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When a fever is more than a fever...

post #1 of 30
Thread Starter 
I hope it's ok - I'm purposefully posting this in Parenting and not in Family Safety or Health because it's something that I hope all parents will want to know....

This past Thurs my 20 month old daughter had a fever of 102.2. I called her doc, they asked me lots of questions and told me to go ahead and just give her generic baby tylenol or motrin and make sure she responds appropriately. Gave her the meds, her fever went down, she slept fine. Next morning had 99.6, gave her more, she seemed fine after a few more hours, so I took her to daycare and went to work.

2:30 daycare calls, she's got a fever and is shaking. DH and I take her to Ped, examines her, says she's seeing a lot of this "fever but no other symptoms" virus, and we should take her home and keep giving her the generic tylenol and watch her behavior.

Here is the key bit of info: as we were leaving I asked if there were any other signs we should watch for and the doc mentioned that if she can't bend her head down and touch her chin to her chest, we should call again. This was a new symptom, I'd never been told to watch for that. When we got home I said to DH "We should check that out..." tried lots of tricks to get her to look down, she didn't/wouldn't/couldn't, so we called. Doc said "It's a longshot but because that's a symptom of meningitis you may want to go ahead and take her to hospital" (It's now Fri night).

Long story short, sure enough she had viral meningitis. Which, once they confirm it's viral (and not the apparently much worse form of bacterial meningitis) they don't have treatment for but since you have to keep your kid hydrated and my DD was too sick to want to drink or eat, I was really glad she was on IV fluids for days while we waited to find out which kind she had.

We're still breastfeeding and every other time she's been sick she's continued to breastfeed. This time she apparently felt so poorly, she just used the boob as comfort but hardly ate at all. That's why I was so glad for the IV fluids, don't know how else I would have gotten them into her at home and she started to seem a little better within an hour of being hooked up.

I share all this because now that she's ok I have talked to many people with meningitis stories and many of those stories where the meningitis was undiagnosed/untreated ended up awfully (child died or was permanently damaged - and I don't think it was just the bacterial form that did damage).

There are apparently probably a lot of other times that a kid has viral M and it never gets diagnosed and the child recovers fine, so not saying every single case that doesn't go to the hospital ends badly. But seriously... I would never want to risk it if I knew how bad it could get.

I would NEVER have known about that one symptom, and I could have easily walked out of my Ped's office without hearing that and I don't know how many fever cycles we might have gone through before figuring out something was really wrong. If it had been bacterial, that would have all been KEY time wasted and lost that she could have been getting anti-biotics.

(The way they treat it is they start treatment immed for bacterial because they say - and I believe it - that the risks of those high doses of anti-biotics are far outweighed by the damage done during that wait if it turns out to be bacterial.)

So just wanted to share that symptom and our experience with you because I'm so troubled by how many bad stories I've heard since this happened. It's not to be alarmist, just to share info that turned out to be very important to our child's health.

Take care everyone.

p.s. Sorry if this is really commonly known info and I am one of the few that hadn't heard it. But when I hear so many sad stories of others who didn't know, it seems like maybe I'm not the only one?
post #2 of 30
I think it's always good to share this kind of info so thank you. I'm glad things are going well for you guys. It's so scary when your little one is sick!
post #3 of 30
OMG!!! thank you sooo much for sharing. no i never knew about the bend head thing.

my dd has a habit of getting high fevers.

i have a question for you.

was your dd 'sick' with the high fever. i mean if you hadnt touched her and felt the fever would you have known she had a fever without touching her?
post #4 of 30
I'm glad you posted too.
My children have had fevers since Sunday night. They reached as high as 103. Shortly after the fever, they also had congestion, a cough, and ear pain so I assumed it was a typical virus. I do not medicate for fevers unless they are really high or my children are acting really ill - lethargic, etc.
I am glad to know about this so I can check in the future if they have unexplained fevers.

p.s. I also called the ped to see if there is anything I needed to watch out for, but they said as long as my children are eating, drinking and do not have a fever for more than 3-5 days there is nothing to worry about. They didn't mention testing for meningitis; probably because I mentioned the congestion and cough.
post #5 of 30
Thread Starter 
Quote:
Originally Posted by meemee View Post
OMG!!! thank you sooo much for sharing. no i never knew about the bend head thing.

my dd has a habit of getting high fevers.

i have a question for you.

was your dd 'sick' with the high fever. i mean if you hadnt touched her and felt the fever would you have known she had a fever without touching her?
Really glad it was helpful!

DD actually seemed a little lethargic but we went to a bookstore after I picked her up from daycare and she seemed mostly normal, walking around looking at everything. She fell asleep in the car so she was out when I undressed her - only when I undressed her did I realize she had the fever.

Next day she again seemed a little lethargic but once I gave her the tylenol she perked up soon after and really seemed fine when I took her to school.

By the time we got her home from the Ped's though, she just looked like she felt SO bad. Just sat on the couch, we put on her fave show, she just sat there. But since we'd just been to the Ped, without the whole "Stiff neck" info I'm sure we wouldn't have done anything else, at least not unless she got more sick.

