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Testing for disabilities

post #1 of 18
Thread Starter 
I'm wondering about kids with various disabilities having trouble reading. I see the benefit in having your kids tested if you think there might be problems.

My questions are: Who does the testing? What do they typically test for? When is it good to have the testing done? And any other questions I would ask if I were knowledgeable enough on the subject to know what to ask.

ETA: I guess another question would be how homeschooled families, in particular, go about all this.

Thanks.
post #2 of 18
My ds (just turned 6) has no firm diagnosis, but he has been tested privately by an neuropsychologist, an occupational therapist, a speech therapist, a pediatric neurologist, and two developmental optometrists.

In our case, we had the neuropsychologist do the full battery of educational tests (he just turned 5 at the time). Because he was so young, many of those tests were either not normed, not sensitive enough, or simply made invalid by my son's refusal to perform as directed. It took 4 two-hour sessions to do those tests. Many of the findings were useful for us to know, but I think we would have received better information if we had waited.

The OT diagnosed SPD, the speech therapist found a language processing disorder, and the optometrists found some ocular-motor and vision processing issues. The pediatric neurologist did not find any pathologies (thank goodness).

I think most schools wait for a lot of testing (except the spectrum-issues that are screened through EI) until at least the 2nd grade. By that time, the tests are more sensitive (supposedly), and certain developmental issues have hopefully resolved themselves. We opted to start testing early because my dh has a very, very strong history of learning disabilities in his family.

In ds' case, he is probably on grade level or higher in most academic areas except writing. He is probably at least a year or two behind in motor skill areas. I think most schools would never identified him for testing, but my mommy gut just knew that he did some things differently, and I wanted to understand how to best address his learning needs. For us, testing has been helpful.
post #3 of 18
Thread Starter 
How did you set this all up?

My daughter has been in Speech Therapy for a year. At one year of age I was doing the ages and stages questionnaire and picked up a delay. After she was tested and found to have a speech delay I contacted her birthmom who told me of a strong family history of speech delays. Anyways, I did all that through early intervention, but I don't know where to turn if we need testing further down the road. Or even how I'll know if she needs more testing.
post #4 of 18
I am looking forward to seeing other responses but I will at least share my experience.

I was a special education teacher before deciding to homeschool my kids.. DS is on the autistic spectrum but I honestly didn't even know it....it wasn't something we learned about when I was in school. We benefited the most from an evaluation by an occupational therapist (OT) He was diagnosed there with a sensory integration disorder. The therapy was a LOT of fun and crazy effective. He had never really written before and on the way home from his first session (at age 7) he picked up a pencil and wrote a letter to one if his friends....a whole page! I really believe that sensory issues are very prevalent as I now see them in SOOOO many kids in every day life. I think that a lot of kids that are labeled ADHD actually have sensory issues (we did initially have a psychologist say that DS had ADHD... I know ADHD and he doesn't) I WISH I had known more about this when I was teaching in school because I think it would have helped so many kids.

BTW, between diet changes, sensory therapy, and NAET treatments, DS is doing amazing... happy, learning, and thriving!

Anyone wondering about possible learning issues, sensory issues, or attention issues, check out http://gapsdiet.com/ we were sent there by our naturopath and it seriously changed DS's life....
post #5 of 18
DS was in speech therapy from an early age too..... really trust that mommy instinct. I was told that I was overreacting and nuts by tons of people. I am grateful now that I pressed on with it all. this checklist was really helpful also

http://www.sensory-processing-disord...checklist.html

HTH
post #6 of 18
Quote:
Originally Posted by Tassy View Post
DS was in speech therapy from an early age too..... really trust that mommy instinct. I was told that I was overreacting and nuts by tons of people. I am grateful now that I pressed on with it all.

HTH
My dd too (speech from 3-5). We had an audiologist screen her for APD (at nearly 8)--he would have done the testing too if he found any indication of need. I also had an IQ test done--I felt it would help me know if there was a LD or if she was simply going to be slower at learning. Also, in our area, a couple universities have it set up to do the testing. They use graduate students who are monitored by their teachers.

