After everyone spent so much time helping, for 31 pages, I felt I should come back and let you know we finally have answers. The short story, is we are dealing with an eosinophilic disorder. And in the last couple weeks my 3 year old has been diagnosed with the same condition. Many kids can nurse even with an eosinophilic disorder (like my 3 year old). Some can nurse after mom eliminates some foods. And in my daughter's case, there is not yet a single food she can tolerate. She is now almost 11 months. She lives on Neocate. She reacts with severe delayed stomach pain and vomiting to everything, including most inactive ingredients in meds, infant vitamins, added DHA to the Neocate, and Elecare (another prescription elemental formula). Luckily my 3 year old did well on BM and likely didn't go downhill until a year ago when she weaned. Our hope is that she is not as severe and she will be able to keep some foods in her diet. We head to Denver in a couple months for a week of meetings with a specialist group there (GI, allergist, immunologist, dietician, psych, etc) and will have a better idea from there.
More info is at www.apfed.org.
Thanks for all of the help and support on this thread over the months!