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it's SPD!

post #1 of 13
Thread Starter 
I took ds to an OT a couple of weeks ago to look at his fine motor and possibe SPD. I've been suspecting some sensory integration issues in him for a while that would explain some of his beyond normal challenging behavior and a collection of seemingly unrelated issues. I finally picked up The Out of Sync Child and he hit a LOT of the items. The OT confirmed what I was thinking.

Ds reacts very strongly to loud sounds (by going uncontrollably wild, not by avoiding them), he is extremely sensitive visually (thus his huge meltdowns after screen time) and auditorally (takes a long time tuning out outside noises when trying to concentrate), and he seeks proprioceptive and vestibular sensations (thus his constant movement, stomping feet, spinning, etc). And his motor planning and fine motor are related too! A kicker for me was his description of what his body felt like when he was trying to relax or fall asleep - like ants crawling on his back and tummy, or like white noise on the tv.

Anyway, they started OT with him last week and are setting up a sensory diet for him. The first thing is brushing and joint compressions several times per day (takes a couple of minutes). They said often changes are evident within a couple of days. Lo and behold, the day after we started, my mom made a comment about how mellow he was that day - not in a lackluster sort of way, just calm and focused. That day, he also looked at some pictures on the computer (dynamic, panoramic views that he could move the mouse to look at different angles) and then independently quit the program and sat down to read - something that normally I'd have to tear him away from with 5 minute warning and an ensuing tantrum anyway. My mom had no idea we'd started anything at home, so it was a completely unbiased observation. Also, today, he had a lot of fun at his birthday party, but he never lost control and we never even had to correct or guide him AT ALL! Sounds little, but it's HUGE!

It may be coincidental, but I'm pretty excited so far.
post #2 of 13
That's so great! I hope this trend continues.
s
post #3 of 13
Thread Starter 
Thanks, Casha'sMommy! Me too!

PS - Where are you "where the corn grows?" Me too, sort of.
post #4 of 13
Glad you found some answers!
post #5 of 13
Quote:
Originally Posted by Rose-Roget View Post
Thanks, Casha'sMommy! Me too!

PS - Where are you "where the corn grows?" Me too, sort of.
We're in Central Indiana. you?
post #6 of 13
Hurray for mother's intuition being proven correct yet again! Glad you were able to narrow it down and get some immediate results from your efforts. Keep up the good work!
post #7 of 13
Thread Starter 
Quote:
Originally Posted by Casha'sMommy View Post
We're in Central Indiana. you?
Nebraska. Another corn state, I guess. Drove to Bloomington once after high school, but other than that, I haven't spent any time in IN.

Thanks for your support everyone! It's amazing how spot on mother's intuition can be sometimes.
post #8 of 13
Thanks for posting this. I'm starting to explore my DD having some sensory issues and it helps to read what you're doing with your DS.

DD has never been a great sleeper, but she had a bedtime tantrum this weekend that took the cake. It lasted 1.5 hr and ended with her breaking a lamp and tearing up some books. People have been trying to convince me for a long time that she was just going through normal 3 y.o. stuff, but my intuition tells me that it's more than that.
post #9 of 13
Quote:
Originally Posted by Rose-Roget View Post

Ds reacts very strongly to loud sounds (by going uncontrollably wild, not by avoiding them), he is extremely sensitive visually (thus his huge meltdowns after screen time) and auditorily (takes a long time tuning out outside noises when trying to concentrate), and he seeks proprioceptive and vestibular sensations (thus his constant movement, stomping feet, spinning, etc). And his motor planning and fine motor are related too! A kicker for me was his description of what his body felt like when he was trying to relax or fall asleep - like ants crawling on his back and tummy, or like white noise on the tv.
Congratulations on your diagnosis! Sounds weird, I know... but so helpful to know what's really going on. YOU KNEW there was something, that he needed something else. It was your advocacy and your intuition that started you down the road of getting him some good help.
The above description is my nephew, to a T. We've always known he was a good kid with some (very!) challenging behaviors and finding out WHY was really helpful.
I'd like to connect with some other SPD family members and learn what works (especially for the the sensation seeking kiddos), and how it is to work with the schools, with this relatively new diagnosis.
Keep us posted

CB

PS. What a great description, to feel like TV static, how creative!
post #10 of 13
Thread Starter 
Thanks for your support, everyone! I can't express what a relief it is to know that many of ds's "behaviors" ARE beyond him to a neurological level, and that there ARE strategies to deal with them.