FYI once we got to the children's hospital she also threw up a couple of times, so that would have been an additional symptom that is common for meningitis but also a lot of other flus/viruses.
post #6 of 30
I knew this! I don't even know how I knew it but I've known for years and years that a sign of meningitis is fever and not being able to bend the neck. Good to get the info out!
post #7 of 30
Thanks for posting this. DS has had a fever since last Friday. We went to the doctor and they told us it was coxsakie (sp?). His fevers have gone down, but not away. I'll check the neck bending when he's awake. It's something I've known about, but didn't think to check after getting a different diagnosis. But drs miss stuff, it's unlikely, but I'll still check.
post #8 of 30
Thanks so much for sharing. I had no idea to look out for this. Glad to know your babe is ok!
post #9 of 30
Wow, thanks for sharing this. I didn't know about that symptom. My DS has almost always started out his colds with high fevers. Several times, they haven't turned into anything except just the fever. It always seemed weird to me, but now I know to be on the lookout for that.

Thanks again!
post #10 of 30
I did know this but I think we have a high rate of meningitis here.

Did you tell the daycare that she had it?
post #11 of 30
I knew this too, but I'm sure there are lots of mamas who didn't. Thank you so much for posting this!
post #12 of 30
Thank you for posting this. I had no idea about this symptom (I hope I never have to put it to the test, though!).

I'm glad you asked your doc & that your LO is getting better!
post #13 of 30
Thread Starter 
Quote:
Originally Posted by Learning_Mum View Post
I did know this but I think we have a high rate of meningitis here.

Did you tell the daycare that she had it?


Thanks everyone for your good wishes! Had follow up visit today, she's looking good, and we're so grateful.

I did tell daycare, and made sure as we were leaving the hospital that they gave us something to show that she was ok to return. Daycare didn't have much of a reaction - it's very very very likely she got the starting virus there and I'm sure they know that.

If it had been bacterial that would have probably changed a few things - from their perspective and from mine. But they didn't seem all that phased by the news.

The children's hospital we took her to is a teaching hospital so we saw a million docs/interns and I asked them all "Is there anything we could have done to prevent this? Anything daycare should do?" and they almost uniformly said "No, nothing that you or them could have done to prevent virual meningitis in this case." So we're chalking it up to bad luck (but great luck that it was all diagnosed and taken care of).
post #14 of 30
I did not know this and wish I had, so thanks for sharing DS is a fever magnet, so I will be on the lookout!
post #15 of 30
Thank you for sharing this! I will definitely keep an eye out from now on. Meningitus is definitely not something to mess with.
post #16 of 30
Quote:
Originally Posted by LROM View Post
The children's hospital we took her to is a teaching hospital so we saw a million docs/interns and I asked them all "Is there anything we could have done to prevent this? Anything daycare should do?" and they almost uniformly said "No, nothing that you or them could have done to prevent virual meningitis in this case." So we're chalking it up to bad luck (but great luck that it was all diagnosed and taken care of).
Yep. I had it once as a child (I think close to your DD's age) and my mom didn't know anything was wrong other than a fever until I got a stiff neck (like, couldn't turn my head). She used to work in the medical field and took me to the ER immediately. They'll always treat with the assumption that it's bacterial because there is a very small window in which to start treatment. So, they give massive antibiotics while tests run.
And it's weird how people catch it. I got it and my mom got it but my dad and brother didn't. Same thing with my uncle and a cousin...my aunt and other cousin didn't get it.

I really hope she feels better! If it helps at all I'm 23 and have had zero lasting effects.
post #17 of 30
Glad your DD is feeling better. Stiff neck is something I always check for with a fever, not sure how I knew it but I did. When babies are young enough that their soft spots are still there, a bulging soft spot can be another sign. My DS just had a fever last week where I was making him bend his neck down to his chest and DH was like, "What are you checking for?" and I told him I was checking for meningitis.

FWIW, this is another reason I don't medicate fevers as a general rule. The fever is the body trying to do it's job of fighting off the virus, and when you bring down the fever with medication, it kind of opens the doorway for the virus to get a firm foothold and wreak more havoc in the body. Viral meningitis is actually just any virus, even the common cold, that sort of goes out of control in the body. It is my opinion that medicating fevers for viruses can cause them to develop into meningitis. Just MHO.
post #18 of 30
Quote:
Originally Posted by LROM View Post
The children's hospital we took her to is a teaching hospital so we saw a million docs/interns and I asked them all "Is there anything we could have done to prevent this? Anything daycare should do?" and they almost uniformly said "No, nothing that you or them could have done to prevent virual meningitis in this case." So we're chalking it up to bad luck (but great luck that it was all diagnosed and taken care of).
Meningitis in one of the viruses / diseases that freak me out. I am really, really paranoid about it for the exact reasons you posted. There isn't a whole lot you can to prevent it and it comes on so quickly and can cause death before alot of people know there's anything serious wrong. It totally freaks me out and I'm really glad you managed to chance it in time!
post #19 of 30
I knew because Dr. Sears mentions it all over his books and website. BUT I almost never remember to check for it, so thanks for the reminder!
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post #20 of 30
Quote:
Originally Posted by Learning_Mum View Post
Meningitis in one of the viruses / diseases that freak me out. I am really, really paranoid about it for the exact reasons you posted. There isn't a whole lot you can to prevent it and it comes on so quickly and can cause death before alot of people know there's anything serious wrong. It totally freaks me out and I'm really glad you managed to chance it in time!
Yep. I'm terrified of meningitis. I'm so glad your little one is better and thank you for the stiff neck tip. For some reason I thought it was something with the legs.
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