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Help me out here, please...

post #1 of 3
Thread Starter 
I have some health stuff going on. When I saw the Neurologist he said I could technically be diagnosed with Multiple Sclerosis but that he wanted all sorts of other testing to be done before definitively diagnosing it. I have lesions on my cervical spinal cord together with areas of facial numbness, problems with urinary and fecal incontinence, and various other things going on. Blood tests all came back clear and now I'm on to invasive tests.

So backstory done, yesterday I had ART, a colonoscopy and an endoscopy. I don't react well to anesthesia and they had to give me a TON to knock me out. I didn't wake up until this morning and I still feel pretty dizzy and crosseyed. Obviously, they couldn't give me any results afterwards and as my father had driven me, I requested they not give him the results (he isn't aware of exactly what is going on, just that I have some health issues that need testing). They had instructed me prior to the testing to call in the next morning to get results. I called in this morning and was told (after the receptionist checked my file) that the nurse would be calling me to set an appointment to get the results. When I reiterated that the doctor had specifically told me to call in to get the results, the receptionist sighed sympathetically and said that they had to call me to set an appointment to discuss the results.

To me, that sounds like they have bad news. But bad news about what? My understanding of the goal of the testing yesterday was to see how my muscles and nerves were acting and interacting. I promised myself not to Google anything after the possible MS diagnosis and am trying to stick to that promise but am going slightly batty. Any thoughts?
post #2 of 3
Sometimes they want to see you because they want to discuss further testing, because nothing definitive came up, so try not to worry.Also, Lyme can mimic MS so I'm told (I was tested for MS with MRI with contrast of brain stem, and I have since been diagnosed with Lyme Disease) so it's possible that it's something else.
post #3 of 3
Thread Starter 
Thanks for your reply. I've calmed down since yesterday quite a bit. The conversation with the receptionist really threw me for a loop. I came to the same conclusion you did about the further testing.

My blood work included Igenex testing for Lyme and it was negative. I understand they are going to retest after a period of time. There are a ton of other diseases that can mimic MS (advanced syphilitis anyone?) but all my bloodwork was clean. From the Neurologist, my understanding is that the other testing is going to be quite extensive and could possibly take quite a long period of time. Of course, I just want answers!

Again, thank you for your reply.
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