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HIV+ Adoption

post #1 of 19
Thread Starter 
My husband and I are adopting from Uganda. We're starting to talk specific children with the social worker who will be helping us. There is a 15 month old baby girl who is HIV+. We have been open to some special needs but have not really thought about HIV (even though we're adopting from Africa).

Any thoughts or information? Thanks!
post #2 of 19
Do you have cats? My county's rules do not allow fostering or adoption of HIV+ children if the home has cats. They are worried about Taxoplasmosis, which is more commonly acquired through meat consumption, but can also be acquired through exposure to cat feces.
post #3 of 19
I don't have any information, but just wanted to drop in and say wow, that sounds like a decision you would need some time to think through--if you are just now starting to think about it, I would definitely give it a lot of time before you make a final no or yes decision.

Lots of best wishes to you.
post #4 of 19
I found this blog to be very helpful: http://www.positivelyorphaned.com/ There is also another blog that has a webinar about HIV adoption: http://fromhivtohome.blogspot.com/

Hope these help.
post #5 of 19
Kath,
Those blogs are great! One had a link to an article in Parenting. Here's a quote from the article:
Quote:
The fact is, science and medicine have come so far that "we would rather treat pediatric HIV than juvenile diabetes," says Kenneth Alexander, M.D., chief of pediatric infectious diseases at the University of Chicago. "If you look at how well our medications work, there's no reason not to expect that Sachi will one day see her grandchildren."
http://www.parenting.com/article/Mom...option-Story/1
post #6 of 19
Thread Starter 
I read that article and listened to the webinar. Very interesting.

We have not ruled out HIV, but we have decided as far as this girl goes, she is too close in age to our youngest biological son. They would be just six months apart, but he has some developmental delays which could mean they were almost like twins.

We may end up open to HIV in a younger baby, although I am not sure. Even though it is treatable, it does require a lot of visits to the doctor and giving the kids medicine very precisely twice a day. I can hardly remember to give my kids vitamins a few times a week...

I know this would be different. I never forget my coffee or to wear my glasses or to cook dinner. The HIV meds would have to become a part of life just like those things (maybe the vitamins should too).

We'll keep you all posted...
post #7 of 19
Here is a great blog about raising children with HIV (I believe 2 of her children are HIV+ and she is the HIV+ coordinator for Adoption Advocates International): http://fullhousehandshearts.typepad.com/my_weblog/

Look under the catergory HIV. She is an amazing resource. She would also get back to you about any questions regarding HIV even if you don't go through the agency she works for.

AAI just started a pilot program in Uganda.
post #8 of 19
Thread Starter 
We're working with Agape Adoptions, another Seattle area adoption agency starting a pilot program in Uganda.

The little girl who is 15 months old and HIV+ continues to be on my heart. We're waiting to look at her information until our homestudy is officially done (waiting on fingerprints, the first set was not clear). She may be too close in age to our youngest, but we're trying to keep an open mind at this point.

The more I've learned about HIV, the more strongly I am feeling it is something our family could take on. We have excellent insurance and know our local medical system well (two of our older kids have special needs). As I've learned about the "risk" to our other kids, I've also learned it isn't really an issue. We would be cautious, but the risk is minimal. We've heard from families that while the first few months home are intense, after that time, kids typically see a specialist 4 times a year.

We will have our homestudy say we are open to HIV, but still make the decision for each child individually...
post #9 of 19
knowing what I know now, if we weren't already matched with our bubs, we would adopt an HIV+ child, and I suppose, may still in the future, depending on how life rolls along for us...
post #10 of 19
We also would have adopted an HIV+ child when we adopted our sibling pair. I've worked with several HIV+ children and have found it a rewarding, yet very challenging experience. When we were thinking about it, we didn't think much about what daily care and life would be like with an HIV+ child. Now, that I've worked with them, I know how much work that entails, and while I'd still take it on, it's really hard on both you and the child.

There's very few med options for kids and all of them are liquid (at least that was the case 3 years ago). And they taste awful. The meds one of our kids were on had to be given at EXACT 12 hour intervals and we were in a summer camp setting. There was nothing like thinking that you were going to be 5 min late getting the meds to kid - which then would get spit up or refused - and you would cause a resistance to one of the few drug options available. The parents had to think about what kind of programs or activities the children could be involved in because the med regime excluded the child from many activities as that need couldn't be met. The child didn't know of their HIV status when they were younger, and as they got older, it was really hard for them to be different. When this one child did disclose their status to their cabin mates, it was a really positive experience and we were so thankful of that.

Also, HIV impacts people in many different ways. I used to work in the AIDS field and many of the people I was lucky to work with were long term survivors. Many of the people who were involved in our work weren't actually able to work because of complications and long-term health issues. And, this impacted their longevity. All of this to say, is that while HIV is managed nowadays as a chronic illness, it does have a finite period. Your child could be really healthy and have a long life. Or, your child could be sick, develop full-blown AIDS early, and then die. You only get the time that you have with them which could be years or decades. After having lost so many of my colleagues to AIDS, I did have to leave the field because there was just too much loss (and I'm talking about the 2000s, not the 1980s), and I many of suffered from multiple loss grief. I think it may be important to process the eventual loss when considering adopting an HIV+ child.
post #11 of 19
Hello!