It really depends on what you want tested. If you really have no idea what is going on, but feel that something is up with learning difficulties, I would start with an neurological psychologist? Or a neurologist that specializes in learning issues. They are expensive (my opinion) but they cover a lot of ground. If you are thinking more along the sensory issues or developmental issues, I would find a pediatric therapy center. Usually they have OT, PT, ST there and can do a complete screening followed by in depth evaluation where needed. Around here that is about $300 (I have heard). If you are only concerned with reading, you can check for vision issues (pediatric optometrist that is certified in vision therapy). Also, you can have a barton tester look for signs of dyslexia. http://www.bartonreading.com/dys.html

We were concerned about our dd for dyslexia. She was in the public schools and I tried to go through the resources there for testing. Our schools won't test for any learning issues until a child is 3 grade levels behind. That wouldn't do for me so I pulled her out. I didn't pay for dyslexia testing. I am fairly certain she is dyslexic (I would be completely floored if she wasn't) so I didn't see the benefit of a diagnosis for me. I just decided to go about teaching her with methods that have been used effectively with dyslexics. Our first step was remediating phonemic awareness skills. I love the yahoo group for dyslexics.

Before you go about testing, ask yourself "how will this test help me and my child?". Our audiologist did say that there wasn't much benefit to an APD diagnosis unless the child was in school--then it can be used to request accomodations. I may eventually get a diagnosis for my dd, it will depend on what I can expect the diagnosis to do for us.

Amy
post #7 of 18
Thread Starter 
Thanks for the info. We live near a university so that might be a path at some time.

At this time I don't have any specific concerns for my kids, especially not my 4.5 year old. My 2 year old is adopted and we have spotty family history. I just want to know how to go about testing if it seems like a path we might want to take.
post #8 of 18
Quote:
Originally Posted by SundayCrepes View Post
At this time I don't have any specific concerns for my kids, especially not my 4.5 year old. My 2 year old is adopted and we have spotty family history. I just want to know how to go about testing if it seems like a path we might want to take.
You asked specifically about reading, so I didn't respond as my DD's sn are not related to reading. She has autism. The evaluation for autism is called "A full neuro psychological evaluation." It is a battery of tests, the exact ones being determined by the doctor doing the eval based on the child's age, approximate mental capabilities, ability to corporate, etc. It is also used for a variety of other issues besides autism.

If you suspect problems, the first person to check in with is a developmental pediatrician, who can help figure out what sort of specialists your child needs and what tests and evaluations are the most appropriate.

This is a VERY long process and can easily take a year or more.

If you are homeschooling a child and suspect special needs, I highly recommend getting evals and documenting exactly what is going on, because without a solid paper trail, should your life circumstances dictate putting your child in school, they school cannot do anything to accommodate your child's differences without a proper diagnoses, and it takes far longer to get a proper diagnoses than most people realize (who haven't gone through the process).

Having more information about what is really going on with your child *could* help you homeschool them in ways that are more appropriate to them, as well as communicate more fully with other adults who interact with your child, even if they never go to school.

Because of our experiences, I believe that ignoring a child missing common development milestones, including those related to reading, writing, and math is a gamble. There is a huge push for early academics right now, and for many kids it isn't helpful or appropriate. But based on my reading and experiences, and I think that if a child isn't catching on to the 3 Rs in a reasonable way by they time they are 7 or 8, it's a red flag. It might not mean anything, but it might.

(My DD caught on to reading in age appropriate ways, but her fine motor skills are such that she still struggles with writing. Math never made much sense to her. She didn't start really getting it until she started school and had a teacher with expertise teaching math to kids with special needs. Her other red flags are sensory issues and social development.)

I deeply wish that I had done things differently, and believe that if I had, they would have gone better for my daughter. I'm posting this in hopes that it can help another family avoid some of the pain that we've been through.

