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I'm scared......

post #1 of 24
Thread Starter 
Long story short, been dealing with attacks for over a year that I told myself was anxiety attacks. Some were very short (10 or 15 minutes) and some were very long (6, 7, 8, 9 hours). Always had chest pain, upper abdominal pain, shortness of breath, dizziness, and nausea. Had bad bad bad attack a little over a month ago, after 6 or 7 trips to emergency I was diagnosed with gallstones. Had consult with the surgeon a week and a half ago and gallbladder will be coming out.

Surgeon says that he is confident surgery will take away my pain, but not so sure about the dizziness and nausea, he thinks that's caused by something else. My GP says she is confident that surgery will take care of the pain, dizziness and nausea. I saw another doctor in emergency a few days ago for uncontrollable pain and he thinks the surgery would get rid of my nausea, but not the pain or dizziness.

I'd convinced myself for over a year that I was having anxiety attacks and I"m afraid that's what the problem still is. I'm afraid that I'll go in and have my gallbladder removed and all of my symptoms will still be there because the gallbladder was still ok despite the stones. I notice when my pain gets really bad or the nausea gets really bad I start getting anxious. Last few days I've been keeping on top of the percoset and gravol and things have been much better. Not perfect by any means, but I can at least function. Also eating NO fats. I tried low fat with no relief of symptoms. I expressed my concerns about anxiety to a doctor I saw and he said "well these stones are defenitely a problem because of the size (1.8 cm's is biggest), so we'll deal with the gallbladder first, and then deal with any anxiety if there is any afterwards".

I'm just done though. I'm so sick and tired of feeling sick and tired. I spend a lot of time crying because of how I feel. I'm starting to feel like I'm stuck in a deep dark place and can't see the light at the end of the tunnel. These past few days I've actually been able to make meals, walk my kids to the bus stop, but I'm still not able to get down on the floor and play with them or run around outside and it's depressing. ( If this surgery doesn't take care of the pain, nausea, and dizziness, I'm honestly afraid of my mental being. I I still have 2-3 weeks wait for my surgery, so I'm stuck dealing with this until then.
post #2 of 24
Sweetheart, you WILL get through this. I promise. Its really bad at times, and I cried a lot, too. I missed the first day of my DD's kindergarten. I didn't get to see her get on the bus. I didn't get to take any pictures. I didn't get to pick her up when she got home on the bus. I cried because I couldn't stand the nausea any more. I cried because I wasn't able to be the mom I wanted to be. I cried because I was sick and tired of feeling this way. Then I'd have a few good hours, or a good day, and feel more positive. Its going to be like this for the next few weeks. Up and down.

This WILL pass. You will feel so much better. The nausea, pain, and shaky feelings that feel like anxiety will pass. I had anxiety before the surgery, and haven't had any since, but its only been 8 days for me, so I can't yet say for sure that the surgery cured what I thought was anxiety attacks, but at the very least its made it a lot better, I can say that for certain.

Your gallbladder is probably worse than the ultrasound is able to show (mine was). There is probably also inflammation, decreased ejection fraction, and scar tissue. There is a darn good reason you feel so bad - your gallbladder is sick, and soon you will feel so much better. I promise.

I was sick for almost 5 months. The second month I started doing acupuncture, that helped to decrease the nausea/pain a great deal. It might not be worth it at this point since your surgery is so close, but you could try acupuncture if you feel up to driving to the acupuncturist or have someone who can take you.
post #3 of 24
Oh and it took 2 weeks of non-fat for the symptoms to get better. It wasn't immediate relief.
post #4 of 24
It probably is partially anxiety but still caused by the gallbladder. You get anxious about whether to eat something because it might cause pain. If you aren't eating as much then it can cause nasuea & dizziness(especially if your blood sugar is dropping or instable due to not eating as you could before).
post #5 of 24
I am so sorry you're going through this. I dealt with gallbladder attacks for about a year, maybe longer - I can't remember, that were horrendous, and I wouldn't wish that pain on anyone. When I finally went to the ER and demanded that they do an ultrasound on my gallbladder, they found so much inflammation that they kept me hospitalized on IV fluids only for a few days before they felt like it was safe enough to operate. It was hell. But I will tell you that shortly after the operation when the initial pain subsided, I felt so much better. I could finally eat again! It was absolutely wonderful, and I ate so much ice cream you would not believe it.

I truly believe that you will feel tremendously better after your operation. I wish you the best of luck and hope everything goes smoothly for you.
post #6 of 24
Can you bump up your other thread, we've discussed this before right?

