There isn't much information out there about this condition. Its basically an auto immune disorder that causes lesions all over the body but typically not on the face. They scale over and itch. Some doctors incorrectly diagnose them as chicken pox or bug bites. Current recommended conventional treatments include steroids, topical creams, and UV treatment. It has not been known to be life threatening - just cosmetic. Doctors say it randomly goes away within a few months.
That was not my case and after reading a lot of online discussions I see many people have it for many, many years. I've had it for about 5 years. I did all the recommended treatments and took every possibly beneficial medicine. I was a teenager and my mom cried over it and begged me to take every treatment. Nothing really worked and all that stuff probably did a bunch of damage. After a year or so of treatment I was tired of driving to the light booths that just made my lesions look more noticeable. My current doctors congratulated me for being comfortable in my own skin and I stopped the treatments. After a few months the lesions stopped popping up on my arms and torso. The few I get on my legs aren't itchy.
On one discussion someone said something along the lines of, "If we all could just sit down and talk about our lives we could link all of our common factors and possibly find the root and solution to our problem." So if anyone here is diagnosed with this condition PLEASE talk about any theories you think caused it and any treatments you've had that helped.
I was diagnosed right after getting a series of vaccinations that were mandatory to volunteer at a hospital. I also suffered from depression and practiced self-injury. Maybe I got some kind of bacteria from that? I'm allergic to antibiotics, pollen, and dairy - something that a lot of PLEVA victims have in common. Is it because our immune systems are too aggressive and overreact? I have thyroid issues and like PLEVA my immune system is attacking its own cells. I lived in the bay area in CA and my friend who doesn't share any of my above experiences contracted PLEVA so there may be environmental factors?
The only natural things I've tried are sunshine and tea tree oil. Sunshine doesn't really help and I don't get worse in the winter. Tea tree oil seems to help make my lesions disappear and lighten some scars.
I'd love any input of natural treatments anyone has tried.
ETA: Maybe I have PLC now since my lesions aren't itchy? I'm guessing it'd have the same treatments as PLEVA though...