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Coping with aggressive & manic behavior

post #1 of 10
Thread Starter 
DS1 just turned 5. He's incredibly hyperactive, and has to have my (or his dad's, or both) undivided attention pretty much every single minute he's awake. On a good day I hear a constant "look, mommy LOOK, HELP ME, I need help, I want to [fill in the blank], what do I do next, LOOK! mommy are you LOOKING? mommy LOOK!" If I leave the room for 2 seconds to use the bathroom, he follows me, if I'm in the kitchen doing dishes, he's right.up.under.me asking for something to eat (even if he has a plate full of food on the table) or for me to play with him. He has an intense need to touch, and to move, and to talk and talk and talk and yell and scream and talk and he has very little awareness of boundaries. He's a blur of constant sound and motion, and it's rather exhausting. But he's also a sweetheart who loves to cuddle, is incredibly bright, loves to draw and makes the most amazing lego creations.

On a bad day however, his need for touch turns into a need to hit, punch, kick, push, jump up and down on people, and wrestle. DH and I get to take our turns as his punching bags, but 3yo DS really gets the brunt of this aggression. I react badly enough when it's me taking the hits, but I really lose it when he is sitting on his brother jumping up and down and laughing while my little guy cries out in pain and I can't get to them fast enough or can't get him to stop. Nothing seems to work when he's like this. Yelling and screaming and taking him in another room are all useless. Talking is a joke. What usually happens is DH redirects his aggression from me and DS2 onto himself and just rides it out with him. Oh and it comes out of nowhere - he might be happily playing one second and absolutely manic the next.

Most days lately are good days. Months ago we started using melatonin to help him sleep, and saw a big improvement. We recently eliminated gluten from his diet, ironically for other reasons, and overnight we saw a dramatic decrease in the more violent and aggressive behaviors. We also noticed more eye contact and he allowed himself to be touched gently and held more than before.

But we still have bad days. Usually it's clear that he's had gluten or not gotten enough sleep and that seems to be the root cause. Unfortunately it's still hit or miss whether he gets enough sleep, and though we try really hard and have eliminated ALL gluten from our home, even trace amounts, he seems to react very strongly to small amounts if we eat out or at someone else's house even if we're very careful.

I've resisted getting him into a behavioral evaluation for several reasons. First we tried through the school district when they were doing his speech eval (he has very poor articulation, though his receptive and expressive communication are actually above age level and he rarely has any problem communicating with family, so we feel communication is not the problem.) They "screened him" while they were doing the speech screening and said he didn't seem to have any behavior issues. We had just started the melatonin at that point and he was doing much better. Then we went gf and he improved even more. On his good days I think I'm nuts to even consider having him screened - obviously diet is the root of his issues right? (says I)

Then comes a day like today, and yesterday, and that day last week, and the one before that... and I just.can't.cope. Just a few minutes ago he used his brother as a punching bag, then scratched the hell out of DH, kicked me, went back to jump on his brother and ran around screaming and banging furniture against the walls. He's mostly ok right now but I'm kind of in a state of panic wondering when the next round might come.

I need coping techniques for all of us. He admits when he's calm he doesn't like to be out of control, but when we're all in the middle of it we just don't know what to do.

Is my best bet to have him evaluated and go from there? Where do I start?
post #2 of 10
I would listen to your heart. I knew for a long time that my son was not "typical". I am wondering now if earlier intervention would have helped him. Persoanlly I would go for the eval.
Best of luck to you.
post #3 of 10
Well, I totally understand gluten and lack of sleep being triggers for behavior...but try to keep in mind that the "groundwork" has to be there for something to be triggered. Lack of sleep might trigger yucky behavior for the typical kid, but it doesn't turn them nutzo like it does ours...and gluten probably really doesn't bother most kids that much (if at all, although it does affect my child w/Asperger's, too).

An eval would probably really help you to understand his behaviors better, plus give your family the support you need. Your younger child needs you, too. It's tough to be the sibling to a child who demands Mom and Dad's constant supervision and attention, let alone one who can be so rough.

You need and deserve to have some peace in your life. What you are going through doesn't have to be the path you all stay on, no matter what the "diagnosis" might be.