Everyone's situation is different. What it means to homeschool in different places in different, public schools are different everywhere, and other options such as charters, private schools etc are different. Every child is different. I'm not trying to tell anyone what is right for their child.

But everything I've put in this post no one told me when my child was small, and I read all the right books, went to the conferences, hung out on the message boards. There were some huge chunks of information that if I had had, I might have made better choices. This biggest one is this:

If you suspect problems, start the evaluation process sooner rather than later, because it can be a VERY long process, and there really isn't much anyone can to do help your child until it is complete.

This is a very honest post, written from my heart, about a subject that is difficult for me. I would prefer to not get beaten up over it.
post #9 of 18
Thread Starter 
Linda on the move, your post was VERY helpful. We actually have a great developmental pediatrician in town. We saw her when my son was young and we had an autism scare (he's not on the spectrum, but we had a couple red flags we wanted checked out.)

So, if a dev ped is the place to start, I can do that. My daughter's only 2 and is in early intervention strictly for her speech. So, she has been assessed age appropriately. There are absolutely no concerns about autism with her. It's the academic stuff I'll want to monitor.

Do you think 7 is early enough to test? Should we see a dev ped at 5ish IF we think there are problems? Again, I'm not saying she has problems, she has scored low on the ages and stages questionnaire from time to time and with her spotty history I just want to make sure I'm not following an unschooling path with someone that needs a different style of homeschooling.

Thanks.
post #10 of 18
Thread Starter 
Actually, Linda, I have the email address for the dev ped. I will email her and ask her advice. Thank you so much for the info as this is a great relief to know where to start asking my questions.
post #11 of 18
I knew something was off with DD1 and I also lean towards unschooling. By the time she was 5, I couldn't deny anymore that something was wrong so we started evals then. What caught my eye then, I really couldn't even put into words, I had known she was different for quite some time. While we didn't do "formal" schooling she had more then enough exposure to various things but she never seemed to grasp any concepts so I changed gears and started working more on gentle hsing, nothing. She was then 5.5 and couldn't recognize her own name, knew maybe 2 letters and could barely count. She was first dxed with SPD, we started doing intensive OT for that. I was positive she had learning disabilities but we had to get through OT first because no one wanted to evaluate her for LDs due to the SPD and her age. Test for dyslexia, etc.. for written for children age 8 and up, the local school district was no help, told us to come back when she was in 3rd grade. I contacted all sorts of clinics, colleges, traveled all over the state. FINALLY got into a clinic 400 miles away that could test a child that young. Two weeks before she turned 6, she received her first dyslexia dx.

After we had her dx, no one could tell me what to do with her. The school system here does nothing for dyslexia, she was still so young and struggling. We finally found a private language therapist who was amazing and wanted to work with DD1 so bad because she was so young. Often by the time she gets her students, they are much older and have been struggling for so long, it is hard to help then. DD1 is now 7.5 years old, we are no longer hsing, she is in 2nd grade at a tiny, crunchy, private school. She works with her therapist daily there, she can read now! It is slow and she is still barely at a 1st grade level, she will continue to work with her therapist for several more years. She doesn't understand coding, every single little thing has to be taught to her, then she will have to learn coping skills to get her through the rest of her life. I am so happy that I listened to that voice in my mind that said something was seriously off with DD1 and leaning. EVERYONE told me that I was crazy, she was too young, "give her more time". I was seen as the pushy mom who wanted unrealistic things out of my child, I can't even begin to tell you how many evals and therapists I had to go to to get her help, all the phone calls where they basically laughed at me and hung up. What no one ever understand is that I am the farthest thing from pushy, I am so laidback, but I knew is that my child had a problem and I was going to get her help, no amount of time was going to fix her problem.