I have sooo many resources I'd be glad to share with you! Additionally, check out projecthopeful.org , there is an adoptive HIV+ parenting yahoo group, another wonderful resource is through Reeces Rainbow (a very, very active yahoo group)
I can point you in the direction of a million billion blogs; emails for families who already have HIV+ adoptive children.

It's much more "doable" than it was years ago! HIV is NO LONGER a terminal illness. It is a CHRONIC, MANAGEABLE illness!

With respect to the above poster; meds have improved greatly even in the last 3 years. (like-30!) Some meds are REPULSIVE and in liquid form. But they are also available in pill form, and you would be surprised how young a child can learn to swallow a pill! Also-a brilliant method to minimize the liquid misery. A spoonful of non-dairy whipped topping. Meds. Another spoonful of whipped topping. The oils in the whipped topping coat the mouth.

Depending upon the medical care your adoptive child has received in their home country, you may have frequent PID (pediatric infectious disease) visits at first. OR NOT! A friend's child has been home 3 months now, and the initial PID visit was all that was necessary! Her DD's meds were tweaked just a bit, otherwise-the top PID in Chicago was ok with the treatment she had been on!

Lifespan of a kiddo with HIV is just as long as any other kiddo! You can expect your child to grow to become a NATURAL grandparent. No, really! I have also lost family members to health complications DUE TO AIDS. (you don't die from AIDS)

The biggest thing most HIV+ adoptive families struggle with? DISCLOSURE. That is well worth thinking about. I'm glad to talk and point you in helpful directions.

Best Wishes!

Melissa

ps. sorry for my somewhat obnoxious usage of caps and exclamation points. If you can tell, HIV+ issues and HIV+ adoption is something I am very passionate about!
post #12 of 19
Thread Starter 
Melissa, thank you for your response. I took the previous post with a grain of salt, knowing that her perspective on HIV adoption did not line up with what I've heard from many parents who have adopted HIV+ kids.

I am ready to say yes. My husband is still thinking through things, but I believe he's also leaning towards yes.

I completely get that the most difficult thing will be disclosure and dealing with other people's fear
post #13 of 19
Thread Starter 
And yes, Melissa, if you get a chance, please pass along any resources!!
post #14 of 19
Quote:
Originally Posted by sbrinton View Post

We have not ruled out HIV, but we have decided as far as this girl goes, she is too close in age to our youngest biological son. They would be just six months apart, but he has some developmental delays which could mean they were almost like twins.
Hey, we were in the same DDC! I just wanted to say that my older brother is 6months older than I am, and was adopted from South Korea. I worked out beautifully, we are a good brother/sister pair (he lives in Korea right now teaching English, and I SO wish he could see my son growing up!).

We were best friends until elementary school, and remained pretty close until we were teens. We definitely had our brother/sister moments, but we're family and we love each other unconditionally. We were raised as twins mostly, except for being in different grades, and it was great. My parents definitely don't regret it. I know artificial twinning as its called isn't always recommended, but in our case it worked out wonderfully.

ETA - I semi stalk this forum b/c I really want to adopt someday, and I just saw this thread and think its great that you are considering adopting an HIV+ child!!
post #15 of 19
prayers being said that you come to the best decision for your family
post #16 of 19
Thread Starter 
So we decided we're officially open to adopting a child who is HIV+. We also decided to look at the little girl's file.

She is now 16 months old. The director of the agency calls her Diamond, although that is not her given name. We'll get her full file soon. I got her pictures today. She is beautiful!! Like so beautiful.

My husband will look at the pictures soon. I am not sure what his reaction will be. I'm scared we'll feel differently, but trust that it will work out if it is meant to be. The timing has been a surprise (we were planning on a longer process), but it's exciting too.
post #17 of 19
that's super exciting!!!! and I thought of you, in our first few days here with our two at once... my husband kept saying "let's adopt two at once!" in a sarcastic tone, whenever things got crazy. he was joking, of course, but it was pretty intense. still can be, but they are really sweet together -- we're really lucky that our older boy is so nurturing. he is feeding his little sister peanut butter out of the jar as I type this.

but I would now recommend one kid at a time, whenever possible, unless they are already sibs. most 3 year olds are not this kind and gentle to babies, and we are really lucky that she sleeps as well as she does... lots of things working in our favor with these two, but it's a fine line, and I try to give marvin as much 'baby time' as rose gets.

but yeah... one at a time is a good rule.
post #18 of 19
Tiffani,
Thanks for the insight! We've been thinking about 2 at once, but that has been my continual worry... that a toddler or preschooler and baby combo, really just isn't good for the older child... they won't get the babying that they need.


Sara,
SO exciting! I am sure she is as beautiful as a diamond... I've always like the idea of nameing a girl from UG Pearl... as it is the pearl of Africa. :-) But, I think it is a boy for us... we will see.
Hugs!
post #19 of 19
We are in the same boat, looking to be open to HIV+. Much of the resources I've found have already been mentioned. I really hope our family is able to, we are just 2 short months away from having our homestudy complete and being put on the family available list for fost/adopt. It's so exciting and such a blessing that this positive children are much more able to find permanent loving homes than they used to be! Best wishes to you!

And with the close in age, I'd say go for it!! But that's just me, everyone is different.
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