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¤¤¤Aug 29 weekly chat¤¤¤ - Page 2

post #21 of 102
Maybe you could research support groups in your area and they could help direct you towards resources that are less graphic and more informative. mama, this is so tough, I am very sorry.
post #22 of 102
Quote:
Originally Posted by trekkingirl View Post
well I got the call back and all my worry was valid. They said there is a really big possibility that my baby girl has a cleft pallet. I don't even know how to feel about it. I feel so deeply in despair. I just can't stop crying. How will I feed her? I really want to research what I'm up against but I know there are some pretty bad pictures on the internet and I don't think I can handle seeing them right now.
I'm so sorry I have a friend whose son had a cleft palate as well as a heart condition and a few other issues. If you want me to find out any good resources or anything like that let me know and i'll contact her. She is also a labor and delivery nurse.
post #23 of 102
trekkingirl, I'm sorry to hear about your troubling news. I wanted to share that a friend of mine had a baby with a cleft palate a few years ago and he had his first surgery to correct it when he was 1 or 2 days old. I'm not sure of any feeding-related issues. He was mostly a formula-fed baby, but I'm not sure if she nursed at all early on.
post #24 of 102
Trekkingirl, so sorry to hear about your stressful news. Has your doctor spoken to you yet with more details? It seems terribly inconsiderate to make you wait, and then not give you more information! Hang in there!
post #25 of 102
trekkingirl--- i'm so sorry about your news. i agree what about talking to people who've been through it instead of looking online. the pics may have you imagining much worse than you may have to deal with, and just scare the pants off you (plus i'm sure your imagination is doing just a fine job of that by itself). whereas talking to people would help you figure out different options and solutions. i'll reach out into my network and see if anyone has experience...and if i get anything back i'll pass on the info.

again, sending love and support. nurture yourself and your precious little girl.
ashley
post #26 of 102
trekkinggirl my thoughts are with you and your baby girl. I am sorry the news is so troubling. I hope they are wrong.
post #27 of 102
Quote:
Originally Posted by trekkingirl View Post
well I got the call back and all my worry was valid. They said there is a really big possibility that my baby girl has a cleft pallet. I don't even know how to feel about it. I feel so deeply in despair. I just can't stop crying. How will I feed her? I really want to research what I'm up against but I know there are some pretty bad pictures on the internet and I don't think I can handle seeing them right now.
Oh, trekkingirl, I'm so sorry about this troubling news! Have you spoken to the doctor yet? I swear, you'd think these docs and health care providers would be a whole lot more empathetic...

I think avoiding the Internet pics right now is probably a good idea. And if she does have a cleft palate, then at least you can take comfort in the fact that it's a "common" birth defect and one that can be addressed.

Keep us posted. I'll be thinking of you...

Oh, and congrats on your little girl!
post #28 of 102
UPDATE

Kaiser had their genetic counselor call me and she made me feel a lot better about everything. Tomorrow I go into San Francisco to see an actual Radiologist who will take a peek and see how she looks. The doctor who originally called made it sound a lot worse than it is. What they found is the possibility of a cleft lip (not palate) or a possilble prominent dip in the upper lip. They will try to see a cleft palate tomorrow. The counselor said a lot of times the tech will come up with something and the Radiologist won't confirm it. There is still a chance that nothing is wrong with her mouth. I have a few pictures of her lips and they look great to me. I'm not sure what they're seeing? Wish me luck!

Oh by the way, my spirits are up!
post #29 of 102
Quote:
Originally Posted by nintendork View Post
Maybe you could research support groups in your area and they could help direct you towards resources that are less graphic and more informative. mama, this is so tough, I am very sorry.
This sounds like good advice.

Quote:
Originally Posted by debra_lea View Post
Trekkingirl, so sorry to hear about your stressful news. Has your doctor spoken to you yet with more details? It seems terribly inconsiderate to make you wait, and then not give you more information! Hang in there!
I agree! It's like they forget that even though they have all sorts of info and see this stuff all the time, it's scary for the moms and it's their first time dealing with it and it's their new baby with the issue.

Trekkingirl- Try not to stress too much. (Easier said than done, right?) I'm sure they'll be able to tell you all you need to know before too long. And congrats on your daughter. I love all the frilly baby girl stuff out there.
post #30 of 102
yeah trekkingirl! thinking of you...keep us updated.
ashley
post #31 of 102
Quote:
Originally Posted by trekkingirl View Post
UPDATE

Kaiser had their genetic counselor call me and she made me feel a lot better about everything. Tomorrow I go into San Francisco to see an actual Radiologist who will take a peek and see how she looks. The doctor who originally called made it sound a lot worse than it is. What they found is the possibility of a cleft lip (not palate) or a possilble prominent dip in the upper lip. They will try to see a cleft palate tomorrow. The counselor said a lot of times the tech will come up with something and the Radiologist won't confirm it. There is still a chance that nothing is wrong with her mouth. I have a few pictures of her lips and they look great to me. I'm not sure what they're seeing? Wish me luck!

