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9yo Aspie getting worse

post #1 of 27
Thread Starter 
Ds is having a very hard time right now.His teacher just called and said he is being very disrespectful,crying,screaming,refuses to do his work.Being very annoying to the other kids.He's like this at home too,even with his HBTS worker,and I just don't know what to do.I've tried everything I can think of,talking to him,taking away priviledges(he's obsessed with the computer but gets very very angry at it,to the point where he bangs on it,yesterday he cut himself doing just that,has destroyed many keyboards).He recently started on meletonin to try to help him sleep.He's sleeping better but the behaviors are still out of control.I'm at my wit's end and do not know what to do.I called his ped to see what she says but I'm waiting for her to call back.Maybe she can give me a referral to the children's hospital or something.I'm very leary of meds but I don't even know if they would help in this situation.I'm just so upset.I want to help him so much but I don't know what to do.Thanks for reading.
post #2 of 27
Just offering some support. I have a relative, same age, same exact dxs as your ds. I know it's hard.
post #3 of 27
Do you think he is starting adolescence? It's really hard on aspie kids. He seems a bit young, but....

Is he in any acitivities/sensory outlets that work for him? Swim Team was a lifesaver for my DD as that age.

What does HBTS stand for?

Some kids can handle a mainstream placement when they are younger, but not as they get older. Is an alternate placement an option? (My DD did mainstream public 7th grade last year, and is in a private alternative school this year, and she is doing MUCH better. She actually smiled the other day!).

I don't think that talking or discipline will work because I doubt that it is behavior that he has any control over. I think figuring out what you can change in his life to make it work better for him is important. I'd start with sensory stuff, but that's only because it is so huge for my DD. Then I would consider if the school situation could be improved.

Meds have a place. Just as we wouldn't let a child suffer with a broken bone, I don't think that we need to let them suffer with anxiety, depression, etc. One thing that I've tried with my own Dd is to make sure that we are doing everything we can to make her life work for her FIRST rather than medicating her to help her cope with a situation that isn't really right for her.

GOOD LUCK. I've been where you are, and I know how hard it is.
post #4 of 27
Thread Starter 
Thanks so much both of you.He's not in any activities,but that is something worth looking into,I don't know what is available around here.HBTS-home based theraputic services.He's in a self contained classroom,I don't think there is anything else available.
I agree that he may not have any control over this.I want to try everything I can for him,and if that means meds so be it.I just want him to be happy.
post #5 of 27
He may need some physical outlets to help get rid of his anxiety and excess energy. Gymnastics, swimming, running, hiking, riding his bike, trampoline, etc., may help. I've read that with Aspie kids, their anxiety builds up over the course of a day and regular physical activity really helps alleviate it.
post #6 of 27
My 9 year old son is similar right now, after a period of fairly smooth sailing and lots of progress. He is starting to get a bit of BO now( different hormone surges?)... I am considering this to be the start of the rocky prepubescent period possibly. My relatives who work with special needs kiddos had flat out warned me that puberty is tough with aspie kiddos. Just wanted to let you know that we are right there with you!
post #7 of 27
post #8 of 27
I honestly think some of this is his age having NOTHING to do with having Aspergers.

My 9 year old dd isn't sleeping well and growing. She is getting a little hormones and emotional. This is about the same age as her brother and sister did it also!
post #9 of 27
Quote:
Originally Posted by Marsupialmom View Post
I honestly think some of this is his age having NOTHING to do with having Aspergers.
It's on a whole different scale. The mix of Aspergers and adolescent hormones can be truly horrific. For my DD it hit later, almost exactly on her 12th birthday. She went from having developmental issues to having mental health issues
post #10 of 27
I have a 9 yo Aspie boy as well. It has been a really tough year for him. Between the naturopath, the behavioural therapy team, and the acupuncture I do see glimmers of hope for a little more calmness (and a little less screaming). Not big glimmers.....just enough to get through the next day. We have had a lot of success with the acupuncture for his allergies and asthma as well and he is SO calm for days after. I kind of wish we could just live there

The ninth year is a tough one for most kids-the year they start really outgrowing that young childhood phase. But for an aspie it is just so much harder! Change isn't favoured anyway, peers are acting different, bodies are changing quickly on the way to pre-puberty.

Perhaps it would be good to have your home therapy team look at adjusting what they are doing with him. He may need a different approach now that he is a little older?

Not much help, but LOTS of commiseration.
post #11 of 27

Aspie, ADHD, adolescence, and wishing to die... help!

DS12 is ADHD and mild Aspie. He's been on meds since early this summer (after trying everything 'natural' to no avail) - currently Adderall 15mg -- and it has made a world of difference. He's finally blossoming, he's able to do the things he's wanted to do, his talents are emerging and developing, and -- most intriguing and telling -- he says he "likes himself better" when he's on the meds.

