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October 2010 Chat! - Page 2

post #21 of 938
JR I need to send you something big please delete!

Quote:
JacquelineR has exceeded their stored private messages quota and cannot accept further messages until they clear some space.
post #22 of 938
Jane, you've given me a lot to think about in your last post in the Sept thread.

I don't think I have any signs that make me think I am low in C or Mag. (Or, Shannon, that I have gut damage or flora imbalance. I've already pursued that path without getting anywhere. And I eat in a way that is gentle on the gut. ie very low on the usual irritants. And I consume a lot of probiotics. Among other things, for a long time I was drinking about 20 ounces of kefir a day with no effects. I'm kinda tired of kefir now.)

When I read about different deficiencies in different vitamins and minerals, the ones that involve a shortage of fats and fat soluble vitamins sound like me. And fit my diet history.

---

Everybody friend me on FaceBook. I am easy to find because I am the only Leigh Kornishev.

---

Sandrine, if you figure out how to get rid of your gag reflex let me know. I'm having the same issue. But I just buckle down and take my supplements anyway. But it is really funny to me how little of something has to be in my mouth to trigger my gag reflex. Like using my lips to hold my hair clip while both my hands are busy. Even brushing my teeth has been an issue. (TMI ALERT... Yet for some strange reason oral sex isn't causing me to gag. <shrug>)
post #23 of 938
Quote:
Originally Posted by JaneS View Post
JR I need to send you something big please delete!
Just waiting for my renewal to kick in.
post #24 of 938
Quote:
Originally Posted by Lady Lilya View Post
I don't think I have any signs that make me think I am low in C or Mag. (Or, Shannon, that I have gut damage or flora imbalance. I've already pursued that path without getting anywhere. And I eat in a way that is gentle on the gut. ie very low on the usual irritants. And I consume a lot of probiotics. Among other things, for a long time I was drinking about 20 ounces of kefir a day with no effects. I'm kinda tired of kefir now.)

When I read about different deficiencies in different vitamins and minerals, the ones that involve a shortage of fats and fat soluble vitamins sound like me. And fit my diet history.
I figure since you keep explaining your reasoning, you don't mind if I keep going? Are you asking for mechanisms that low fats/fat soluble vitamins can cause these issues? Cause massive doses of probiotics did nada for me until I started the pancreatic enzymes, and now they have huge effect. Before, I had no reason to think I had an imbalance. Just sayin' And the primary symptom of exocrine pancreatic deficiency is poor absorption of fat soluble vitamins. And if paancreas *isn't* digesting food that well, how can the gut *not* be out of balance? Then again, my history is that I'm a c-sec baby who was breastfed for 2 years by a mom who's had issues her whole life and who ate nothing but corn syrup or the first week of her life. So gut bugs fit my history, even if my symptoms didn't *at all.*

Yasko uses K for pancreatic support, it's supposed to help with glutamate/calcium ion channels/neurotoxicity. Cell membranes are made up of fats, so not enough or poor quality fats would make for weak membranes. And free radicals (gut imbalance?) combined with MUFA or PUFA=lipid peroxidation, which would wreak havoc on cell membranes.
post #25 of 938
Quote:
Originally Posted by Lady Lilya View Post
Sandrine, if you figure out how to get rid of your gag reflex let me know. I'm having the same issue. But I just buckle down and take my supplements anyway. But it is really funny to me how little of something has to be in my mouth to trigger my gag reflex. Like using my lips to hold my hair clip while both my hands are busy. Even brushing my teeth has been an issue. (TMI ALERT... Yet for some strange reason oral sex isn't causing me to gag. <shrug>)
I mostly only have this when i'm pg. So... I'm stuck with this for another 22wks. :
post #26 of 938
I'm about to collapse. And cry (oh wait- already did that.) I don't have anyone IRL to whine to right now, so I'm going to whine to you guys. If anyone saw my FB status yesterday, you know I had a BIG weekend with tons to do. Today was DP's day to sleep in, so I waited patiently, because I couldn't start moving anything into the garage until his car was out (it's dead.) He finally got up, and we started to move the car. He pushed while I steered out to the street, but I just didn't have the strength to turn it far enough with no power steering... so I told him to steer and I would push. Well, he thought he could do both from the doorway of the car. We started pushing and saw he was wincing. I told him to stop pushing, just steer, that I could push it (I was doing fine with pushing, and we only had a couple feet left to go.) He didn't, of course.... and when I got back into the house, he was lying on the floor, couldn't move. Had to help him up to the recliner, put heat and ice on his back for the next hour... arnica, pain pills (left over from his wisdom teeth).... and he still can't move or bend at all without yelling out in pain. (He's not the type of guy who normally lets you know when something hurts, so I know it's bad.)

