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At My Wit's End ...

post #1 of 10
Thread Starter 
Hi All. I'm new to the boards, and I just wanted to introduce myself to you and share my story, and to vent a bit. I'm here for some advice, so if you have any, please share ...

Matthew (a twin) born 4/26/2010 has had some version of colic since the very beginning. He cries for hours on end, nothing will calm him down, etc etc etc. When he cries he grabs at his chest so much that he gives himself bloody scratches.

We discussed this with his pedi at his 4 month appointment, and he let us know that after 3 months, it's more of an "immature GI issue". He suggested that we go on very expensive Neutomigen treating it as a cow's milk allergy, even though Matthew probably doesn't have that (because he doesn't have bloody stools) ... he also referred us to Early Intervention, because we are concerned with Matthew's lack of cooing and how stiff he is all the time in his arms and legs. (He does make eye contact and smiles, so those are good signs developmentally.) We haven't met with the therapist yet to get him evaluated, but "we're on the list".

He might be happy for a few minutes, but if he hears a noise, or if we drive over a bump, he is screaming like someone poured boiling water over his head. I've never heard anything like it. Other people that I've spoken to about this think he might have sensory issues ...

We were on the expensive formula for a few weeks, but didn't see enough of a difference to justify the cost. We went back on Genlease, but he's worse than ever and I think I'm ready to try the hypoallergenic formula again. (Any difference between Neutramagin or Allimentum?). He is on Prevacid solutabs, but I'm not sure that's helping or making a difference.

He NEEDS to be swaddled at 6 months old to even get to sleep. He needs to be reswaddled 3-6 times a night, because he gets his arms out and pulls out his paci. He NEEDS a paci to sleep, but immidiately spits it out when he falls asleep and then wakes up wanting it back. I'm so tired from getting up every half hour to reswaddle or put the paci back in, I can't even see straight. I've tried skipping the paci, but honestly, the crying goes on and on and on and on ... and letting him cry it out doesn't work. He doesn't stop. He won't resort to sucking his fingers to calm himself down.

A separate, but maybe related issue - we've tried rice cereal for about 3 weeks now, and he refuses to swallow it. No matter the consistency of it, it comes right out. He cries through the entire process, which probably doesn't help any ... but I'm not sure if he doesn't like the texture, the taste, or if it's a swallowing issue ... he does fine with his bottle.

How long is too long to swaddle? How do I deal with the paci in-out-in-out all night long?

Most importantly, what do I do to get a happier 6 month old? His twin brother, Jacob, is just about perfect, and it kills me that Matthew is so evidently miserable. It just seems like he's in pain.

My two year old daughter had some similar issues the first few months, but she grew out of them by 3 months of age. The intensity with which he cries, combined with the frequency, and the fact that it's continuing to almost 6 months just has me worried that it's something more chronic. I'm not sure how to handle this, and need something to be done immediately to help him/us.

Please. Help.
post #2 of 10
Hi, Sarah. Welcome to the boards. I'm so sorry you're having a rough time!

I don't have any good advice, but wanted to point you to the Special Needs section to ask about sensory issues. Lots of great mamas there who've seen a lot. There's also an allergies section with parents whose kids have been on various special formulas who might be able to help with those questions.

I hope someone else can chime in with more detailed advice!
post #3 of 10
Oh, and if he doesn't like the rice cereal, I'd say don't push it. Rice cereal is pretty gross (I tasted it!), and babies don't have to eat it. If you want to try some solids, let him play around with some pureed fruits or veggies. And if he doesn't want to eat any, no worries. He doesn't need solids for nutrition yet.
post #4 of 10
I just wanted to say that my Cecilia, who is a couple weeks older, is still swaddled too, so don't feel badly about that! Have you tried different swaddle blankets that make it harder to get out of the swaddle? Cecilia's blankets are velcro ones (SwaddleMe) but there are even harder ones to get out of than that one, I think, like the Miracle Blanket.
post #5 of 10
Hi and welcome! I dont have a lot of answers for you, but I just wanted to let you know that my almost 7 month old is still sometimes swaddled. We use a small flat sheet to swaddle her, because she cant get out of it and it isnt as bulky as a bigger blanket. Good luck!
post #6 of 10
At five months I would take him off solids completely and especially the rice cereal. He doesn't have the ability to digest grains yet and if he is already having digestive issues, that isn't going to help. Give it some time to figure out what is going on and then you can slowly add some solids into his diet over the next couple of months.

Also, post over in the allergy forum. The ladies there are awesome and have helped me through a lot of issues I have had with my youngest. - http://www.mothering.com/discussions...play.php?f=307
post #7 of 10
From the little bit of browsing I've done on this site, and would also suggest the special needs (for potential sensory issues) and the allergy forums. Post your story there! I hope someone who has been there and done that can help you.
post #8 of 10
Another vote for the allergy forum. There are several very helpful women who frequent there, and there are threads which touch on the "which formula?" issue. (in a round-a-bout way, sometimes, so the thread title may not help. Try searching for "formula" or the specific formula name in that forum.)

And get a referral to a specialist - a pediatric GI and/or allergist is where I would start. (Ped GI first, if possible) But even your family doc or ped can run a RAST blood test to screen for some IgE food allergies. By the time you get an appt with the specialist, it may be several weeks/months down the road. Our ped allergist referral was 4 months away from when it was first requested.

ETA - and swaddle away. Don't worry about what works now. If it works, keep doing it. Is there any chance you can sleep with him, upright on your chest? DS would sleep on our chests to be upright. On nights when his belly hurt, he'd sleep with his head and chest on my belly, with his knees and legs on the mattress beside me. So, he was sleeping in a somewhat upright position. (Imagine kneeling to pray - that's kinda the position he was in.)
post #9 of 10
Another vote for the allergy forum. Hopefully they can help you figure out his GI issues.

And yes, keep swaddling him. We swaddled our DD1 until she was 9 months old. The miracle blanket is awesome! She couldn't get her arms out of it. When she grew out of that I learned a way to swaddle with 2 blankets that mimicked the miracle blanket that also kept her arms in.
post #10 of 10
Re: Swaddle.......I swaddled my first for a long time, I say keep swaddling if that's what helps him (and you) get some sleep. I'm currently swaddling my 2.5 month old and she is a little houdini (or I am a terrible swaddler).....I have a swaddle blanket she was escaping so now I do a double swaddle. I put her in the swaddle blanket and then I swaddle her in there and she doesn't usually get out. The first night I did this she slept for 9.5 hours she hasn't done that since but her sleep has gotten better because she can't escape. I just make sure she sleeps in a onesie or tshirt and then I use a very thin muslin blanket for the second swaddle so she doesn't overheat.
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