I have spent many years feeling like I was just a bad mother, as hard as I tried to do things to the best of my ability and as lovingly as possible - I felt like I just failed. Ds could melt down or be impulsive or "troublesome," and I have yelled at him more times than I ever thought I would. At times he is so full of light, so bright, so sweet, and you just know he's a good kid. But other times there would be those extremely challenging behaviors that make him look like he's undisciplined or make me look like a bad mom. Someone actually said to me when I was venting once, "No offense, but why did you become a mother? It's hard work." Obvioulsy, I knew it was hard work, but the level of difficulty some days was beyond what I thought normal... And now I know why - because it wasn't!

I heard the "age appropriate" comments for years, and I accepted it, even though I always had a deeper sense that something was different, more intense. More recently, my mom has been using the word "defiant" in reference to ds more than once, and I can't express how much that hurt me because I just knew it wasn't all a conscious choice, you know? His profile, though, is not the classic sensory over-responder or avoider who shrinks from loud noises or bright lights or freaks out at tags in clothes or refuses textures of foods. His reactions are different and his profile is different. Even working in special education, I had never realized SPD could be so diverse.

We haven't worked with the schools on this yet. I don't know if I'm going to. The teacher kind of looked at me blankly when I tried to explain it, and I'm fairly certain with his level of competency, the OT at the school would not agree to serve him. I may look into a 504 plan if that seems necessary. I will certainly continue to advocate for him, and point out when certain "behaviors" could be sensory related. For example (and it's moot at this point), he didn't notice his table leave for recess after lunch twice during the first week of school. I believe that he was completely over-stimulated by the lights and noise in the gym-teria that it took him 15 minutes to settle in and then he had to block out everything in order to concentrate on eating...so he missed his class leaving (which, incidentally, led to him missing recess because nobody in the school could be bothered to help a lost 5 year old wandering the school to find the playground).

I'll keep you posted. We'll have our next OT session next week and we'll continue the brushing at home.
post #11 of 13
Quote:
Originally Posted by Rose-Roget View Post
We haven't worked with the schools on this yet. I don't know if I'm going to. The teacher kind of looked at me blankly when I tried to explain it, and I'm fairly certain with his level of competency, the OT at the school would not agree to serve him. I may look into a 504 plan if that seems necessary. I will certainly continue to advocate for him, and point out when certain "behaviors" could be sensory related. For example (and it's moot at this point), he didn't notice his table leave for recess after lunch twice during the first week of school. I believe that he was completely over-stimulated by the lights and noise in the gym-teria that it took him 15 minutes to settle in and then he had to block out everything in order to concentrate on eating...so he missed his class leaving (which, incidentally, led to him missing recess because nobody in the school could be bothered to help a lost 5 year old wandering the school to find the playground).

I'll keep you posted. We'll have our next OT session next week and we'll continue the brushing at home.
I gave ds' teacher most of his OT evaluation (just left out the introductory/bio paragraph) before school started. The evaluation is a good description of ds and methods that can be used to help him. Ds' OT actually wrote it with the awareness that we might just hand it over to the school.

Ds' 504 plan is pretty simple:

Quote:
Describe areas of need and action to be taken: Ds needs help working through transitions. Ds also tends to need more space because he tends to isolate himself when possible on the playground and in the classrooms. Ds also responds best to a more consistent schedule where he knows what to expect.
Under "Accommodations" it basically says to provide visual daily schedule; provide ds with choices w/consequences, rewards; provide ds with prompting for upcoming transitions.

With a 504 plan you should only have to advocate once (as opposed to repeatedly "reminding" them of "X") and you would have the plan to refer everyone back to. Verbal only agreements are not binding; people can forget or deny that anything was agreed to. Also, your ds' needs can seem overwhelming to the teacher as well; it may just be more productive to have an official written plan that she can refer to.

You could include in the plan that your ds needs to be prompted to move to another activity (like recess), or that he may want to sometimes wear earplugs, sunglasses, or a hat/cap to reduce sensory overload.
post #12 of 13
Welcome to the club . We tried monthly meeting but too many kids melted down/ramped up when mom went out for an evening.
post #13 of 13
Quote:
Originally Posted by jecombs View Post
Thanks for posting this. I'm starting to explore my DD having some sensory issues and it helps to read what you're doing with your DS.

DD has never been a great sleeper, but she had a bedtime tantrum this weekend that took the cake. It lasted 1.5 hr and ended with her breaking a lamp and tearing up some books. People have been trying to convince me for a long time that she was just going through normal 3 y.o. stuff, but my intuition tells me that it's more than that.
JE - always follows your intuition - it won't lead you wrong. I could kick myself for all the times I pushed away that little angel on my shoulder whispering in my ear. I've finally learned to listen to her - especially when it comes to my son.
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