Hirschsprung's disease and soft neuro signs?

[kittywitty]

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Edited by kittywitty - 6/18/11 at 1:26pm

[starlein26]

Please don't worry until you have some actual test results. I know it's hard. Although she may have given you some new/different feedback...she may also be wrong. We've been told CRAZY things about our son. Diagnoses, I believe, doctors should have NO right to pronounce with NO data other than their biased "opinion". Let the tests inform you. Not a doctor's opinion or google.

I know this is hard but try to wait before you worry, .

[kittywitty]

Thanks. I am trying to not worry so badly today, but I would like to research the testing and other things we may go through at the neurologist. Neurology is not my strong suit!

[terra-pip]

Originally Posted by kittywitty

Ok, I just read up on this after finding out the name (I had it wrong to begin with). Looks like this is possibly genetic? Now I feel even more awful. If they would have caught this before I could have my other kids checked out more thoroughly for this. Maybe I have done something terrible having more kids that may also be affected if this is genetic? I feel like I've done something terrible and have somehow unknowingly screwed up my children putting them through unnecessary pain.

hey hun, I couldn't remember how you spelled this and I wanted to Google....I knew you would post here, because I would have.

Please don't feel bad like that. You haven't done anything wrong by having your beautiful family, believe me I understand. I stress about "R" and "I" too, because I feel guilt that I am to blame about "M" and it's not a pleasant feeling. It feels horrible right now with all the still unknowns, and the sheer unexpectedness of it all. But D is a happy and capable little boy, with capable and more importantly loving and attentive parents.

I know you'll research the heck out of this and maybe you'll get some answers, maybe this doc is one of those who overshoot. I remember a certain er doc putting us through unnecessary stress last winter testing for childhood diabetes. I felt so mad at being made to worry like that.

It will all find it's way in time. We're here if you need anything, even to get away and talk.

[kittywitty]

Thanks. We need to get together for coffee sometime soon. I don't know what's all in your elim diet right now, but I've been liking the decaf mochas up at Ophelia's.

[terra-pip]

deal. I'll call you or vice versa sometime this week. I actually had my first coffee yesterday because I made a complete fool of myself thinking it was Monday. I'm not a person lately but a zombie mama.