So my whine is that I moved all the appliances out of the kitchen myself, moved the table, moved all the food, dishes, etc etc etc.... and I am SOOOOO tired. But I still have to finish cleaning and then cover all the cabinets with plastic.

Oh yeah- and I have no stove, because I thought that the stove could use the dryer outlet in the garage... nope. So dinner was pathetic, and I'm hungry and pregnant and exhausted and frustrated, and I have NO idea how I'm going to get this all done by myself. But it HAS to get done, because I don't have a kitchen until it does. aaaaaaaaaaaaaaaaaaaaagggggggggggghhhhhhh. I'm about this --> <-- close to ordering a frickin pizza, but I can't even imagine how much worse that would make things right now. sigh.

On a happier note, I made some gf bread this morning that is pretty fabulous.
post #27 of 938
Quote:
Originally Posted by mama9 View Post
I've only been around MDC for a few months and you mamas have been a lifesaver for me and my DS.

I've a little shy to post here lol, and it gets real busy with all different topics I've tended to chicken out each month Also, I've been so overwhelmed as I'm mostly alone at home with my DS who is a super-sensitive babe (hubby away or working most of the time, family live far, friends live mostly across the pond in the US. Anyway, my family think I'm living on another planet with my parenting preferences so to speak

I started a thread for my DS tonight should anyone want to pop by.

Bye for now!! DS awake and crying!
xXx


CS I'm sorry things didn't turn out how you expected.
post #28 of 938
Big, big, big hugs, cs! I've been tempted by that pizza oh so many times lately, but I know it'll just make things worse. I did put some cheddar on my sloppy joes tonight though. We'll ignore that nobody's anywhere near baseline It was yummy!
post #29 of 938
Okay, I think I'm getting a crush on these hydroxy b12 megadrops. They're tough to get into dd, and I certainly don't like the screaming mess she becomes the day after, but that's getting less and less. Today, she asked me to make a smoothie. First time ever. And tasted it and instead of saying yuck and swearing off them for the next 2 years, she told me it was too sour, so I could fix it. And when she still didn't drink it she agreed to try a different recipe next time. As in, even though she didn't like it, shes willing to try again!! No big deal, right? THEN she dipped her finger in the butter to taste it and see if she liked it (second lick, she decided she still didn't). And she was willing to try and DID like the honey butter. And she tried the steamed kohlrabi at dinner, and told us she didn't like the crunchiness of the (plain) English muffin we were eating the sloppy joes on, and listened when I suggested she put sloppy joes on it to soften it. Then spontaneously told me she loved me at bedtime, and fell asleep 45 minutes earlier than normal. It's the little things. If I can figure out an easy, reliable way to get it into her, the crush will be full blown love!
post #30 of 938
Just saw this... CS I wish I lived close by so I could come and help you!!!

I want to respond to other posts but will have to do so on Monday.

Big and welcome to the new people. Yes you do need to be here it sounds like!
post #31 of 938
Thread Starter 
CS

That's great whoMe. Even before this, I guess I should do it in the other thread, but in terms of butter, would melted (possibly flavored) butter as a dip work? For appetizer time.

