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infant with rapid breathing help

post #1 of 6
Thread Starter 
Hi there. My DS was born 6 weeks ago via C-section and was in the NICU for 7 days getting antibiotics for fluid on his lungs that they wanted to make sure did not turn into pneumonia. He was released even though he was still having fast breathing and slight retractions. We followed up with is regular pediatricion a few days later, as well as a pedatric cardiologist. He had a slight PFO when he was born but that was not the cause of the rapid breathing, as it was benign. To make a long story short, we've now had 3 visits with the cardiogolgist (everything is still fine), a pediatric pulminologist who did a blood oxygen study overnight, which was fine (his oxygen levels were always in the mid 90's), as well as lots of blood test (all of which were fine). However, I'm about at my witt's end because his breathing is still the same, and he's over 6 weeks old now. I called the pulminologist to make a follow up appt. for next week because he didn't ever tell me when (or if) I should come back in. I'm just a basketcase because he won't get better. He's gaining weight great, breastfeeding great, wet and dry diapers all the time, happy and alert. When he's sleeping his bpm are around 50-70 and when he's awake they go up to 100 or more. He sounds like he's panting...but will take a few breaks of slower breathing for a bit, then go right back to fast breathing. Help! Anyone else heard of such a problem? Will he ever grow out of this?!

He also snores a lot...don't know if that helps. But he's not congested at all.
post #2 of 6
I'm so sorry! My son had newborn tachypnea that he was admitted to the NICU for for 3 days, but it resolved on its own. While I was researching that, though, I do remember stumbling over the blog of another mom whose son was tachypnic for a longer period of time -- some number of months. If I recall correctly, it just resolved on its own.

I'm sorry I don't have any more information for you....
post #3 of 6
so sorry, this is so stressful!

i don't have direct experience but wanted to say good for you for keeping at your doctors until you feel comfortable with what they have to tell you. do you feel you need further testing or second/third opinions?
post #4 of 6
: I don't have any great advice, but would take him to the doctor if you are still worried. Especially if you see retracted breathing.
post #5 of 6
Thread Starter 
I'm not sure if I need further testing or what's going on. I'm hoping to God it's just like that other mom who's newborn was tachypdic for a number of months but then resolved on it's own. Nevertheless, I've called the pediatric pulminologist to let him know it's still going on. Then I'll leave it in his hands. It's been a few weeks since we've seen him when he said he thought it would resolve on it's own soon.
post #6 of 6
Thread Starter 

answers - finally - laryngomalasia!!

Finally some answers from the ENT doctor we visited with today. He has a mild form of laryngomalasia and possibly tracheomalasia, which is an extra flap in his voicebox causing him to breath harder and faster to get air through. His is a mild version and he'll grow out of it by 6-7 months...thank God! Some kids have to have surgery, but he doesn't. I'm just so grateful for answers. It's been a long, grueling 10 weeks of wondering what's going on. At least now I know. If any other mothers out there are having these same troubles, I suggest they ask their pedi about checking for this. My DS has no squeaking or noisy breathing typically associated with this (it's a milder version), except when he's eating sometimes. I just wanted to post a follow up in case anyone else out there needs answers with their baby! It was a terrible experience going through this without a clue of what's going on. And I've learned that some doctors (like his pedi pulmonologist) are really cruddy.
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