SPD -- do you see a ped neurologist or other special ped?

[Aufilia]

Does your SPD or related SN kid see a neurologist or other specialty ped for regular evaluations or for other purposes? If so, can you tell me why they see him/her and how often? DD saw a pediatric neurologist when she was 3 for an evaluation for SPD, but we haven't been back. But recently I ran into some other SPD moms locally and they were all talking like their kids saw neurologists regularly. At the time I didn't have the opportunity to ask why, but now the question is bugging me. SHOULD I have DD see someone like a neurologist or developmental ped for... something? She'll be 5 in January, so it's been nearly 2 years since her evaluation.

[StephandOwen]

DS has ASD and SPD. He's seen a neurologist a handful of times (ds is almost 7 now) but not regularly. At first he was seeing a neuro to try and put some pieces together (he hadn't been diagnosed with ASD the first time he saw the neuro). Then there were some concerns about possible seizures (he probably had absence seizures). Then there were concerns about him having NF so he saw a neuro a few times. He hasn't been in a couple years and probably won't be unless we see more signs of NF. There's nothing a neuro could do for him at this time so there's no point in going back. All the signs of NF that we need to watch for are things we can do without the neuro (most of the signs would be visible on his body, he also sees a ped eye doctor that watches his eyes for signs).

I don't see how a neuro could help with SPD.... anyone want to clue me in?

[earthmama369]

DS (4) has SPD. We saw a neurodevelopmental ped. once for an evaluation and that was it. We've been able to handle everything on our own and with the help of an OT and honestly, since there's nothing dramatic going on that would require a neurologist, I don't see the need for it. We keep our regular doc updated and if anything comes up that I can't handle or that is worrisome, I'll check in with her and if she can't help me, then I'll look into going back to the neurodevelopmental ped.

[justKate]

Originally Posted by earthmama369

DS (4) has SPD. We saw a neurodevelopmental ped. once for an evaluation and that was it. We've been able to handle everything on our own and with the help of an OT and honestly, since there's nothing dramatic going on that would require a neurologist, I don't see the need for it. We keep our regular doc updated and if anything comes up that I can't handle or that is worrisome, I'll check in with her and if she can't help me, then I'll look into going back to the neurodevelopmental ped.

Same here.

[LynnS6]

My kid saw an OT. We never went to a neurologist. He doesn't have other issues that would warrant it at this time. (He does have a few stims/tics, and a little anxiety, but the anxiety in particular seems to be better under control these days.) If his tics continue (I'm convinced now they're tics, not stims, but they change ever few months), I might take him in.

[Aufilia]

Thanks, mamas. It had never occurred to me that we might want to see a neurologist regularly, so I was surprised when I heard these other moms exchanging rec's. I think I'll just keep on as we're going unless something changes. I've always assumed the OT would mention it if she thought DD was misdiagnosed or something and really "needed" evaluating. Glad to hear I'm not the only one NOT seeing a neurologist.