Oh by the way, my spirits are up!
So glad to hear you are getting good information and positive news!!!
post #32 of 102
Quote:
Originally Posted by trekkingirl View Post
UPDATE

Kaiser had their genetic counselor call me and she made me feel a lot better about everything. Tomorrow I go into San Francisco to see an actual Radiologist who will take a peek and see how she looks. The doctor who originally called made it sound a lot worse than it is. What they found is the possibility of a cleft lip (not palate) or a possilble prominent dip in the upper lip. They will try to see a cleft palate tomorrow. The counselor said a lot of times the tech will come up with something and the Radiologist won't confirm it. There is still a chance that nothing is wrong with her mouth. I have a few pictures of her lips and they look great to me. I'm not sure what they're seeing? Wish me luck!

Oh by the way, my spirits are up!
Good luck.
post #33 of 102
I have to be up soooooo early tomorrow. Surgery is at 8 and only takes 15 minutes. But I have to be there at 6am. And then I have to stay for like 2 hours after the procedure becauce I'm getting general anesthesia. I'm not really so nervous anymore... I just keep reminding myself how this means I get to have my baby at home, and I wont have to travel back to the hospital every day to see him/her, and I'll be able to breastfeed right away. And the doctor should come in and talk to me before the surgery, so he can probably tell me how likely it is that the cerclage itself would be cause for a csection (which is strangely my greatest fear... since I think the likelihood of any complications from a preventative procedure like this is pretty low). I know he's already given me the big baby csection talk (which my midwife and I have chosen to ignore) but this is a bit different.

DH kissed my belly the other night. I was surprised. He's obviously happy about the baby, but he's never really "into" anything about the pregnancy so it was really nice.
post #34 of 102
Quote:
Originally Posted by Mrs.Music View Post
DH kissed my belly the other night. I was surprised. He's obviously happy about the baby, but he's never really "into" anything about the pregnancy so it was really nice.
i love the belly kiss!
good luck tomorrow! keep us updated when you're feeling up to it!
ashley
post #35 of 102
oh wow trekkin, glad you're feeling better about the situation. I hope the specialist can clarify quite a bit what's going on. If there is somewhat of a cleft lip or something at least you can be prepared for it! Plenty of mamas have nursed through cleft lip/pallets. Congrats on the GIRL! I was thinking girl for you for some reason.

Oki I hope that typhoon misses you and that you feel better soon.
post #36 of 102
Trekkingirl, sorry for all your stress hopefully it will all be a non-issue, or else easily resolved.

Mrs. Music, cute!

Oki, I'll cross my fingers for you, and you cross yours for me - Hurricane Earl is headnig our way, and they are saying it might land with the same force Juan did in 2003. The city still hasn't recovered from Juan!
post #37 of 102
Trekkingirl; I hope you get timely good news today!

Mrs. Music; good luck today!

I had my 16w apt yesterday and everything went well. Their scale says I'm up 14lbs. Hb was 140's. I go for my anatomy scan in two weeks. I am nervous because I don't want to find out the sex. I'm gonna have to close my eyes most of the time because it shows up on a big tv screen. Great if you want to know - not so great if you don't. I haven't even told dh when the apt is because I don't want him to come. There is no way he'd close his eyes & he's terrible about keeping a secret.
post #38 of 102
good thoughts to you, trekkingirl. That has to be a heavy shock to try and absorb...while WAITING so long! Glad they've downgraded it. These things are good to know before the birth, right? So you can prepare? Good, good thoughts.

lyterae, I'll see your chicken and dumplings and raise you tater tot casserole.

I'm 16ish weeks now, 4months by the way I count pregnancy, I know others wait till the end of the week to turn themselves over to the next month. Belly is big. I can feel movement and kicks even when I'm sitting up and up around doing stuff now, which is cool.

I'm on twice a day yoga now, once in the morning to open my body up (I can't seem to stretch enough in my abdomen and pelvis, I always feel tight) and once at night to put my hips and lower back into place. Feeling very innundated by relaxin. It's beating me up.

I have noticed, tried oh so very hard not to, but you know how this goes...the baseboards in my house are gross. The corners of my floors are gross. The insides of my windows are gross. So I bought a 4-pack of toothbrushes yesterday, my kids said they'd help me clean. When should I put Daddy on notice that the fourth brush has his name on it? Family nesting event is about to commence!! Y'all are gonna be SO jealous of my clean nooks and crannies.
post #39 of 102
Quote:
Originally Posted by trekkingirl View Post
UPDATE

Kaiser had their genetic counselor call me and she made me feel a lot better about everything. Tomorrow I go into San Francisco to see an actual Radiologist who will take a peek and see how she looks. The doctor who originally called made it sound a lot worse than it is. What they found is the possibility of a cleft lip (not palate) or a possilble prominent dip in the upper lip. They will try to see a cleft palate tomorrow. The counselor said a lot of times the tech will come up with something and the Radiologist won't confirm it. There is still a chance that nothing is wrong with her mouth. I have a few pictures of her lips and they look great to me. I'm not sure what they're seeing? Wish me luck!

Oh by the way, my spirits are up!
Yay! I hope that your visit goes well today

Quote:
Originally Posted by Tresa View Post
Family nesting event is about to commence!! Y'all are gonna be SO jealous of my clean nooks and crannies.
I'm glad I'm not the only one! I fully intend on spending labor day weekend cleaning the house, it's messy and I can't take it anymore.. I've almost finished going through all the baby stuff and packing up all of the other things in my closet that need to be put away.
post #40 of 102
Thread Starter 
Thinking of you today, Trekkingirl.

Good luck Mrs Music!
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