food protein proctocolitis - Page 3

[mamafish9]

If you're getting pressure to stop nursing, then yeah, I'd go to a TED next. Since you've already been off dairy & gluten, it should only take a few days to reach baseline if he isn't reacting to one of the TED foods. I'd do the same four he's on, plus add a fat (olive oil is what most people use). The key to not dropping weight & milk supply on a TED is lots of fat, so use it liberally. If things haven't improved substantially in a week, rotate out one of the foods on the TED (potatoes would be my first pick, they're the most allergenic of the foods your son is eating). Try sweet potatoes or rice or something.

[rhesp1212]

When I did a TED, we did white potatoes, sweet potatoes, zucchini, yellow squash, oraganic minimally processed turkey and lamb. We would have done rice as well, but we already knew that was a problem for my son.

To give you an idea as far as a menu goes. I cooked a whole turkey once a week and used the meat for all sorts of things and then boiled the bones to make a turkey bone broth that I used for gravies, soups, etc.

For breakfast, I made hashbrown potatoes (used the frozen ones), ground turkey and zucchini/yellow squash. Mixed it all together and ate it like a hash. I made a large amount at one time, mixed it up and refrigerated it. Then for breakfast I would just toss whatever I needed into a skillet to heat up or into the microwave.

Lunch- baked potatoe with olive oil, salt and pepper, roasted squash and turkey meat

Dinner- lamb steak, roasted potatoes, squash

I doused everything in olive oil....and I mean tons! I fried potatoes in olive oil and ate them,etc. I also made homemade french fries in the oven all the time and ate lots of those. If you can do rice, you can get a little more variety than that with your meals.

[omelette]

Thank you for the ideas. It doesn't sound so bad after all. Will definitely cook a whole turkey - yum!

[rhesp1212]

I was on that TED for 6 months before my DS was able to tolerate anything else (which is unusual, so I don't want to worry you) so I got VERY creative with those ingredients!! I always precooked a bunch of food so that if I needed a quick snack I had food readily available. There's nothing worse than being on a restricted diet, being hungry and not having anything on hand to eat! I also made a huge pot of turkey and vegetable soup using the bone broth. Threw in a bunch of turkey meat, you could put rice in it if you can tolerate it, and a bunch of squash...and of course sea salt and some pepper to taste to give it a flavor boost.

I also used some of the broth and thickened it with potatoe flour/starch and made gravy and casseroles with it.

If you can do other oils other than olive oil, potatoe chips are always a quick and easy snack for on the go, too! Since I was on it long term, I also bought a food dehydrator and made turkey jerkey, zucchini chips, potatoe chips, etc. in it for on the go snacks that I didn't have to worry about spoiling.

[omelette]

rhesp1212 - Great ideas. I'm feeling optimistic since we've already noticed some improvements, although he had one of his nasty old type poops last night. I'm thinking it might have been something he managed to find on the floor from ds1's lunch or the bag of barley he bit open and managed to eat a few of.
I'm going to try and get organized in the food dept this weekend when dh is home b/c my biggest problem is not having prepared food on hand when the day is busy or we're out and about.

Another question - I bought these potato puffs (cheecha is the brand) and the only ingredients is potato flour, potato starch and sea salt. Are those ok to eat or should everything be homemade?

[rhesp1212]

Those potatoe puffs should be fine! There are some new popped potatoe chips that are out now too. Not sure what the ingredients are exactly, but those might be an option for you as well if you can find them.