Originally Posted by DeChRi
I'm suddenly wondering about a stomach emptying kind of thing. She ate 1.5oz @ 8:45pm & fell asleep. 11pm I woke her & she ate an ounce. 2:30pm, just over an ounce, 6:15am, one ounce and sounded so full it was sloshin in her throat. And now @ 7am I'm working on another oz. Writing that out I see how wonky it looks.
You could be onto something there... Perhaps that would also explain why she's generally better at night (if she's not eating as frequently during the night, everything has more time to move through her system?)
Any chance your pediatrician could refer you for a couple of specific tests while you're waiting to get in to the ped GI? Could she at least send your baby for an upper GI or something? (I know usually they like the specialists to make that call but maybe they'd make an exception??) I don't know, I just don't think waiting a week for her weight to drop, and then waiting another week or two to get in to the ped GI, and then waiting up to a month or more to complete all the tests & have a follow up appt, is the route to go. Is there another specialist who could get you in sooner in the meantime?
My DS screamed & cried for the first year of his life, and spit up 'round the clock for the first 9mos -- not the little bit of spit up after a feeding that many babies do, but MASSIVE amounts all.day.long. no matter how long it had been since his last feeding. He nursed every 20-30 minutes for that first year, and I suspect only took an ounce or two at a time, I had huge oversupply and when he got too much he got sooo miserable and spit up even more. Extreme block feeding helped but never completely eliminated his reactions. I remember exactly ONE time when he was probably about 8 months old when he was happy for 45 minutes straight. In his whole first year, that was his only 45 minutes without screaming. I never slept because I was waking up constantly to flip him over the minute I heard him starting to spit up (didn't want him to choke on it, he wouldn't flip himself when spitting for some reason). Now when you mentioned stomach emptying issues, I looked up delayed gastric emptying and it sounds very much like what he may have been experiencing. I don't know why I'm telling you all that
-- I guess it's just that your DD reminded me so much of my DS all along for some reason. This brings up a lot of hard feelings for me, because everyone (dr's etc.) didn't seem to think it was a big deal and just brushed off my concerns, and we never really pushed, we were new parents and confused & thought maybe all that screaming and puking etc. WAS normal, but looking back, I don't feel that it was.
Anyway. So, long story short, do what you can to get her in there or SOMEWHERE sooner. I hate the idea of just waiting for her to turn blue or lose 3lbs or something. I can't believe no one is fast-tracking you yet. Also, didn't you say she dropped from the 95% to the 66%? Don't know if I'm remembering that correctly but if so, would another huge drop in percentiles be as good a 'red flag' as actual lbs lost?
I don't know what else to say but I hope you are able to get to the bottom of this soon
& hope you yourself are feeling better!!