Test results and next steps - where to test

[rileyscoutmom]

So, to recap - 21 months old
Lots and lots of rashes, loose bms, mucous, rhinitis, fluid in ears, falling down quickly on the growth cahrts, extreme GERD that doesn't respond to meds, whole food in bms

Had a scope which visually they saw blood, inflammation and "nodules" which they said they usually see in kids with food allergies

Biopsies showed nothing really

I guess they couldn't decide if she had gastritis or not

Skin prick testing was all negative

They want to put her on an antihistamine to block pain, increase appetite and help her sleep (she doesn't sleep because of the GERD). My concern about the med, which she did take yesterday, is that is just masks the symptoms but really doesn't take care of the cause.

I don't think I want to try another med. I think I am going to do a send out test for IGg reactions and just try to eliminate more foods - or at least find the right ones.

She currently doesn't do dairy, gluten, corn, soy, tomatoes, oranges and carrots

Is it okay not to do the meds? Does anyone have any positive experiences with a send out testing that they recommend?

Karen

[mamafish9]

I think doing an IgG test is a great idea at this point, to help you maybe identify more food triggers. We did the fingerprick test from USBiotek, but I don't know if it's one of the better ones (it didn't require a blood draw, which was a big plus for us).

I looked up GERD in the Yasko forums, and found some maybe interesting stuff. Dr. Amy says she sees some children with severe GERD who are not responsive to meds, because their GERD is not caused by the "classic" cause (overproduction of stomach acid due to an overactive histamine response). Note that if that is your daughter, the antihistamines they are prescribing now may well not work either...

What Yasko does say is that often these children have a SUOX mutation, meaning they have a mutation in the pathway called sulfoxidation. Amongst other things, that pathway helps process sulfur containing foods, drug byproducts, and salicylates (a chemical that commonly occurs in foods). If your daughter is salicylates sensitive, that means she could react to a wide, wide range of foods, but it won't show up on any tests, because it's not the food itself, it's the chemical in the food. Here's a list of high salicylates foods - can she eat anything on the high sals list in any quantity?

Can she eat any high sulfur foods without reacting - broccoli, garlic, eggs?

If this is a piece of the puzzle, supplementing with molybdenum, magnesium, and B6 can really help. Limiting high sulfur foods & supps (what supps is she on, if any?). And careful with drugs that clear out this pathway, they'd make the problem worse, not better.

One other question - are you supping either zinc or B12? I'd be doing zinc and sublingual B12, she's likely deficient in both if she's been having absorption issues. Zinc lowers stomach acid, which can actually CAUSE reflux for some people, and whole food in poop is a pretty classic result. B12 can impact gut ph, which is also a factor in both reflux & digestion.

Last thought, Dr. Amy recommends quercetin as a natural antihistamine - I'd add 2,000mg a day of vitamin C to that list. Sublingual methyl B12 can be helpful with histamines as well.