He still has problems, though. Of course the meds aren't a magic bullet. They give his brain the stimulation it needs so that he can focus on, well, anything else, instead of just focusing on getting more and constant stimulation. But he still has behavior issues that will be a longer task to improve, or just maturity.

His 'natural' tendency is to be lazy, selfish... and to blame everyone and everything else for his problems. He will not take responsibility for his own actions, attitude, self, etc. I know that this is in large part due to the Asperger's and not that he's "bad", but the net result is still that he behaves with very little empathy, very little respect for others, like he expects the world to be handed to him on a silver platter.

It's improving, of course, on the whole, but there's a long way to go to mature adulthood!

Anyway, most days are actually pretty good lately, but there are bad days, and they're really bad. Today was really bad. He'll have these terrible tantrums... while they used to be violent and physical when he was younger, now he just cries. Wails. Sobs. As though his heart is being rent from his chest.

When he gets like this, I am not very sympathetic. I know I should be more... but I'm already working SO HARD to be patient and sympathetic with him. And these tantrums are not caused by anything that's really deserving of intense grief! It's usually because he wants something, doesn't get it... or he gets stuck on some idea that he thinks I "promised" him something (which I didn't) and now I'm "breaking" a promise. Or I just need him to do one simple thing and then we can do what it was he wanted. Let me clarify that he does have a lot of input into what he's doing, it's not like a random meaningless thing that I should choose my battles over and just let him not do this thing. I'm talking about things where I HAVE chosen the battle and this is something he MUST do. One simple little thing, but he's stuck in thinking he CAN'T DO IT. Really he can, he just doesn't WANT to. But he insists that he CAN'T.

Then when it's really bad, it escalates from there. Apparently, I hate him, and I want him to be miserable. I never listen to him, nobody ever listens to him. These are all pretty "normal" complaints from a tantruming adolescent, I know.

What's less "normal" is when he says "I may as well just DIE". Or "you're trying to kill me". Or, lately, it's "I'd rather die than feel like this."

I think this recent one is getting closer to the truth. He really does NOT like the way he feels when he's out of control. So I don't understand why he drives himself into it! I try to explain to him, to help him see (when he's calm and we're talking about it) that he works HIMSELF into these fits, he makes choices that drive him into it and then almost deliberately keeps himself there. But however that's working, he doesn't really like himself when he's like that. Just like he's said how he likes himself better when he's on the meds. The meds don't fix everything... he still doesn't like himself when he's having a tantrum.

We talked about his fit that he had today, some right afterwards (when he was still very sad but able to talk), and some at bedtime tonight. He said it feels like his body is at war. Like the world is trying to get him. I was telling him how he'll be happier if he learns to cooperate -- with me and with the world. It's when he fights against me (and against the reality of the world) that he gets like this. He needs to accept reality, and then things will be better, in a sense.

He said that since the world is trying to kill him, then if he cooperates, he'll die. *sigh*

Anyway, we eventually made some headway. Clarifying that I am not his enemy. The world is not his enemy. The enemy is the part inside himself that is fighting with the 'real' him or the 'good' him or however you want to call it. He needs to be strong and resist this character. But he says he can't, or he doesn't know how to. It just overwhelms him, with bad feelings (and bad behaviour).

I know that adolescence can be especially tough for an Aspie kid. Even though emotionally he's only like an 8yo or so *sigh*... though I'm not sure how much of this is that issue, since he's always been like this, more or less.

I just need to know how I can help him. He's not currently getting any therapy, we had a formal evaluation in the spring and that's all our coverage will pay for... He's read some books about dealing with ADHD and coping with negative feelings. And they did help. I think maybe he needs something bigger, aimed at teens perhaps.

I do feel so badly for the poor little guy. I've dealt with depression in my youth and I know it sucks... big time. But he's actually got a pretty easy life. I think he needs to learn the value of hard work and the TRUE joy that comes from that, to help get him out of his immature view of immediate pleasure. That's not very fulfilling! But he's very resistant.

I'm rambling. I'm venting. He asked me for help and I said I'd try to see what I could find out to help him. I guess I'm hoping someone else has gone through similar issues either themselves or with their aspies and they can point me to a great book or a great technique... He's usually such a happy, silly, creative, boisterous fellow. It's one extreme or the other. Should I be looking into bipolar??? Oy...
post #12 of 27
Quote:
Originally Posted by beachcomber View Post
He may need some physical outlets to help get rid of his anxiety and excess energy. Gymnastics, swimming, running, hiking, riding his bike, trampoline, etc., may help. I've read that with Aspie kids, their anxiety builds up over the course of a day and regular physical activity really helps alleviate it.
Yes, this is so true. Our son can be a nasty and rude kid, and that all changes if we get him active and outta the house. We go on a lot of hikes. The longer the better.