I certainly would follow up at age 5 if you still have these questions in your mind.
post #12 of 18
Thread Starter 
Thanks for sharing your story peony. It reinforces my watchful eye.
post #13 of 18
Our DS1 was tested at age 3 by an early intervention team that consisted of a social worker (she asked about family routines, dynamics, and behavior patterns), an occupational therapist, and a speech-language therapist.

His only other evaluation has been under a COVD developmental optometrist and it has included ocular-motor and visual processing tests. After he completes the full course of vision therapy, if he is still having so much trouble with memory and reading sight words, I may go looking for further testing. Probably with a neuropsychologist.

Our DS2 appeared to have a possible fine motor delay and was tested at age 3 by an occupational therapist. Our ped was recommending the normal course of testing through the school district, but I really didn't want to use them. I found a private agency and did it independently. Our medical insurance paid for it. This had nothing to do with reading or "learning" though.
post #14 of 18
Thread Starter 
The dev pediatrician recommended me to a group that does home based evaluations and family centered interventions for children under 5. I called them and they use the asq as their sole evaluation tool. I already do that online. After talking with the woman it sounds like they would work with us to do the type of activities we already do. So...

I got onto amazon and found this book Reading Disabilities: Beating the Odds http://www.amazon.com/Reading-Disabi...5012184&sr=8-4

Has anyone read it? It's $25 but gets great reviews. Our library doesn't have it.
post #15 of 18
If you are only worried about reading, I would start with a COVD developmental optometrist to rule out any vision/eye control/eye teaming/visual processing issues first.

http://www.childrensvision.com/
post #16 of 18
Thread Starter 
Quote:
Originally Posted by laundrycrisis View Post
If you are only worried about reading, I would start with a COVD developmental optometrist to rule out any vision/eye control/eye teaming/visual processing issues first.

http://www.childrensvision.com/
Thank you for this link. I went to an amazing optometrist when I was a child. He had me do exercises for my eyes. I took the first batch of kids to him and he did the same with our eldest and kept him out of glasses. Unfortunately he has retired and I couldn't find anyone to replace that kind of care.

I took my kids to a pediatric optometrist (or maybe opthamologist) a few months ago. He told me to bring my son in again if he's having trouble reading street signs in a few years. I was so disappointed in his care. The link you gave me is to the type of eye care I want our family to receive.

I will have to wait until next spring as our insurance only covers one visit a year, but since my kids are little I'm okay with that.

Thanks again for this lead.
post #17 of 18
Quote:
Originally Posted by laundrycrisis View Post
Our DS2 appeared to have a possible fine motor delay and was tested at age 3 by an occupational therapist. Our ped was recommending the normal course of testing through the school district, but I really didn't want to use them. I found a private agency and did it independently. Our medical insurance paid for it. This had nothing to do with reading or "learning" though.
short term it might not seem to, but long term, it does.

Fine motor deficits (as opposed to delays) can interfere with person's ability to keyboard as well as write, making written communication far more challenging. My DDs fine motor skill are such that she has a VERY hard time writing neatly enough while doing math to keep track of what is going on in the problem. (She's in pre-algebra now).

Fine motor delays are a red flag for a variety of sn's.

Quote:
Originally Posted by Peony View Post
DD1 is now 7.5 years old, we are no longer hsing, she is in 2nd grade at a tiny, crunchy, private school. She works with her therapist daily there, she can read now!
I'm really glad you found what works for her! And at such a young age!

One last thing -- if you have concerns about your child and are wondering where to start, the Special Needs Board here at mothering is a GREAT resource. There are moms there whose kids are dealing with a variety of challenges, and posts with titles like "should I be worried?" or "where do I start?" are always welcome.
post #18 of 18
Thread Starter 
Quote:
Originally Posted by Linda on the move View Post
One last thing -- if you have concerns about your child and are wondering where to start, the Special Needs Board here at mothering is a GREAT resource. There are moms there whose kids are dealing with a variety of challenges, and posts with titles like "should I be worried?" or "where do I start?" are always welcome.
That's a great idea. I will post there.
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