Hello everyone!
As a single mother of 2 girls 5 and 6, i always thought that raising them, working and trying to finish a university degree was hard enough. Unfortunately, several months ago my 6 year old developed a headache one evening which withing hours turned into a high fever and seizures. It was discovered she had hsv encephalitis. Her progress this far has been remarkable, she spent almost 2 months unable to move most of her body or speak. Today she can laugh, run and do many of the things I didnt think she would be able to do again. However there are still many hardships that followed. She has no impulse control and constantly hits, bites or pinches people even when they are just walking by. After she does these things she is upset with herself she cant seem to help it. her mind moves from minute to minute so even when told not to do something she dosent recall it a short time later. She spends the majority of her day confined to a wheelchair which she actually prefers, she is more content and calm when strapped into the chair. There are so many changes and challanges happening day by day and am wondering if anyone has any general advice or experience dealing with change as big as this. Sometimes i look at my girl and am crushed because she looks as if there is nothing wrong but yet rarely is she able to say even a sentence that is appropriate for the conversation or surroundings. I am so greatful and lucky she is still even alive but some days it is hard to accept that from now on things will be much different.
As a single mother of 2 girls 5 and 6, i always thought that raising them, working and trying to finish a university degree was hard enough. Unfortunately, several months ago my 6 year old developed a headache one evening which withing hours turned into a high fever and seizures. It was discovered she had hsv encephalitis. Her progress this far has been remarkable, she spent almost 2 months unable to move most of her body or speak. Today she can laugh, run and do many of the things I didnt think she would be able to do again. However there are still many hardships that followed. She has no impulse control and constantly hits, bites or pinches people even when they are just walking by. After she does these things she is upset with herself she cant seem to help it. her mind moves from minute to minute so even when told not to do something she dosent recall it a short time later. She spends the majority of her day confined to a wheelchair which she actually prefers, she is more content and calm when strapped into the chair. There are so many changes and challanges happening day by day and am wondering if anyone has any general advice or experience dealing with change as big as this. Sometimes i look at my girl and am crushed because she looks as if there is nothing wrong but yet rarely is she able to say even a sentence that is appropriate for the conversation or surroundings. I am so greatful and lucky she is still even alive but some days it is hard to accept that from now on things will be much different.
mama!! I don't know much about brain injuries, but others do, hopefully they'll be by to post soon.
