Muscle testing results... need advice on how to proceed to trial foods

[gigismom]

I had ds muscle tested on a number of foods and supps today. Here's the results

salmon (blood tested positive IgE 1 year ago to tilapia and has had ana reactions to tilapia in the past so we eliminated all fish) today tested good to salmon

egg (the blood test IgE we did in April came back positive to egg white but lower than the blood test we had a year ago. We have not had any eggs in over a year) He has had ana reaction to egg white in the past. today tested good to egg white and egg yolk

chocolate... skin prick 1 year ago positive used to get hives after eating chocolate, today tested good he has also been eating chocolate occasionally with no reactions the past month or so

feta cheese.... IgG test in April said he was intolerant to dairy, never had a positive IgE test to dairy (wait, is feta cow dairy or not?) anyway he passed on feta today

gluten free oatmeal... the ONLY grain we eat because I can't figure out what to give him for breakfast. He eats this every day with no apparent reaction (though his poops still aren't normal) Results today? big fat FAIL! So I guess we really are grain free from now on.

butter... pass today

tahini... weak pass, I suspected this and will avoid it for now. His IgE for cashews was really high.

She also tested him for dosing on his probiotic, digest gold and viracen and found that we can up the dose on the digest gold and viracen. Also tested dosing on a supp called Liver Life for detox support and found that he was weakened by anything over 2 drops but strengthened by 1 to 2 drops. Glad we checked that one for sure!

I really want to trial the egg yolk, egg white, salmon, feta, and butter. I also want to up his digest gold and viracen and introduce the Liver Life. I realize that this must be done SLOWLY. I think I want to try some of the foods first, I think in the order listed above. Maybe, however, I should increase his enzyme and viracen first (currently he takes 1/2 capsule each 1x per day and his doctor wants him to go up to 1/2 capsule each 2x per day... he tested good for this today). I really don't think he will react to the egg yolk because I am not sure he ever did. I want to separate it out though just to be more careful.

Now the questions...

Should I start with increasing his enzyme and viracen to 2x per day and adding in a drop of the Liver Life for detox support and then wait for die off to pass before trialing the foods?

Once I start trialing the foods, if I see no reaction to a particular food, how often should I give it to him and how long until I can be fairly certain he passed the trial before declaring it a pass?

Once it is passed, how long then to wait to try the next food in line?

How often should I keep giving a passed food to him so as not to re-sensitize him?

Thanks so much for thoughts!

Jen

[changingseasons]

That is really exciting, and we've also had amazing results with muscle testing.

But PLEASE tell me you're going to do at least a (IgE) skin test again before you trial these foods directly!! Especially with a history of anaphylaxis!!!!!

And I'm curious- did they test him directly, or through you (as a surrogate)?

[gigismom]

Originally Posted by changingseasons

That is really exciting, and we've also had amazing results with muscle testing.

But PLEASE tell me you're going to do at least a (IgE) skin test again before you trial these foods directly!! Especially with a history of anaphylaxis!!!!!

And I'm curious- did they test him directly, or through you (as a surrogate)?

i will test him again before we trial the egg white... the more i thought about it today the more i realized this was really the best way to go. the salmon i may try because even the allergist who we saw last year and his current doc said that salmon is different enough from tilapia that it should not be a problem. he also takes fermented clo daily with no problems. our chiro has just been so right on with finding allergies/intolerances with the muscle testing with ds and my girls. i was so thrilled by the results that i was ready to just jump in and try eating anything! while i am encouraged about his progress, i agree that we must still proceed with caution. thanks for confirmation of that. btw.. she tests him through me. i am always so astounded at the difference between a strong test and a weak test. amazing!

btw... never had the chance to congratulate you on your new babe coming in the spring! i wish you a healthy, peaceful and joyous pregnancy!

jen

[changingseasons]

Oh thanks!!

Yeah- I'm always really impressed with the strong and weak responses when they test DD through me. But I always have to wonder how much my own response is playing into it, kwim? Like if it's a big negative, is it bad for DD or bad for me, or both of us? I think that would be hard to tell. Probably much easy for a positive though.

That is really exciting that you're getting so many negatives to previously bad food. Keep us posted how it goes!!

[gigismom]

Originally Posted by changingseasons

Yeah- I'm always really impressed with the strong and weak responses when they test DD through me. But I always have to wonder how much my own response is playing into it, kwim? Like if it's a big negative, is it bad for DD or bad for me, or both of us? I think that would be hard to tell. Probably much easy for a positive though.

I've asked her about this in the past and again today. She said as long as she is holding the food or whatever is being tested by him and not by me (as in he is between me and the food being tested) then the results are clearly for him.

still wondering on the timing of introducing new foods. We have been avoiding all of his allergens for the past year or so while focusing on healing his and my gut. I have not ever felt ready to trial any new foods until now. I really want to try him on the feta cheese and salmon and maybe egg yolk. I am thinking to introduce the Liver Life and stay with just that change for a few days. Then increase the viracen and enzymes and watch for die off and wait another few days. Finally, try the cheese. How long after trying the food should I declare victory? How often should I give it during the trial period (daily?)? Once it has passed, how often to keep it in his diet to avoid resensitizing him to it? Keep in mind he was never IgE positive to dairy just IgG; we have been avoiding it since last fall because he failed it on muscle testing then. I just looked up feta and realize (though I knew this all along just briefly forgot ) that feta is made from sheeps' milk.

thanks again for your ideas ladies!

jen

[changingseasons]

Regular store-bought feta is sheep's milk? I didn't know that either!