Have you considered adrenal and thyroid issues re: anxiety? I buy the pain and nausea but I really think the anxiety is related to something else if I'm remembering your previous thread correctly.
post #7 of 24
Thread Starter 
Quote:
Originally Posted by BellinghamCrunchie View Post
Its really bad at times, and I cried a lot, too. I missed the first day of my DD's kindergarten. I didn't get to see her get on the bus. I didn't get to take any pictures. I didn't get to pick her up when she got home on the bus. I cried because I couldn't stand the nausea any more. I cried because I wasn't able to be the mom I wanted to be. I cried because I was sick and tired of feeling this way.
Totally. I've missed so much this past month and a half. It sucks.

Quote:
Originally Posted by CarrieMF View Post
you aren't eating as much then it can cause nasuea & dizziness(especially if your blood sugar is dropping or instable due to not eating as you could before).
I was just explaining to my hubby that when I'm super dizzy I feel a bit better
if I drink something high in sugar so I'm sure my blood sugar is a bit out of wack.

Quote:
Originally Posted by JaneS View Post
Can you bump up your other thread, we've discussed this before right?

Have you considered adrenal and thyroid issues re: anxiety? I buy the pain and nausea but I really think the anxiety is related to something else if I'm remembering your previous thread correctly.
This is my last thread about my gallbladder: http://mothering.com/discussions/sho...200&highlight=

I've had my thyroid checked, all of my levels are fine. Even tried a low dose of synthroid and it threw me hyperthyroid. Adrenals have never checked.
post #8 of 24
Thread Starter 
Quote:
Originally Posted by babygrant View Post

Quote:
Originally Posted by BellinghamCrunchie View Post
Its really bad at times, and I cried a lot, too. I missed the first day of my DD's kindergarten. I didn't get to see her get on the bus. I didn't get to take any pictures. I didn't get to pick her up when she got home on the bus. I cried because I couldn't stand the nausea any more. I cried because I wasn't able to be the mom I wanted to be. I cried because I was sick and tired of feeling this way.
Totally. I've missed so much this past month and a half. It sucks.

Quote:
Originally Posted by CarrieMF View Post
you aren't eating as much then it can cause nasuea & dizziness(especially if your blood sugar is dropping or instable due to not eating as you could before).
I was just explaining to my hubby that when I'm super dizzy I feel a bit better
if I drink something high in sugar so I'm sure my blood sugar is a bit out of wack.

Quote:
Originally Posted by JaneS View Post
Can you bump up your other thread, we've discussed this before right?

Have you considered adrenal and thyroid issues re: anxiety? I buy the pain and nausea but I really think the anxiety is related to something else if I'm remembering your previous thread correctly.
This is my last thread about my gallbladder: http://mothering.com/discussions/sho...200&highlight=

I've had my thyroid checked, all of my levels are fine. Even tried a low dose of synthroid and it threw me hyperthyroid. Adrenals have never checked.


 

post #9 of 24
Thread Starter 
Quote:
Originally Posted by babygrant View Post

Long story short, been dealing with attacks for over a year that I told myself was anxiety attacks. Some were very short (10 or 15 minutes) and some were very long (6, 7, 8, 9 hours). Always had chest pain, upper abdominal pain, shortness of breath, dizziness, and nausea. Had bad bad bad attack a little over a month ago, after 6 or 7 trips to emergency I was diagnosed with gallstones. Had consult with the surgeon a week and a half ago and gallbladder will be coming out.

Surgeon says that he is confident surgery will take away my pain, but not so sure about the dizziness and nausea, he thinks that's caused by something else. My GP says she is confident that surgery will take care of the pain, dizziness and nausea. I saw another doctor in emergency a few days ago for uncontrollable pain and he thinks the surgery would get rid of my nausea, but not the pain or dizziness.

I'd convinced myself for over a year that I was having anxiety attacks and I"m afraid that's what the problem still is. I'm afraid that I'll go in and have my gallbladder removed and all of my symptoms will still be there because the gallbladder was still ok despite the stones. I notice when my pain gets really bad or the nausea gets really bad I start getting anxious. Last few days I've been keeping on top of the percoset and gravol and things have been much better. Not perfect by any means, but I can at least function. Also eating NO fats. I tried low fat with no relief of symptoms. I expressed my concerns about anxiety to a doctor I saw and he said "well these stones are defenitely a problem because of the size (1.8 cm's is biggest), so we'll deal with the gallbladder first, and then deal with any anxiety if there is any afterwards".

I'm just done though. I'm so sick and tired of feeling sick and tired. I spend a lot of time crying because of how I feel. I'm starting to feel like I'm stuck in a deep dark place and can't see the light at the end of the tunnel. These past few days I've actually been able to make meals, walk my kids to the bus stop, but I'm still not able to get down on the floor and play with them or run around outside and it's depressing. ( If this surgery doesn't take care of the pain, nausea, and dizziness, I'm honestly afraid of my mental being. I I still have 2-3 weeks wait for my surgery, so I'm stuck dealing with this until then.