Around here, I'm realizing that I have really slacked on regular mealtimes and snack times. Oftentimes we just have 3 meals, lunch gets pushed late so there's no snack and maybe that has to do with ornery DD. Let's see if I can work on my weakest area and get the logistical stuff in order--breakfast by 8, lunch 11-12, snack around 3 and dinner by 6? Can I do it? (You see, Kathy, one of your greatest strengths, balancing all those people with all those different needs every day AND working around the school year, it's a huge weakness of mine--my awe of you is never-ending).

Oh, and Kathy, you asked about calcium--you do make sure to consume a lot, I'd focus more on continuing cell salts and the other stuff that puts calcium in the right places and work (slowly, like after your surgery) on your underlying health stuff, rather than trying more and more and more calcium supps. I like my Perque Bone Guard as a multi-mineral supp, heck, if you want me to send you some I can, but I'm not sure you'd tolerate it any better than the others you've tried (though I really do like it for absorbability and a nice set of other minerals, even some K2 in it). You'll let us know when a date for the surgery is set, right?

oaksie, mama9, nice to have new people in Chat! And to a few of the people who popped in last month, I think I missed the welcomes then (and I'm really bad with names--here and IRL, it's sorta embarrassing). Lack of sleep and mental stress about the things I'm trying to balance are sucking my brain cells. The remaining one is getting lonely, though, so it's time I try to connect her to a friend (I am taking DS's remyelination supps, hoping it'll be good for my brain too ).

Ooh, speaking of brains, DS is starting to write letters! At the beginning of the summer (he turned 4 in April) he wasn't showing any preference between his right hand and his left and he wasn't writing anything but wild scribbles. Today he copied an R and made an A all by himself. He's also a bit spacey at the moment, the methyl B12 experiment hasn't quite stabilized yet, but still.
post #32 of 938
In theory, any form of butter should be fine - even something fried in ghee. The point is to get some fat leaving the stomach before the meal.

Anyone tried b-fresh gum? Looks pretty safe, no corn derivatives, and it has calcium and b12 in it, it's supposed to change the pH of your mouth to kill off bacteria. I have an email out asking what form of b12 it is. Found it on yasko's site.

And jr, you around? I think you mentioned something months ago about which deficiency is burning feet?
Eta: found it in may's chat. Niacin. Interesting, cause earlier in the week, I was feeling tingly, almost like the start of a niacin flush. I'm not taking any more/less niacin than usual, but have been creating all sorts of nutritional havoc by working on selenium, iodine, vit A and b12. I wouldn't be surprised...
post #33 of 938
Quote:
Originally Posted by changingseasons View Post
So I guess if they are not IgE allergies, and you don't see any symptoms, I would say go for it. When you're back home and can do a proper trial, I would do it... but for a trip, personally I wouldn't worry about it.
Yeah, while they weren't tested for IgE's (never any symptoms, etc. to warrant), I have been tested twice, about 10 years apart - negative for everything, and never had any symptoms to suggest IgE issues.

Quote:
Originally Posted by whoMe View Post
Yeah, absolutely do it! We do better away from home (less stress, I think) and we trialed eggs while camping at Yellowstone and got a pass. I say thoroughly enjoy them while you're gone, and consider it a trial!
Thanks for the thumbs up! I'm hoping I get similar results. I was thinking of this trip as a trial of sorts.

Quote:
Originally Posted by mamafish9 View Post
On eggs...

I was highly sceptical of our IgG + for eggs. We did a TED 15 months ago, and eggs were one of the first foods I brought back in - with no issues. But, because of the test +, we took them out again for a week, and then brought them back in - and when I reintroduced, I gave him scrambled eggs for breakfast, not just a little (probably 1.5 eggs worth). Nothing. Nada. Sorry, if I can't see a reaction taking them out or in, it's not real! And I think CS' daughter is good evidence that eggs really change during cooking, so raw and cooked could be quite different. Trial them back in. If I were going to Hawaii on Tuesday, I'd do it today, so you know, but that's just me .
D'oh! Should have remembered to actually buy some eggs when I went out to the store! Would have made a trial today possible - I made the Betty Crocker GF devil's food cake mix, and could have used eggs! Oh well, they were yummy......