I personally would probably only do one or two new foods per month, but that's just based on our experience with trialing. We've done trials for 4-5 days, everything was fine, then eaten the food a week later and ended up with hives. So I guess really for use we need 2 separated trials- try the food for a week, stop for a week, try again.

Originally Posted by gigismom

I've asked her about this in the past and again today. She said as long as she is holding the food or whatever is being tested by him and not by me (as in he is between me and the food being tested) then the results are clearly for him.

Ok, that's really interesting because when I've been the surrogate for DD (with 2 different practitioners), it's ME that is holding the vial, and DD is sitting on me, or next to me with my arm around her. I guess with my arm around her, she would be between the main part of my body and the food (even though I'm touching it with my hand... ). hmmm.

And you know what? According to the NAET protocol, you're not even supposed to have anyone else in the room during treatment (except the surrogate, and they must have skin-to-skin contact) because their energy will mix(?) with the person being tested/treated, so it won't be as accurate. So how, if energy is all mixing together, can you get a clear response for only the child but not the surrogate? I'm going to have to ask about this more at our next appointment. Interesting stuff.

[mamafish9]

Several fairly unrelated responses:

1) Feta can be cow dairy - no idea what she tested with, but I think most store feta is cow dairy. I make feta from our raw cow's milk.

2) Same answer as before, I wouldn't up the viracen or start liver life until you're getting daily poops - how is that part going? Not pooping could also be a food reaction, so it may be that eliminating the oatmeal will get him pooping, for example.

3) I'd be terrified to try egg with a previous ana reaction. Can you do a challenge in the allergist's office? I wouldn't try even egg yolk without an epi pen and emergency room or dr within 10 feet, it's impossible to get all the egg white off the egg yolk, and even a little bit could cause an ana reaction. I really hope your chiro is right, that would be wonderful - but I'd be super careful for that trial.

4) Getting back butter and salmon would be awesome, yummy and really nutritious. I hope it works!!

[gigismom]

Originally Posted by changingseasons

Regular store-bought feta is sheep's milk? I didn't know that either!

I personally would probably only do one or two new foods per month, but that's just based on our experience with trialing. We've done trials for 4-5 days, everything was fine, then eaten the food a week later and ended up with hives. So I guess really for use we need 2 separated trials- try the food for a week, stop for a week, try again.



Ok, that's really interesting because when I've been the surrogate for DD (with 2 different practitioners), it's ME that is holding the vial, and DD is sitting on me, or next to me with my arm around her. I guess with my arm around her, she would be between the main part of my body and the food (even though I'm touching it with my hand... ). hmmm.

And you know what? According to the NAET protocol, you're not even supposed to have anyone else in the room during treatment (except the surrogate, and they must have skin-to-skin contact) because their energy will mix(?) with the person being tested/treated, so it won't be as accurate. So how, if energy is all mixing together, can you get a clear response for only the child but not the surrogate? I'm going to have to ask about this more at our next appointment. Interesting stuff.

'

thanks for the info on timing the trials... that sounds reasonable to me. dh bought the feta for our restaurant at a restaurant supply outlet-type store. He swears that it is sheeps' milk but will look at the container today when he gets to the store. He just brings some home for himself in a smaller container so we don't have the label at home.

Originally Posted by mamafish9

Several fairly unrelated responses:

1) Feta can be cow dairy - no idea what she tested with, but I think most store feta is cow dairy. I make feta from our raw cow's milk.

2) Same answer as before, I wouldn't up the viracen or start liver life until you're getting daily poops - how is that part going? Not pooping could also be a food reaction, so it may be that eliminating the oatmeal will get him pooping, for example.

3) I'd be terrified to try egg with a previous ana reaction. Can you do a challenge in the allergist's office? I wouldn't try even egg yolk without an epi pen and emergency room or dr within 10 feet, it's impossible to get all the egg white off the egg yolk, and even a little bit could cause an ana reaction. I really hope your chiro is right, that would be wonderful - but I'd be super careful for that trial.

4) Getting back butter and salmon would be awesome, yummy and really nutritious. I hope it works!!

pooping.... he's back to 4 to 5 days again. I totally hear you about the need for him to have frequent bm before we start any die off in order to get the bad, potentially harmful stuff out of him. Especially given his previous experience with die off. This is why we haven't made the dosage increases that his doc recommended last June until now. I am sooo stuck in the place, though. In the previous die off episodes he HAS pooped every day, I guess this was part of the reaction. Then slowly it seems like his gut reaches an equilibrium again and his poops space out. Infrequent poops (and the food allergies) is why we went down the path in the first place. That's what we are trying to fix. I wish I had thought to take some GABA to his appt yesterday to have him muscle tested on that. I know that there is definitely a component of with-holding involved here too. He hates to poop and tries to hold it. He has gotten very good at hiding this from me because he knows that I will use a suppository if he waits too many days. It is so sad for me to see him so upset about this. I am considering trying to stick him on the potty chair when I see that he has the urge. Maybe not using diapers will be less "yucky" for him. However, this goes against my very grain as with my dds, they basically learned to use the potty on their own terms with some guidance from me. He is really against sitting on the potty and fights even sitting on it with clothing on. I just think this would turn into a huge battle and make things worse. Dh and others in my life think it is rediculous that he still uses diapers at almost 3y. sigh.... I have just always thought, this is already so difficult for him and adding in potty "training" would only make it worse. I make it clear to him if he wants to try the potty it is there and I will help him.

trialing eggs... yeah we will be careful. dh doesn't trust the muscle testing at all (despite it being so accurate for all of us). so will hold off on those for now and talk to his doctor at his next appt the end of aug.

thanks for the feedback

jen