was recently diagnosed and im looking for outcomes.
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