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Just found out my baby has Sinus Venosus ASD & PAPVR and needs Open Heart Surgery soon :( - Page 2

post #21 of 23
Sending you guys tons of positive thoughts! Hope he's doing well and resting as comfortably as possible.
post #22 of 23
Also sending you positive vibes

Today is one year since my baby's heart surgery and she is doing so well. I paused many times today to think about where I was at this point last year. It's scary and super emotional and I'm still so super emotional about it, but I'm not so scared anymore.

We're here if you need some mamas who have BTDT to lean on
post #23 of 23

Hi, my son will be 2 in March and just found out he has ASD sinus venosus type - haven't found a lot of information of what to expect, expecially post op...can you share your experience? Thank you in advance:)  Shannon

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Mothering › Forums › Parenting › Special Needs Parenting › Just found out my baby has Sinus Venosus ASD & PAPVR and needs Open Heart Surgery soon :(