I am, maybe naively, also very sceptical that eggs are any sort of issue for either myself or my kids (but have the feeling my ND really thinks it is an issue, not sure why.....). I agree with you that if you really can't tell the difference, it's not an issue, at least not one I'm gonna stress about. I really feel that we are missing out on some needed nutrients by not eating eggs (and I love to eat them!) I'm probably gonna be living on the wild side and won't end up trialing before I go - here to hoping eating eggs (at least in baked goods, etc.) are not going to be an issue!

Thanks for the replies and the welcome!

Okay, off the bed; I'm beat and up WAYYYY past 10 pm.
post #34 of 938
Niacin combined with MSM is what helped my feet, although they've recently been doing badly again. I get to the point where I hobble because they hurt so badly- my mom and gran were the same way. I know it's probably me just being paranoid, but I wonder sometimes if it's not peripheral neuropathy as a result of Hashimoto's encephalopathy.
Symptoms:
Quote:
Some of the most common symptoms of Hashimoto's Encephalopathy include: disorientation, psychosis, tremors, concentration and memory problems, jerks in the muscles and lack of coordination, headaches, partial paralysis on the right side, and speech problems. Sometimes, patients are mistakenly diagnosed as having had a stroke, or having Alzeimer's. Typically, Hashimoto's antibodies levels will be high, and the patient may also have a diagnosable case of Hashimoto's Thyroiditis, but TSH levels may also be normal.
Of course, it could also be peripheral neuropathy from B12 deficiency.
Yeah yeah. Anyway... Niacin and MSM are what worked for a while.
Bought these fruit gummies for the kids today while in the city, but DS2 was with me in the store and I didn't get to read the package properly until after I already bought and gave them to the kids and ate them myself- then started feeling "off"... They had colouring in them. I hate that almost-headache, totally spacy, sick feeling that the colouring gives me.
post #35 of 938
Quote:
Originally Posted by changingseasons View Post
I'm about to collapse. And cry (oh wait- already did that.) I don't have anyone IRL to whine to right now, so I'm going to whine to you guys. If anyone saw my FB status yesterday, you know I had a BIG weekend with tons to do. Today was DP's day to sleep in, so I waited patiently, because I couldn't start moving anything into the garage until his car was out (it's dead.) He finally got up, and we started to move the car. He pushed while I steered out to the street, but I just didn't have the strength to turn it far enough with no power steering... so I told him to steer and I would push. Well, he thought he could do both from the doorway of the car. We started pushing and saw he was wincing. I told him to stop pushing, just steer, that I could push it (I was doing fine with pushing, and we only had a couple feet left to go.) He didn't, of course.... and when I got back into the house, he was lying on the floor, couldn't move. Had to help him up to the recliner, put heat and ice on his back for the next hour... arnica, pain pills (left over from his wisdom teeth).... and he still can't move or bend at all without yelling out in pain. (He's not the type of guy who normally lets you know when something hurts, so I know it's bad.)

So my whine is that I moved all the appliances out of the kitchen myself, moved the table, moved all the food, dishes, etc etc etc.... and I am SOOOOO tired. But I still have to finish cleaning and then cover all the cabinets with plastic.

Oh yeah- and I have no stove, because I thought that the stove could use the dryer outlet in the garage... nope. So dinner was pathetic, and I'm hungry and pregnant and exhausted and frustrated, and I have NO idea how I'm going to get this all done by myself. But it HAS to get done, because I don't have a kitchen until it does. aaaaaaaaaaaaaaaaaaaaagggggggggggghhhhhhh. I'm about this --> <-- close to ordering a frickin pizza, but I can't even imagine how much worse that would make things right now. sigh.

On a happier note, I made some gf bread this morning that is pretty fabulous.
That totally sucks. I feel for you. I hope DP is better this morning.
post #36 of 938
Can we start a thread - weird symptoms & the nutrients that help them?

like:

burning feet - niacin

???

