Hello!!
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My son does have Noonan. He also has the SOS1 mutation which tends to have a less severe presentation. He has had some OT for some low muscle tone and he had some eating issues early on but it seems like we are doing ok in that department for now. He isn't eating a lot of solids, he mostly nurses. I do worry about him getting enough calories when he eats solids, he has issues gaining when he eats things that are not very calorie dense. He loathes any sort of dietary supplement and won't touch them.
He does have some heart defects but he hasn't needed surgery. He has Von Willebrand which is a bleeding disorder.
He does have the enamel issues on his teeth so we are going to have to get some crowns it looks like. He is also going to have to have surgery on his testicle which hasn't descended yet.
He is a pretty little guy but makes up for it with a very forceful personality. He is very bossy and ornery. There are some pictures of him in my profile
http://www.mothering.com/discussions...php?albumid=12.
I guess my son does have the facial features, he was pretty much diagnosed when he was born. I had out of control severe polyhydraminios and they had someone from the Children's hospital consult and he told us he thought it was Noonan as soon as he saw him. (I was actually offended to be told his features are indicative of a genetic issue, he looks like my family
)
It is likely that it is not a mutation that occurred with him. They believe that other people (likely me
) in my family also have it. I have some cousins on my paternal grandfather's side that had some more severe heart defects. My son is the first time we got a diagnoses like that.
She does receive cognitive support, but does seem to be pretty much on track and I think she's a smart cookie. 
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