It is so hard, and I've been there. There is support here and you are in the right place for that. Is he doing OT at all?
post #13 of 27
I was leary of meds too but we tried Risperdal and it was like having the same kid but like how I always imagine it would be to have an NT kid. It was like being able to breathe again.

He's not on it now, cause dh is down on using it. However, I think it saved our lives and enabled ds to learn what he needed to learn socially and emotionally. He was never on more than 1 mg which is very low. You may want to look into this option.
post #14 of 27
Well, I will say that my non-Aspie (but SPD) 9 year old is getting VERY touchy and moody these days. I think it is the beginnings of hormonal surges. No advice, since others have given you some good stuff. Maybe looking at a really really good sensory diet to help him with the outlet would help?
post #15 of 27

!!

In our family there is a 9yr who is NT and an 11yr old who has AS & ADHD.

The NT development is really nothing like the AS. The NT moodiness etc. is much easier because it exists in context. The AS stuff a lot of the time just comes out of nowhere (I know there is a reason, it is just so far removed and so twisted and he doesn't even know where it is).

Nine was a really bad year for us too. It came with a school change, which didn't help.

We tried so many things... therapy, group sessions, several alternative therapies... and now medication. Medication (Tenex) is the only thing we've seen make any difference. I'd like to try diet, but my DH and his ex are not interested in that. We were also very resistant to trying medication, but now I feel a little bad that we didn't sooner since it actually helped. He is still a very difficult child, but the tantrums are basically gone.

Anyway... just saying I hear you! It is super a hard and there is no magic cure.
post #16 of 27
My 9 yr old is obsessed with the computer.

We did switch to homeschooling this year and things are so much better. We are also looking in to medication now. We keep him on a schedule, where he gets computer every night from 6-8pm. This was hard to get used to at first, but once he got used to it, things are better. We still have our hard times though.

Good luck!
post #17 of 27
Quote:
Originally Posted by LynnS6 View Post
Well, I will say that my non-Aspie (but SPD) 9 year old is getting VERY touchy and moody these days. I think it is the beginnings of hormonal surges. No advice, since others have given you some good stuff. Maybe looking at a really really good sensory diet to help him with the outlet would help?
Can that really happen THAT early? I hope to God not. Things seemed to finally stabilize around 7-8 and there are so many things that I love about that age range. Please don't tell me it's going to get worse I know that kids really vary, but apparently kids with ASD have higher testosterone levels and that really has a lot to do with the moodiness, anger, etc.

It's so sweet, I can hear my son humming in the other room (he's lying in bed) and I just can't imagine him being a big teenager. Oh, it scares me!
post #18 of 27
For my aspie DD, life was pretty easy until she hit 12. Then she had a year and half of complete hell and nothing seemed to help. She started coming out of it at about 13 1/2. She turns 14 next week and is doing GREAT.
post #19 of 27
Quote:
Originally Posted by Linda on the move View Post
For my aspie DD, life was pretty easy until she hit 12. Then she had a year and half of complete hell and nothing seemed to help. She started coming out of it at about 13 1/2. She turns 14 next week and is doing GREAT.
glad she is doing great, that is pure joy isn't it? when you tell other people it's almost like you can't believe what you're saying is the truth kwim? but it feels wonderful!
post #20 of 27
Quote:
Originally Posted by Essie View Post
Can that really happen THAT early? I hope to God not. Things seemed to finally stabilize around 7-8 and there are so many things that I love about that age range. Please don't tell me it's going to get worse I know that kids really vary, but apparently kids with ASD have higher testosterone levels and that really has a lot to do with the moodiness, anger, etc.

It's so sweet, I can hear my son humming in the other room (he's lying in bed) and I just can't imagine him being a big teenager. Oh, it scares me!
Oh, it's actually not that bad. I just notice that he's got a little less self-control, and a little more touchiness. His sensory stuff is flaring again. And my nephew, who's a year older, definitely had a hard year at age 9. (He's got Asperger's and that was the year he threatened to run away from home. He didn't actually do it, just packed his bags.)

And really, 9 1/2 isn't that early for the very beginnings of puberty. I don't see any other signs yet in ds. The average age of puberty in boys is something like 11, but anywhere from 9-14 is normal. I'm expecting ds to hit puberty a little early because dh did (dh reached his adult height by 14). Now, if ds follows my family pattern for me, he won't hit puberty till later and he won't hit his full height until age 18-20. I'm sort of hoping for a happy middle!
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