What do you think?
post #37 of 938
Had a dehydration headache all last night into today. Caused me to throw up and not sleep well. I'm having a hard time finding something (energy meds) that will help. I want to go on a big walk today and am not sure if I can handle it feeling this way.

Oh CS, how exhausting and overwhelming.
post #38 of 938
Quote:
Originally Posted by whoMe View Post
In theory, any form of butter should be fine - even something fried in ghee. The point is to get some fat leaving the stomach before the meal.

Anyone tried b-fresh gum? Looks pretty safe, no corn derivatives, and it has calcium and b12 in it, it's supposed to change the pH of your mouth to kill off bacteria. I have an email out asking what form of b12 it is. Found it on yasko's site.
Shannon, you and Deb gave me reason to try out my butter again. It's been in the freezer since July. Yummy it is. No problems so far, wish I could give dd some. She LOVED butter.
On a dairy related note, since dd can't handle either HLC MindLinx or Intensive, I am taking them myself. I think I may get dd some other pbx from Kirkman since she handles their bifidus fine.

I have tried the B-fresh gum. It was the only "safe" gum with xylitol they had at my local gf store. I was scared to give it to dd once I saw how much B-12 was in it. It was good.

B12 really helps me, and it is the main thing I get bad detox (or die-off?) with these days. I should try some of the other forms. I've just been using methyl.

Made this soup last night with coconut milk - yummy.
Potato Leek Soup

CS, I hope DP is able to move today. Do you have a chiro you can call?
post #39 of 938
Quote:
Originally Posted by JacquelineR View Post
Niacin combined with MSM is what helped my feet, although they've recently been doing badly again. I get to the point where I hobble because they hurt so badly- my mom and gran were the same way. I know it's probably me just being paranoid, but I wonder sometimes if it's not peripheral neuropathy as a result of Hashimoto's encephalopathy.
Symptoms:

Of course, it could also be peripheral neuropathy from B12 deficiency.
Yeah yeah. Anyway... Niacin and MSM are what worked for a while.
Bought these fruit gummies for the kids today while in the city, but DS2 was with me in the store and I didn't get to read the package properly until after I already bought and gave them to the kids and ate them myself- then started feeling "off"... They had colouring in them. I hate that almost-headache, totally spacy, sick feeling that the colouring gives me.

Peripheral neuropathy can also be low copper or b6, I think. I've been hobbling, too, but the foot pain seems to be less all over the bottom of my feet and focusing more just on my heels (including the back). I think that's progress? I think I might not directly do anything about it and just watch for it to go away. So not me, but msm and niacin aren't jumping out at me for whatever reason.
Quote:
Originally Posted by chlobo View Post
Can we start a thread - weird symptoms & the nutrients that help them?

like:

burning feet - niacin

???

What do you think?
Go for it. I'll fill in what I can. But what defines a weird symptom?

Quote:
Originally Posted by deditus View Post
Shannon, you and Deb gave me reason to try out my butter again. It's been in the freezer since July. Yummy it is. No problems so far, wish I could give dd some. She LOVED butter.
On a dairy related note, since dd can't handle either HLC MindLinx or Intensive, I am taking them myself. I think I may get dd some other pbx from Kirkman since she handles their bifidus fine.

I have tried the B-fresh gum. It was the only "safe" gum with xylitol they had at my local gf store. I was scared to give it to dd once I saw how much B-12 was in it. It was good.

B12 really helps me, and it is the main thing I get bad detox (or die-off?) with these days. I should try some of the other forms. I've just been using methyl.
Yay, butter! Does the gum happen to say what form the b12 is? And I want to fix dd's gut. We're still in the probiotics do nothing stage with her
post #40 of 938
I'll never be able to keep up here, but I came across a local allergy store and they have a database that is searchable by diet restrictions! Even if you don't but from them, it's a great way to find 'safe' items!!! https://www.navanfoods.com/Custom+Product+Search
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