HUGS

mrsfru
post #4 of 10
Thread Starter 
We're back to sweet loving slightly quirky DS after more than a week of truly gluten-free. His behavior took a turn for the better by Tuesday or so, and even with a really busy weekend full of too much activity and too much sugar but NO gluten, he's just a different kid. Right now I'm almost unable to remember why I was so upset last week. Well that's not quite true. I do remember, vividly, but it feels unreal.

If I took him in for an eval like he is now, I'd surely be told that he's a totally normal 5yo kid.
post #5 of 10
Quote:
Originally Posted by tsfairy View Post
We're back to sweet loving slightly quirky DS after more than a week of truly gluten-free. His behavior took a turn for the better by Tuesday or so, and even with a really busy weekend full of too much activity and too much sugar but NO gluten, he's just a different kid. Right now I'm almost unable to remember why I was so upset last week. Well that's not quite true. I do remember, vividly, but it feels unreal.

If I took him in for an eval like he is now, I'd surely be told that he's a totally normal 5yo kid.
Actually, even though his behavior is much improved, I bet a trained therapist (OT) or a developmental behaviorial ped would be able to see it. You might be very, very surprised. There is soo much more to our kiddos than just their good or bad behavior. There are other less obvious difficulties that factor in to their behavior, and these are the things that the pro's can help with the most. I'd still call and make an appt for an assessment. It can't hurt. It can only help. Those extra services can make all the difference on the rough days.

GL!

mrsfru
post #6 of 10
Quote:
Originally Posted by mrsfru View Post
Actually, even though his behavior is much improved, I bet a trained therapist (OT) or a developmental behaviorial ped would be able to see it. You might be very, very surprised. There is soo much more to our kiddos than just their good or bad behavior. There are other less obvious difficulties that factor in to their behavior, and these are the things that the pro's can help with the most. I'd still call and make an appt for an assessment. It can't hurt. It can only help. Those extra services can make all the difference on the rough days.

GL!

mrsfru


Well trained OTs and others know that a percentage of SPD kids are gluten sensitive. An assessment could help, won't hurt.
post #7 of 10
I would get an assessment done. I will tell you what my son's psychiatrist told me (my son has bipolar disorder and anxiety disorder - diagnosed at age 7) in regards to one child beating on siblings - it is not allowed and not acceptable. Just because it's a sibling doesn't make it any better. He told me that if he (or a teacher or another mandatory reporter) found out that the other children in our home were being hurt by my son that they would either remove my son or remove the other children. The environment you are describing is not safe or healthy for anyone involved. Also, having lived through (well, still living through) this with my son HE doesn't want to feel that way either. They dont' want to feel angry, manic, confused, aggressive. I would say get him looked at just to be on the safe side for everyone.
post #8 of 10
My son's eval was during a very good period. I thought for sure he wouldn't get a diagnosis and we'd be sent on our way with a typical child. He received an Asperger's diagnosis and we were in shock. After a month of reading I felt like a fool for not seeing it all along, but I didn't know what to look for.

So I agree with pp's that even on gluten free good days, a trained professional will see what's there.

Have you tried cutting out dairy as well?
post #9 of 10
I would make the appointment today; don't wait until he has another "off" day.
post #10 of 10
Oh man, I have a high needs 2 y/o - has been like that since the day he was born! He has an intense need to crash, bang, roll, run, climb, pinch (me), bite (me)...the list goes on and on. We did figure out that he is casein-intolerant (took it out for ear infections but it thankfully improved the sleeping and super aggressive behaviors). He had an evaluation on the up-swing - he was honestly having a 5 star day when they came to assess him - and he didn't qualify for services because he doesn't have a devt. delay. BUT the OT that came to assess him informally diagnosed him with SPD, a kid who is a sensory seeker. We started private OT and she has helped us explore his triggers and solutions - they call it a "sensory diet". Wow, has it ever helped. Is he still intense? YES. He can be annoying to no end (the most impatient child e.v.e.r) and can still spiral out of control, but learning how to deal with him and WHY he was doing those things (literally, his body is seeking that stimulation) has been incredibly helpful.

Hugs - I know how you feel.
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