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Mothering › Mothering Forums › Mom › Parenting › Special Needs Parenting › It took three and a half months and six surgeries, but my son is home from the NICU (with a trach and feeding tubes)!
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It took three and a half months and six surgeries, but my son is home from the NICU (with a trach... - Page 2

post #21 of 24

I second the vote for the zevex pump.  Our is amazing.  It is also the only pump that will run DD's blenderized diet.  We have to bring it with us when we go to the hospital since it their pump get won't run our food.

 

post #22 of 24

Congrats on his birth and also him finally making it home, what wonderful news!  I don't know anything about EA (except what I learned in nursing school, lol) but I still wanted to offer support and at least send some hugs.  I'm sure its already been a tiring journey with much more in store but you definitely can do it and he's lucky to have you as a mama. The woman here are amazing resources as well!

post #23 of 24

Just saw this, I hope you guys are doing well!  The Passey-Muir is wonderful, if you can have a trial near a pulse-oximeter (some people fail the first time and need some getting used to).

 

Let us know how he is!

post #24 of 24

Congrats on having him home! My daughter had an anoxic injury at 4 months and has GJ tubes, TPN, but no trach. I'm sure you'll get in a groove quickly and it'll be second nature soon.

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Mothering › Mothering Forums › Mom › Parenting › Special Needs Parenting › It took three and a half months and six surgeries, but my son is home from the NICU (with a trach and feeding tubes)!