 

post #10 of 24
Quote:

Originally Posted by babygrant View Post


I was just explaining to my hubby that when I'm super dizzy I feel a bit better
if I drink something high in sugar so I'm sure my blood sugar is a bit out of wack.



When I wasn't really able to eat anything I was getting that periodically as well.  I was sending my husband to the convenience store on "just get me something made of sugar" runs while I laid on the couch just not able to really do anything.   It was like having vertigo coupled with full body weakness.   I don't know if that's what's going on with you, obviously, but if it helps at all for me it did clear up ... not right away, but taking opiate-based medication can do weird things to my blood sugar too, so once I was back off of the pain meds it didn't happen again.

post #11 of 24
Thread Starter 
Quote:
Originally Posted by Liquesce View Post



Quote:

Originally Posted by babygrant View Post


I was just explaining to my hubby that when I'm super dizzy I feel a bit better
if I drink something high in sugar so I'm sure my blood sugar is a bit out of wack.



When I wasn't really able to eat anything I was getting that periodically as well.  I was sending my husband to the convenience store on "just get me something made of sugar" runs while I laid on the couch just not able to really do anything.   It was like having vertigo coupled with full body weakness.   I don't know if that's what's going on with you, obviously, but if it helps at all for me it did clear up ... not right away, but taking opiate-based medication can do weird things to my blood sugar too, so once I was back off of the pain meds it didn't happen again.



 

post #12 of 24
Thread Starter 

Ugh, I tried 3 or 4 times to reply to this thread and it w*ouldn't work.  Grr.


Surgery is over with.  Had it on tuesday afternoon.  Puked after surgery on tuesday which was no fun.  Wednesday just plain sucked.  I was so nauseated and so sore.  Yesterday I was really sore and still nauseatd.  Today I feel a bit better pain wise but I feel REALLY bloated and lots of pressure in my abdomen.  No diarrhea, but no real BM yet, so I'm hoping I'm not constipated.  Haven't been taking the pain pills because of the nausea so that sucks.  Hmm, that's about it though.  Can't wait to start feeling better.

post #13 of 24
Quote:
Originally Posted by babygrant View Post

I've had my thyroid checked, all of my levels are fine. Even tried a low dose of synthroid and it threw me hyperthyroid. Adrenals have never checked.



I would encourage you to find a functional med doctor and get your adrenals tested according to James Wilson's info. 

http://www.adrenalfatigue.org/ 

Reacting this strongly to thyroid med means adrenal problems... and you have a lot of low thyroid sx.   Standard endo doesn't treat all  thyroid issues ... and Synthroid is junk.... very well since they ignore adrenals.

post #14 of 24
Quote:
Originally Posted by babygrant View Post

Ugh, I tried 3 or 4 times to reply to this thread and it w*ouldn't work.  Grr.


Surgery is over with.  Had it on tuesday afternoon.  Puked after surgery on tuesday which was no fun.  Wednesday just plain sucked.  I was so nauseated and so sore.  Yesterday I was really sore and still nauseatd.  Today I feel a bit better pain wise but I feel REALLY bloated and lots of pressure in my abdomen.  No diarrhea, but no real BM yet, so I'm hoping I'm not constipated.  Haven't been taking the pain pills because of the nausea so that sucks.  Hmm, that's about it though.  Can't wait to start feeling better.



You should be feeling better by Monday, if not sooner. For me, the worst day was the third day (which would be today for you). I didn't take the pain meds either because of the nausea. I'm SO GLAD its over for you! You are going to feel better and better.

 

Be very careful what you eat for a while. Continue doing non-fat if you can. Absolutely avoid any gas-producing foods (you've probably figured that out by now though). Don't take vitamins yet.

 

Ah, so nice that the worst is over :) All those months of pain and nausea soon to be a memory...

post #15 of 24

also low iron is another reason besides adrenal problems to react to thyroid hormone supplements

 

http://www.thyroid-rt3.com/adrenals.htm

 

 (it happened to me, my ferritin is low and also have adrenal issues but I clearly need more thyroid hormone from my sx and family hx)

 

http://www.thyroid-rt3.com/iron.htm 

 

Quote:
  

Iron (or the lack of it) is often a problem when it comes to treating low thyroid conditions (the other common one being adrenals). If you add enough thyroid hormone, either Natural or T3, to do any good and the patient's iron levels are too low then they gets lots of nasty intolerance effects and think it can't be thyroid hormone that they need. There is information on iron on this external link.

