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Dealing w/ potential diagnosis, wwyd?

post #1 of 11
Thread Starter 
I have been having some major, major health problems for about a year now. I finally got in with a specialist today, who feels all of the indicators are that I have cancer. I am not prepared to think about this, even though it was one of the things I ran across in my research.

The doctor's initial impression is that because this particular type is slow growing, the prognosis will be generally good. The 1-year survival rate is 75%. The thing is that I cannot get scheduled for the biopsy until September 15, which I suppose isn't that long in the grand scheme of things. It was the first thing they had open, and I really like this doctor and don't want to go looking for another one. So, fine, I'm waiting until then. In the meantime, I have some blood tests to rule out a couple of other serious-but-less-serious-than-cancer diagnoses.

When I got home, I checked my email and got an email from someone with whom I serve on a nonprofit board. She was ranting about some things with the group that are unimportant here, but the point is that my first thought was "I don't care if your feelings are hurt." I also had to cancel a radio interview for a monthly arts exhibit I plan with 2 other women. One of them was a little upset that I had to cancel, but this appointment opened up, and ya know, I needed to go. I told her yesterday, and the interview got covered.

I don't know what I'm asking. I suppose I think that my life will be in a holding pattern for the next 3 weeks until we find out something unless one of the blood tests comes back positive. At any rate, do you tell people about medical issues like this? Most people know I've been to the doctor a good bit lately, but they don't know why. I just feel like I want to step back from things and re-evaluate. I'm 30 years old, so yeah, this is a bit of a shocker, and I don't want to waste time with bickering. Would you tell people? What would you say? I don't want people hovering or treating me weirdly, but I also don't want to explode or collapse because I'm keeping it all in.
post #2 of 11
I would just tell people you're having a health problem that's causing you a bit of mental strain and need to take a break from things for the next couple of weeks. You can then choose to add more details as you see fit per the situation. Don't keep it all in, but you don't have to spill the beans either.
post #3 of 11
I agree with PP, just let people know you are having a personal health problem, but don't elaborate.

I'm so sorry you are going through this at 30yo. How scary for you. I hope that it turns out to be something other than cancer.
post #4 of 11
I think in these situations you do what you need to do and people who care about you will have to adapt.

But the main thing that I wanted to say was--September 15? That's ridiculous that they can't get you in before then!
post #5 of 11
I'm so sorry you are going through this.... I too would think they could get you in sooner and do some tests. I couldn't wait 3 weeks!

Do you mind me asking what your symptoms are?
post #6 of 11
Thread Starter 
Quote:
Originally Posted by KMK_Mama View Post
Do you mind me asking what your symptoms are?

Yes, waiting 3 weeks sucks! I did tell my mom, though I didn't want to, just because I needed to tell *someone*. DH is one of those witty, always sarcastic people, which I understand is how he processes things, but still it's not comforting. I'm the "fixer" of things in our lives, so there's no one there when I need it.

Symptoms - The primary symptom is a lack of a period. My last one was October 2009. I also have significant cramping - actually worse than what I ever had before I had this problem - general malaise, weight gain that will not go away. (I've gained a lot of weight. I now eat a super-low-calorie diet and exercise - I ran my first race in March! - and I'm still *gaining* weight.)

I thought perhaps elevated Prolactin was the problem. I've taken some medications that increase Prolactin production. I'm being tested, but my doctor doesn't think the timeline makes sense for that. I'll also have some hormone tests, a metabolic profile. I'm having an ultrasound the same day as the biopsy, which incidentally I've heard is pretty painful.

If the blood work all comes back fine and the biospy/u/s don't show anything, then she's sending me to a reproductive specialist, which is weird, I suppose, since I don't want more children.
post #7 of 11
Did she order thyroid panel as well?
I would have a very difficult time waiting.
post #8 of 11
Thread Starter 
I had a thyroid panel done earlier this summer. The numbers look fine, though I start taking a thyroid support supplement, which has made me feel better.
post #9 of 11
So the biopsy is of your cervix? I've had some of those and they were painful. I would ask them if you can take a pain killer beforehand. I took Advil but wished I had something stronger.

Hang in there and try not to stress. It could be something like PCOS...
post #10 of 11
Thread Starter 
Well, it's an endometrial biopsy, and it really sounded like the biopsy would be pretty invasive. She offered to give me an Rx for Xanax, but I didn't think I'd need it. Maybe I should call back? She said I definitely should take Advil or Motrin. Can I take something stronger & be with my kids alone the rest of the day. I'm not a big pain meds person, so I don't know.

I've had cysts for years, but they've never caused a problem. Maybe they are just getting worse.
post #11 of 11
I had cancer last year (melanoma) and I think everyone handles it differently. I did tell people because, well, I had surgery and was going to have a big scar on my arm so people were going to notice.

Also, it helped to talk about it. I appreciated people asking and giving me the opportunity to talk about it. And, I needed to talk about it for months and months afterwards but, I worried so much that I was irritating people - that they were ready to move on but, I wasn't. I needed to talk.

So, I guess it's going to depend upon what you need. If you need to be able to talk to people, to process it, to vent, to share your fears, concerns etc... then tell. But, if you're a private person, it might get irritating to have people constantly ask you.

One thing I will caution you - and I'm sure you know this but, I really needed regular reminders - be careful where you google. There is so much information out there. Some very reputable, some not so much. Make sure you know your source.

Many, many hugs and prayers coming your way. I so know how scary this is. I'm here if you need to talk!
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