Anyone else dealing with this? Anyone else dealing with 3 years of chemo?
I'm at the beginning of what looks to be a steep learning curve and a long bumpy road. I would love to find a community here.
big hugs for you and your little one, mama. I hope you can find some support here.
My sister was diagnosed with leukemia (ALL= Acute Lymphocytic Leukemia) when she was 17. She will be hosting a party in November this year to celebrate 15 years in remission...and I hope for a similar outcome for you!
The protocol described by a PP was what we experienced 15 years ago: 1 month of remission induction...really intense, awful chemo. Then a few months of radiation + chemo to prevent any spread to other parts of the body. Then 2 years of more mild maintenance...though she was still ill, she was able to attend school for much of this time, sometimes in the classroom, sometimes working from home.
She found organizations like Candlelighters (which is canadian) very helpful, and my mom also connected with other parents. Our hospital social worker at the time was excellent as well.
Was browsing and came across your thread so I hope you don't mind me chiming in, I am so sorry to hear your little boy has leukemiia My nephew had Leukemia and my my brother and sister in law found this book a great help http://www.amazon.com/Childhood-Leukemia-Families-Caregivers-Centered/dp/1449380433/ref=sr_1_1?ie=UTF8&qid=1291724851&sr=8-1 .
I hope your son has a speedy recovery.