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Processing disorder? Cognitive delays? Anyone have any insight?

post #1 of 5
Thread Starter 
Just a quick background--DD is at least 3 1/2 years old (she was adopted from a Vietnamese orphanage at what we were told was 4 months old in June 2007...her pediatrician thinks that she was at least 6-7 months old at the time and possibly older). She was diagnosed with Reactive Attachment Disorder and Selective Mutism in the past year due to various issues. I'm not sure those issues are quite relevant to this post, but if someone thinks they are, I can post more about them. The one part that is relevant is that she didn't speak until she was almost 3, and as a baby, they thought she was deaf because she never responded to anything. She passed multiple hearing tests and it was brushed off as a symptom of her RAD & SM.

She's been in therapy with a psychologist who is an autism specialist, and we've known him for 4 years now, since he's DS's autism specialist. We've finally made some major headway with her RAD and selective mutism. Besides a few really really nasty rages a couple times a week, she's not showing many symptoms of RAD anymore. She's been talking to us at home for as long as she's been talking, and recently in the past month has been starting to say a couple of words out of the house to people besides her therapist (she's been talking to her therapist in short sentences for several months now).

Now that she's talking more, we're noticing some odd issues. For example, her colors. She can match colors really really well, but she can't name them. We've been working on them at home for a couple years and she just can't get it. Her therapist has been working on it for several sessions and she can't get it. Her session today left us dumfounded. They were playing with some colored counting bears--red, blue, yellow, green. He would take a bunch of one color and line them up, pick one up, and say "what color is this? Say 'red'." And she'd correctly repeat the color. He'd go down the line of red bears and repeat it for like 10 bears. Then he'd get to the last one and just say "what color is this?" and she'd say "blue". Obviously it's red, and she just said red 10 times. And if he asked her to hand him a red one, she'd hand him the blue, yellow, or green one. Repeat this for all of the other colors.

She also answers questions very oddly. Like the answers don't even make sense in the context of the question. One example of this from today is:

Me: "Jocelyn, can you hand me that game?"
Jocelyn: "Because I went home and went pee pee."

She'll also answer a lot of questions with "I don't know"...things from "what do you want for a snack?" to "why are you crying?" to "what are you playing with?"

The therapist said he's kind of at a loss because he can't find a pattern to it. It could be auditory processing, but typically people with CAPD can perform better in quiet situations than noisy ones, but she has the same poor performance in both settings. He would suspect cognitive delays, but she is doing just fine with all milestones that have nothing to do with expressive & receptive language. She's homeschooled and she does all of her montessori-based work with the manipulatives really well. She plays well and besides some social delays, she's meeting all milestones. She has a huge vocabulary and speaks in paragraphs and can have long appropriate conversations on her terms. He said he can't rule out some type of processing disorder or some type of cognitive delay, but she doesn't fit the mold for either of them. He admits that his speciality is autism though, and obviously not processing disorders.

Does anyone have any insight of what type of processing disorder, etc I should be looking into? My background is all in psychology/sociology/counseling, so anything outside of that is really out of my own range of knowledge too...
post #2 of 5
Quote:
Originally Posted by AllyRae View Post



It could be auditory processing, but typically people with CAPD can perform better in quiet situations than noisy ones,

I have absolutely no insight to your DD's issues, but I just wanted to thank you for this comment because it gives me one more piece that fits the puzzle *I'm* working on...
(totally explains two things for me. One is why my child would test well, yet struggle in class. The second is another reason why his preschool teacher would not have seen the same things the kindergarten teacher and I are seeing now.)

*hugs* for you and your dd, I have zilch from my past preschool spec-ed experience that would help here...she does sound somewhat like a little girl I had during the last year I worked, however, she came in brand-new to our class, then started to spend a lot of time working with the "specialized class' teacher while they were trying to figure out how to best meet her needs, then I was on maternity leave and came back for only the last few weeks of that year! (I was the assistant, not the head teacher.)

I do know they evaluated her for autism and that was not determined to be her issue. I did happen to see the teacher I worked with at the grocery store one day a year or so later, and she said the little girl had eventually OUTGROWN most of her issues. Which was *amazing* to me remembering this child who basically was not able to function in most of our typical preschool activities--she did great with the very structured table activities and not at all well with the "free play" That was where the time with the special smaller class came in.

So maybe that is a bit of hope? That your child too will outgrow many of the things you see now? (this little girl was about the same age as yours when I met her...)
post #3 of 5
She has a huge vocabulary and speaks in paragraphs and can have long appropriate conversations on her terms.

I have a son with mixed expressive receptive language disorder. My son could do this. He just couldn't hold conversations on other people's terms due to a variety of specific deficits. He also had some scripting. He also had odd, idiosyncratic verbal responses in conversations.

When our psychologist suggested a language delay, I was surprised. He's very bright and spoke well -- on his own terms-- so I was skeptical. They were right, though, and he's improving greatly with therapy.

His differential diagnosis included screening for ASD and auditory processing, too. They can look alike.

I'd get an assessment by a speech-language pathologist with an audiology screen at the same time. That can differentiate between a language disorder and an auditory processing disorder. it can also pinpoint any specific language deficits or delays that she has.
post #4 of 5
Quote:
Originally Posted by AllyRae View Post
She also answers questions very oddly. Like the answers don't even make sense in the context of the question. One example of this from today is:

Me: "Jocelyn, can you hand me that game?"
Jocelyn: "Because I went home and went pee pee."

She'll also answer a lot of questions with "I don't know"...things from "what do you want for a snack?" to "why are you crying?" to "what are you playing with?"
My DD is ID, has a major speech delay, fine motor issues..shes 9 and functions on a 3-5 yr old social/emotional level..she is just learning to do things independantly (dressing herself, making toast/pb sandwiches)..Coming from the standpoint of learning from her..these statements sound VERY familiar..

The odd answers to questions thing, I have yet to figure out..sometimes I will ask her something like "do you want ketchup" and she will blurt out whatever is on her mind at the time..1 time I asked her that exact question and she started yelling at me about not liking boys. We have learned to handle it with something to the effect of "Ok K you don't have to like boys but would you like ketchup on your hotdog?"

"I don't know" is another big issue for her. She has short term memory issues. She has forgotten what she was in the middle of doing many times over, and it has wigged her out to the point of a meltdown. The sp'ed class she is in does a "circle time" where they talk to the kids and asked her what she had for dinner the night before..she told them she didn't eat dinner. Of course I got a call, and we straightened it out but I asked her why she said she didn't eat dinner and she said she forgot that she had eaten..Which eating dinner every night for 9 years I don't understand how she would forget but...thats my DD. In all fairness my 4 yr old says he doesn't know all the time when I ask what do you want to eat or which shirt do you want to wear..It takes him some time to make a decision. And he hasn't been evaluated or dx for anything..hes pretty typical.

I have often said that she hit 5 and just stopped there..she never got any "older" maturity wise or intellectualy..We did try to homeschool her and this turned out to be a disaster...now shes in PS and we take it 1 day at a time.

If it were me knowing what I know now. I would get a full MFE done if you can. It would have saved me alot of anger,frustration and tears to know what I was dealing with from jump street instead of waiting around until her brothers were passing her up in their skills.
post #5 of 5
The two things that occurred to me are expressive/receptive language disorder or a slow processing speed. Has she had a full neuropsych workup? My son was found to have a normal IQ but a very slow processing speed. Some of what you describe sounds like my son.
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