 

Instead it's Iron AND thyroid hormone that are needed. The symptoms of low iron are similar to some of the nasty adrenal symptoms that you can get and may well be adrenaline induced. They can  include anxiety, panic feelings, and uneven heart beats. These may well be symptoms that the patient already has at lower levels and hence they are surprised when they get worse treating the low thyroid condition.

 

 


Edited by JaneS - 11/29/10 at 11:40am
post #16 of 24
Thread Starter 

Thanks for the reply.  I will look into the iron.

 

Today is day 6 post-op and I am still so nauseated.  I'm now down just over 40 pounds in 4 months, which isn't bad, but I have lost it without effort.  It's jus tbecause i've been so nauseated for that long.  I also keep having this weird sensation in my esophagus.  It feels like a spasm then I feel a cool liquid come up my throat, I gag, swallow, and it's done w/ith until next time.  It doesn't burn like acid reflux....so really not sure what is going on there.  Anxiety is also still hanging around.

post #17 of 24
Quote:
Originally Posted by babygrant View Post

Thanks for the reply.  I will look into the iron.

 

Today is day 6 post-op and I am still so nauseated.  I'm now down just over 40 pounds in 4 months, which isn't bad, but I have lost it without effort.  It's jus tbecause i've been so nauseated for that long.  I also keep having this weird sensation in my esophagus.  It feels like a spasm then I feel a cool liquid come up my throat, I gag, swallow, and it's done w/ith until next time.  It doesn't burn like acid reflux....so really not sure what is going on there.  Anxiety is also still hanging around.

 

 

That's bile. Its normal for some people post cholestectomy. I had a rough time with it. It can either go downward, causing diarrhea, or reflux upwards, causing nausea, or both. Your body will eventually adjust to the bile flow. Most people adjust rather quickly. But for many people, like me, it will take anywhere from four months to a year. During that time it will slowly get better, though, so its not all bad.

 

The bile is probably also responsible for some, if not all, of the nausea.

 

You might have to drastically cut down your diet for a few weeks. I am able to eat only plain potatoes and a small amount of skinless baked chicken breast, all fat removed and not cooked with oil. You might not be able to continue the morning fruit smoothies. You might have to do a diet that is even stricter than it was before the surgery (I did). Diet really seems to affect how much the bile refluxes into your stomach.

 

I'm down 40 pounds, too, and still losing, but the weight loss has slowed.

 

You will need to try to eat frequent, small meals, of something that helps to absorb that extra bile (crackers, plain potato, etc). My doctor gave me carbafate, which does help to absorb the bile somewhat (about as well as pepto bismol - I tried pepto bismol first but it made me more nauseous). You might have to get up during the night to eat (I did).

 

It also helps to elevate the head of your bed 6 inches or so, to help keep that bile down where it belongs.

 

I know its rough. It WILL get better. Be very, very careful what you eat. I thought I was better the second week and tried to eat some plain oatmeal and some brown rice, and found out the hard way that if you make one small mistake with your diet, you'll be nauseated for three days.



 

post #18 of 24

How are you doing, Babygrant? I've been thinking about you and hope you will post an update when you feel up to it.

post #19 of 24
Thread Starter 

I'm actually doing REALLY well.  Nausea is about a 2 out of 10.  Pain is a 1.  Biggest complaint is the pulling sensation from the healing incisions.  Got my bandages taken off yesterday and am amazed at how SMALL they are.  Biggest one is the one at the top which is just over an inch long, others are about 1/4 inch.  Belly button one it's hard to tell because the incision is inside my innie.  hehe.  No diarrhea.  I'm eating all of the foods I ate before my gallbladder started giving me troubles.  Yesterday the boys wanted breakfast for dinner so we had pancakes, bacon and eggs fried in butter, and I had no problems at all.  No stomach pain, no diarrhea.  Of course those meals are only about once every couple of months though.  I've been using a little bit of olive oil in my cooking, and eating small amounts of cheese without problems.  I dont' want to gain the 42 lbs lost back though, so I've been eating semi-close to what I was eating before the GB came out.  Anxiety is about 80% better than before.  It's still there and sometimes I worry that it's going to throw me into a full blown panic attack, but so far so good!  Saw my doctor yesterday and asked her to check my thyroid, iron, and she's also doing blood sugar and CBC.  :)  So yeah, I'm so happy I got my gallbladder out.  When I saw the surgeon yesterday he said that my gallbladder showed signs of chronic irritation and had lots of stones.


Thanks for asking about me! 

 

Quote:
Originally Posted by BellinghamCrunchie View Post

How are you doing, Babygrant? I've been thinking about you and hope you will post an update when you feel up to it.

post #20 of 24

Wow, that is so great!!! Thanks for posting an update. I'm so happy for you!

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